Guest guest Posted August 31, 2008 Report Share Posted August 31, 2008 Hi Buce I hope you are online today. Geeta is at Disneyland with 3 M6 tanks. Can she get them refilled when they are empty? I know this is a silly question but I always drop off my empties with Apria and get new ones- I have never had them refill the same ones. Thanks- Sarcoid/PF 3/2006 California O2 Drop> >> >> > Thanks everyone for the engourament re: my appt to the new pul. Anew> question I will be in bed at 4 -5 lpm saturation good heart good thenI> turn over and all hell breaks loose. I drop out of breath etc. I am> sure I am not alone with this but WHY? I guess another question for my> list. They told me being a new patient I am allowed 1 hour in there> with him and you know I will be there all 60 mins. Everyone have anice> day.> > Amy> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2008 Report Share Posted August 31, 2008 I know she was going to be in touch with providers and I'm not sure who she ended up with. I think she probably ended up with Lincare. In fact, the three tanks you refer to I believe are tanks the's rented in the US. So, she will be able to switch them out. She only had the portable concentrator for the trip. So, she's in good shape. Serves as something for any of us. Always carry your prescription with you. If you do, while you may have to pay for it, you will be able to get what you need wherever you go. > > > > > > Amy, > > > Wow, you brought up something that has been baffling me also. I'll > > get into bed at night, my concentrator set at 3 liters. I take my > time, > > get into bed slowly and no matter what I do, it happens. I'll just get > > myself settled and as you said, " all hell breaks loose " . My sats drop > > and I start to cough. This will go on for at least 5 minutes. I'm > short > > of breath, my sats drop into the 80's and I'm coughing so hard it's > > amazing I don't cough up one or both of my lungs. > > > I suppose it's just that getting settled in bed is just too much > > activity for 3 liters for me but even that doesn't really make sense. > It > > all settles down after 5 or 10 minutes and then I'm fine. > > > Does yours just settle down on it's own or do you have to get up and > > turn your O2 up? This is so frustrating isn't it? > > > > > > Beth > > > Age 48 Fibrotic NSIP 06/06 UCTD 07/08 > > > > > > Change everything. Love and Forgive > > > > > > > > > > > > > > > > > > O2 Drop > > > > > > > > > Thanks everyone for the engourament re: my appt to the new pul. A > new > > question I will be in bed at 4 -5 lpm saturation good heart good then > I > > turn over and all hell breaks loose. I drop out of breath etc. I am > > sure I am not alone with this but WHY? I guess another question for my > > list. They told me being a new patient I am allowed 1 hour in there > > with him and you know I will be there all 60 mins. Everyone have a > nice > > day. > > > Amy > > > > > > Quote Link to comment Share on other sites More sharing options...
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