Guest guest Posted March 12, 2007 Report Share Posted March 12, 2007 I am new to this group as of today. It is my son-in-law Steve that has PSC. He was diagnosed at the age of 17 and he is now 33. His desease has progressed to the point of needing a transplant thought, and he is very depressed about this. I was wondering if there is anyone out there with any success stories concerning a transplant with PSC. He is a wonderful young man, and he and my daughter Susie have two beautiful children, Dylan 8 and 6. I was hoping to show him that there are successful stories out there, that he could go through this, and be healthy and happy again some day. Could any one help me? Polly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2007 Report Share Posted March 12, 2007 Has your SIL Steve, ever heard of Klug? Here is a link to his page on his liver transplant. http://www.chrisklug.com/transplant.html 8 weeks after his transplant he was back on the slopes snow boarding! I won’t share any more of Chris’s story with you, it’s a whole lot more fun thinking about what you’ll be saying after reading it – things like WOW and WOOOOWWW!!! Barb in Texas - Together in the Fight, Whatever it Takes! Son Ken (32) UC 91 - PSC 99 Listed 7/21 @ Baylor Dallas _,___ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2007 Report Share Posted March 12, 2007 Polly, I DON'T have a liver transplant, but know several people who have received liver transplants. I met them through the American Liver Foundation support group which meets about every 2 weeks in Reseda, CA. There are ALF support groups all over the country, so you might want to check their web site at http://www.liverfoundation.org/ Anyway, there are 3 people who show up regularly who have liver transplants and are doing very very well, and living full lives. It is one of the main reasons I go to the meetings when I can - because it is very hopeful to hear them speak, even though the thought of going through a liver transplant seems scary. Interestingly, everyone I've talked to who has a new liver considers themselves very lucky. It's usually one of the first things they say. I guess because it's hard to get a new liver. -Marie I am new to this group as of today. It is my son-in-law Steve that has PSC. He was diagnosed at the age of 17 and he is now 33. His desease has progressed to the point of needing a transplant thought, and he is very depressed about this. I was wondering if there is anyone out there with any success stories concerning a transplant with PSC. He is a wonderful young man, and he and my daughter Susie have two beautiful children, Dylan 8 and 6. I was hoping to show him that there are successful stories out there, that he could go through this, and be healthy and happy again some day. Could any one help me?Polly Get a FREE Web site, company branded e-mail and more from Microsoft Office Live! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2007 Report Share Posted March 13, 2007 PollyOur son was very ill with his PSC from 11-19. 2 years ago he got his transplant and now is in college with As and feeling great. Tell Steve that this sucks without question but he can leave a pretty normal life with treatment.Martipollytorruiso wrote: I am new to this group as of today. It is my son-in-law Steve that has PSC. He was diagnosed at the age of 17 and he is now 33. His desease has progressed to the point of needing a transplant thought, and he is very depressed about this. I was wondering if there is anyone out there with any success stories concerning a transplant with PSC. He is a wonderful young man, and he and my daughter Susie have two beautiful children, Dylan 8 and 6. I was hoping to show him that there are successful stories out there, that he could go through this, and be healthy and happy again some day. Could any one help me? Polly Expecting? Get great news right away with email Auto-Check.Try the Yahoo! Mail Beta. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2007 Report Share Posted March 13, 2007 Dear Steve, At the age of 22 my husband Darryll was diagoned with PSC and became very symptomatic at the age of 32. Two and a half months ago he recieved his liver transplant. By no means is he at 100% but each day he gets stronger. It is too soon to ask him if he would do it again, but if you asked me the answer would be yes. His doctors are very pleased with the results of his transplant and I would recomend the team at Starzel Transplant Clinic to anyone. They believe in transplanting PSC as soon as they can. SO if you have the option of going to UPMC Starzel Clinic GO! Good luck and know there is hope. Litsa > > I am new to this group as of today. It is my son-in-law Steve that has > PSC. He was diagnosed at the age of 17 and he is now 33. His desease > has progressed to the point of needing a transplant thought, and he is > very depressed about this. I was wondering if there is anyone out > there with any success stories concerning a transplant with PSC. He is > a wonderful young man, and he and my daughter Susie have two beautiful > children, Dylan 8 and 6. I was hoping to show him that there > are successful stories out there, that he could go through this, and be > healthy and happy again some day. Could any one help me? > > Polly > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2007 Report Share Posted March 13, 2007 Polly, Tell Steve I feel his pain, but he has no choice. He must be positive and stay strong. His young family is depending on him. I was in the same situation as Steve. I lived with PSC for 11 years until April 2006. I was TX'ed and haven't looked back. I go to work everyday and can do what ever I want. I'm still building my strength back up. But there is no need to be depressed, It doesn't do any good. It may be tough on everyone for a while but its temporary!! Is he listed already. Where does he live? I had to move out of state for my TX.I waited almost 3yrs. in CA. before I got smart(actually my wife) and moved. Now im back in CA. and LIFE IS GOOD. If he needs someone to talk to I'm here for him. Mike PSC '95, TX, 06pollytorruiso wrote: I am new to this group as of today. It is my son-in-law Steve that has PSC. He was diagnosed at the age of 17 and he is now 33. His desease has progressed to the point of needing a transplant thought, and he is very depressed about this. I was wondering if there is anyone out there with any success stories concerning a transplant with PSC. He is a wonderful young man, and he and my daughter Susie have two beautiful children, Dylan 8 and 6. I was hoping to show him that there are successful stories out there, that he could go through this, and be healthy and happy again some day. Could any one help me?Polly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2007 Report Share Posted March 13, 2007 Polly, In 1997 I had my first liver transplant. I was back to work in two months. I was living a normal life until the PSC came back. I was sick again for a couple of years until my second transplant in 2004. I was out of the hospital one week after my transplant and back to work full time in 3 months. I'm doing great and never regretted getting either tranpslant. My doctors say I did so well because I had a positive attitude, which I do. My sons were 6 and 3 when I had my first transplant and they handled it just fine. Tell him to stay positive. Good luck and I hope all goes well for him. PSC 1988, TX1 1997, TX2 2004 > I was wondering if there is anyone out > there with any success stories concerning a transplant with PSC. > Polly > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2007 Report Share Posted March 13, 2007 Polly, what a wonderful Mother in Law you are. You can tell him that there are many success stories on this site, and alot of patients, caregivers and other family members who deal with this in their lives daily...some of the struggles are a challenge...but learning about PSC and hearing about others going through the same situations seems to make you feel less 'alone' and able to develop coping skills. If he won't come on this site, you certainly can get information and relay it to him. Hugs to you...I sure wish my MIL had such kindness. Cindy Baudoux-Northrup ________________________________________________________________________________\ ____ Need Mail bonding? Go to the Yahoo! Mail Q & A for great tips from Yahoo! Answers users. http://answers.yahoo.com/dir/?link=list & sid=396546091 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2007 Report Share Posted March 14, 2007 Polly, I'm and 23 and I was blessed with at liver the 5th of Feb. I was also diagnosed with PSC when I was 17 so I know Steve felt. It takes that invincible feeling away from you that all high school kids have away really fast. You asked your self why this happened when you did nothing to spark it. You lose a part of your life it seems. I was very down for a long time but then I realized that there is nothing you can do about it and worrying was just going to make you worse. It has been one month and nine days since I have received my new liver. I have so much energy and I feel like a million bucks. I feel like a 23yr old should. I was only in the hospital for 7 days and all the pain from my surgery only lasted about two weeks. You feel so much better the next day after you get it. Even though you are in pain you kind of forget about it b/c you are feeling so good. Now that I'm home and have nothing to do I think a lot about why this happened to me. I would not change this because now I have such a greater look on life. I really do live everyday as if it were my last. After your transplant the grass seems greener, the sky seems bigger and bluer. U really enjoy life so much more. I know me writing this is not going to change things. I read a lot before I had mine and it really did nothing for me. You have to experience it for yourself to truly realize how great it is. Tell Steve to hang in there because it is so worth it in the long run. Steve will be in my prayers. Ty I am new to this group as of today. It is my son-in-law Steve that has PSC. He was diagnosed at the age of 17 and he is now 33. His desease has progressed to the point of needing a transplant thought, and he is very depressed about this. I was wondering if there is anyone out there with any success stories concerning a transplant with PSC. He is a wonderful young man, and he and my daughter Susie have two beautiful children, Dylan 8 and 6. I was hoping to show him that there are successful stories out there, that he could go through this, and be healthy and happy again some day. Could any one help me? Polly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2007 Report Share Posted March 14, 2007 Here are some famous people who have had liver transplants. Please note, some have retired, (because of age) while others are still working! Fabares 1944 - (Retired) Actress " Coach " , Elvis movies Liver transplant Larry Hagmann 1931- (Still working) Actor " I Dream of Genie " , " Dallas " Liver transplant 1995 (Side note, from his web site: As one who has personally been touched by the gift of life, I encourage you to work with me to drive home the message that organ donation works and every American should consider it. Last year, 11,684 Americans and their families donated organs. This resulted in 20,593 life-saving transplants. Although these numbers are promising, it is still not enough for the thousands more critically ill individuals who could have been helped if more organs were available. There are now more than 82,000 people on the national organ transplantation waiting list. Everyday, 16 people die waiting for an organ transplant to give them a second chance at life. It is so important to get the word out … transplantation saves lives. Experts suggest that each of us could save or help as many as 50 people by being an organ donor. We recycle everything these days … paper, cardboard, glass, plastic, tires …. why not recycle ourselves? Please help by signing your donor card. Thank you for your efforts. Larry Hagman. (Larry also serves on the Board of Directors Advisory Committee of Transplantation for the US. Dept. of Health and Human Services). Evel Knievel 1938- (He retired in 1981; in 1998 he announced that he needed a liver transplant) Motorcycle Daredevil Liver transplant (Side note: Knievel had a liver transplant in 1999. Evel has been an avid golfer most of his life and continues to play regularly. He enjoys all sports and likes to watch and wager on football, basketball and hockey games. He has been a generous contributor to charities and currently is promoting the work of the " Make a Wish Foundation, " an organization that arranges the fulfillment of the dreams of children suffering from terminal illnesses.) Jim Nabors 1933- (Still working) Singer/Actor " Andy Griffith Show " Liver transplant (Side note: Since his very successful liver transplant surgery in 1994, Jim has been back on the personal appearance circuit and has had engagements with several symphonies including the Dallas and St. Louis Symphonies. When he is not performing, one can find Jim at his home in Honolulu or on a tractor in Hana, Maui, on his macadamia nut farm where he also grows tropical flowers.) () Redford 1963- (Still working) (Son of Redford) Liver transplant Producer of the movie about liver transplantation " The Kindness of Strangers " Broadcast on HBO Pat Summerall (Still working) TV sportscaster - having worked at CBS, FOX, and ESPN. Liver Transplant (Side note: Summerall had his liver transplant in 2004 at the age of 74! He is currently back working for ESPN.) There are many more famous people who have had liver transplants, they have returned to work and play and lead fulfilling lives. Tell your SIL, getting a liver transplant isn’t going to be a very good excuse, he’ll still have to help your daughter with the laundry, grocery shopping and taking out the garbage! HTH Barb in Texas - Together in the Fight, Whatever it Takes! Son Ken (32) UC 91 - PSC 99 Listed 7/21 @ Baylor Dallas ,___ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2007 Report Share Posted March 14, 2007 Speaking of, for anyone in the Philadelphia area: Click Here if you cannot view this image Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2007 Report Share Posted March 14, 2007 Ty, You are one amazingly mature and positive young man! Congratulations on your successful transplant and thanks for sharing your wonderful life philosophy with all of us. May your recovery continue to be smooth. Ricky PSC 2003 Re: Successful transplants > Polly, > I'm and 23 and I was blessed with at liver the 5th of Feb. > > Ty > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2007 Report Share Posted March 20, 2007 Polly, I am sorry to hear that your son-in-law is getting worst and will be needing a transplant soon. Unfortunately this is the way this disease progresses. I was diagnosed with PSC in 2000. It was hard on me thinking that I was going to need a transplant at some point with my children still being so young (my daughter was 6 yrs. old and my son was only 6 mons. old when I was diagnosed). Unlike you I hadn't found this web site but I did find out about a book called "To the Edge and Back" by Klug that really made me feel better about the whole thing. Chis got a liver transplant in 2000 and in 2002 went on to win the bronze medal in the Olympics for snowbording. As for me I had my transplant on Sept. 28th 2005 and I'm doing great. All my symptoms went away so quickly after the surgery and I was able to be there for my kids again. That was the best part. Pat (CA) pollytorruiso wrote: I am new to this group as of today. It is my son-in-law Steve that has PSC. He was diagnosed at the age of 17 and he is now 33. His desease has progressed to the point of needing a transplant thought, and he is very depressed about this. I was wondering if there is anyone out there with any success stories concerning a transplant with PSC. He is a wonderful young man, and he and my daughter Susie have two beautiful children, Dylan 8 and 6. I was hoping to show him that there are successful stories out there, that he could go through this, and be healthy and happy again some day. Could any one help me?Polly 8:00? 8:25? 8:40? Find a flick in no time with theYahoo! Search movie showtime shortcut. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2007 Report Share Posted March 20, 2007 Polly, I am sorry to hear that your son-in-law is getting worst and will be needing a transplant soon. Unfortunately this is the way this disease progresses. I was diagnosed with PSC in 2000. It was hard on me thinking that I was going to need a transplant at some point with my children still being so young (my daughter was 6 yrs. old and my son was only 6 mons. old when I was diagnosed). Unlike you I hadn't found this web site but I did find out about a book called "To the Edge and Back" by Klug that really made me feel better about the whole thing. Chis got a liver transplant in 2000 and in 2002 went on to win the bronze medal in the Olympics for snowbording. As for me I had my transplant on Sept. 28th 2005 and I'm doing great. All my symptoms went away so quickly after the surgery and I was able to be there for my kids again. That was the best part. Pat (CA) pollytorruiso wrote: I am new to this group as of today. It is my son-in-law Steve that has PSC. He was diagnosed at the age of 17 and he is now 33. His desease has progressed to the point of needing a transplant thought, and he is very depressed about this. I was wondering if there is anyone out there with any success stories concerning a transplant with PSC. He is a wonderful young man, and he and my daughter Susie have two beautiful children, Dylan 8 and 6. I was hoping to show him that there are successful stories out there, that he could go through this, and be healthy and happy again some day. Could any one help me?Polly Sucker-punch spam with award-winning protection. Try the free Yahoo! Mail Beta. Quote Link to comment Share on other sites More sharing options...
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