Guest guest Posted March 7, 2007 Report Share Posted March 7, 2007 Hello everyone, my name is Adam, I just turned 33 in Feb and I was just diagnosed with PSC on Monday. And I too am going through all the emotional highs and lows that go with being diagnosed. I was wondering about everyones diet, what kind of foods do you eat? I am taking a very proactive approach to this and will do whatever it takes to change my diet. Once again hello everyone! -Adam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2007 Report Share Posted March 7, 2007 Hey Adam I don't know that there's a special PSC diet just as I know there's not one for UC but I found it helpful to have food intolerance testing done first since it saved me a lot of guesswork. I went to a clinic that did Interro Testing. Using this method they assessed about 300 foods in an hour and categorized them as foods that are either highly, moderately, mildly or not intolerant at all. While my GP at the time didn't think much of the testing, it confirmed previously known food allergies as well as others that I should avoid. However, they do say that Interro Testing is not a diagnosis-- it only identifies intolerances--which is what you'd want anyway. After looking at my list, I found that following a gluten free diet works for me. But in addition to that, I also need to avoid soy. If/when you do get this testing done, Whole Foods is a great place to be able to accomodate most of your needs (albeit somewhat expensive). But depending on where you live, your local grocer may meet most of your need. I've also found the less refined the better. Of course where it becomes a nuisance is eating out or travelling. You'll find yourself having to make or ask for special consideration but these days, any decent restaurant is usually able to do so. [And you don't get a real meal on flights anyway so pack a lunch. ] Hope that helps Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2007 Report Share Posted March 7, 2007 HELLO ADAM I LIVE ON EGGS, CEREAL( SHREDDED WHEAT) BREAD AND PASTA ,SALAD, AND ENSURE DRINK... I CANT EAT MEAT ANY MORE..OR FRIED FOODS..IF I GET FAST FOOD IT IS A BEAN BURRITO FROM TACO BELL... BUT EVERYBODY IS DIFF..ON WHAT THEY CAN EAT JEANNEAdam wrote: Hello everyone, my name is Adam, I just turned 33 in Feb and I was just diagnosed with PSC on Monday. And I too am going through all the emotional highs and lows that go with being diagnosed. I was wondering about everyones diet, what kind of foods do you eat? I am taking a very proactive approach to this and will do whatever it takes to change my diet. Once again hello everyone!-Adam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2007 Report Share Posted March 8, 2007 Hi Adam, PSC is one of the most unpredicatable diseases out there. My five year old son was diagnosed back in the summer. Not many doctors will give you a specific diet. Partly because has been no studies which actually show to help or alleviate symptons of PSC. If you have UC or Chrons in addition to PSC they will tell you to avoid raw fruit, anything with seeds, eat healthy bacteria found in yogurt and avoid vegtables that have a hard time passing through the intestines. Now if you just have PSC, the only real advice that the doctors told us is to stay away from processed foods since they are unhealthy for everyone, avoid alot of salt since it effects the livers and ofcourse no alcohol. Some people also swear by milkthistle in the diet, although the doctors said there have been cases in which the natural herb has helped regenerate livers in the bodies of alcolholics. The doctors said, it cant hurt but emphasized it prob wont help. Anyway hopefully some of this helps! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2007 Report Share Posted March 8, 2007 Hi Adam, PSC is one of the most unpredicatable diseases out there. My five year old son was diagnosed back in the summer. Not many doctors will give you a specific diet. Partly because has been no studies which actually show to help or alleviate symptons of PSC. If you have UC or Chrons in addition to PSC they will tell you to avoid raw fruit, anything with seeds, eat healthy bacteria found in yogurt and avoid vegtables that have a hard time passing through the intestines. Now if you just have PSC, the only real advice that the doctors told us is to stay away from processed foods since they are unhealthy for everyone, avoid alot of salt since it effects the livers and ofcourse no alcohol. Some people also swear by milkthistle in the diet, although the doctors said there have been cases in which the natural herb has helped regenerate livers in the bodies of alcolholics. The doctors said, it cant hurt but emphasized it prob wont help. Anyway hopefully some of this helps! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2007 Report Share Posted March 8, 2007 Hi there Adam I lived with this for 18 months before getting a diagnosis. In that time I found if I avoid all meat produces, dairy and nuts the pain in my liver and other symptoms were reduced greatly. I also found that my memory was a little better. I am not a vegan and love eating meat. But I do stick to this as I feel so much better. I have shown my diet to a dietician and she was very happy I am getting a balanced diet, will gladly pass it on to you if you think it would help. Siobhan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2007 Report Share Posted March 8, 2007 When I was diagnosed 13 years ago, diet was never addressed by my physician, even though I asked numerous times. I simply learned smaller frequent meals seemed to lessen symptoms. For what it is worth, I recently got a preosteoporosis diagnosis directly linked to PSC. Carbonated drinks should be eliminated if not reduced to an infrequent treat. So, avoid the obvious like alcohol etc but be wary of potential problems such as mine. If only my physicians had taken me seriously when I asked about taking Vitamin D. --- Adam wrote: > Hello everyone, my name is Adam, I just turned 33 in > Feb and I was just > diagnosed with PSC on Monday. And I too am going > through all the > emotional highs and lows that go with being > diagnosed. > > I was wondering about everyones diet, what kind of > foods do you eat? I > am taking a very proactive approach to this and will > do whatever it > takes to change my diet. Once again hello everyone! > > -Adam > > ________________________________________________________________________________\ ____ Food fight? Enjoy some healthy debate in the Yahoo! Answers Food & Drink Q & A. http://answers.yahoo.com/dir/?link=list & sid=396545367 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2007 Report Share Posted March 11, 2007 I want to thank everyone for all the helpful information. I am going on a low sodium diet and also do away with processed foods and refined sugars as much as possible. I've wanted to go on this diet long before getting diagnosed with PSC. But now I have more inspiration to go thru with it. Thanks again everyone and I hope to keep up with all the info and keep in touch with you guys. -Adam > > Hey Adam > > I don't know that there's a special PSC diet just as I know there's > not one for UC but I found it helpful to have food intolerance > testing done first since it saved me a lot of guesswork. I went to a > clinic that did Interro Testing. Using this method they assessed > about 300 foods in an hour and categorized them as foods that are > either highly, moderately, mildly or not intolerant at all. While my > GP at the time didn't think much of the testing, it confirmed > previously known food allergies as well as others that I should > avoid. However, they do say that Interro Testing is not a diagnosis-- > it only identifies intolerances--which is what you'd want anyway. > > After looking at my list, I found that following a gluten free diet > works for me. But in addition to that, I also need to avoid soy. > If/when you do get this testing done, Whole Foods is a great place to > be able to accomodate most of your needs (albeit somewhat expensive). > But depending on where you live, your local grocer may meet most of > your need. I've also found the less refined the better. > > Of course where it becomes a nuisance is eating out or travelling. > You'll find yourself having to make or ask for special consideration > but these days, any decent restaurant is usually able to do so. [And > you don't get a real meal on flights anyway so pack a lunch. ] > > Hope that helps > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2007 Report Share Posted March 11, 2007 > Hello everyone, my name is Adam, I just turned 33 in Feb and I was just > diagnosed with PSC on Monday. And I too am going through all the > emotional highs and lows that go with being diagnosed. > > I was wondering about everyones diet, what kind of foods do you eat? I > am taking a very proactive approach to this and will do whatever it > takes to change my diet. Once again hello everyone! > > -Adam > I am trying to stick to an organic diet...Free range turkey, eggs...keeping gluten free, organic fruits & veggies, I use goat yogurt, milk & cheese instead of cow.(no growth hormones)I try and drink purified water, take vitamins, exercise (started doing yoga, as I read somewhere it had great benefits for this disease) I was diagnosed in Jan 2007, totally shocked by the diagnosis - I have no symptoms as yet.I had a liver biopsy during a medical procedure and found out I had PSC. I too went (and still am some days )having a battle of emotions...but stress is the biggest killer and I am determined to stay as positve as I can and make every healthy day count and make my good health last as long as I can. I hope to make it to Denver to find out the latest info on PSC. I think you are on the right track taking the PROACTIVE approach. Be Well! Tammy Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.