Run for Billy & PSC Partners Seeking a Cure

[Guest guest]

Run for & PSC Partners Seeking a Cure -

www.firstgiving.org/runforbilly.

Colfer Jr. was diagnosed with Primary Sclerosing Cholangitis

(PSC), a rare degenerative liver disease, at the age of 13. At 16 yrs

old, received a second chance at life when he was blessed with

a liver transplant. At present, the only definitive treatment for

PSC is liver transplantation. Sadly, ten years later, PSC recurred

in 's new liver. On January 19, 2006, lost his battle

with PSC at the age of 29. was an active member in the

community, serving as Captain of the Massapequa Fire Department. He

was always there to lend a helping hand to someone in need or share a

laugh. was a hero. He taught us courage and strength as he

bravely battled PSC and liver transplant.

Primary Sclerosing Cholangitis (PSC) is an autoimmune disease that

causes the bile ducts inside and outside of the liver to become

scarred, narrowed, and eventually blocked. As more and more ducts

are blocked, bile becomes trapped and damages the liver eventually

leading to cirrhosis. Currently, the cause of PSC is unknown and

there is no cure for this disease.

In honor of 's fight, I'm running the Long Island Half Marathon

on May 6th 2007. My hope is that your support and donations will

someday bring a cure for PSC and bolster awareness for Organ

Donation. Donate Life! Please consider a donation to PSC Partners

Seeking a Cure in honor of Colfer and all of the other brave

men, women, and children who are inflicted with this disease and may

someday face organ transplantation.

To make a Donation, please visit my website at

www.firstgiving.org/runforbilly. Many thanks for your support -- and

don't forget to forward this to anyone who you think might want to

donate too!

[Guest guest]

Tina,

What a wonderful effort your making for PSC Partners Seeking a Cure and what

a terrific way to remember your soulmate Bill. As you can see by today's

devastating news about Mark, we need to focus as much as we can on finding

that cure. Thank you so much for thinking about those still battling this

awful disease. Good luck with your run. I am sponsoring you right now.

Omaha/Tarheel Tim

[Guest guest]

Hey Tina,

I noticed that you have updated your goal.:-) It looks like yesterday

was a pretty good day for donations.

This is a great way for everyone to support Tina, who is part of the

fmaily here. It is also a great way to support all of us sicne all the

contributions go to PSC Partners ...

Now, keep up with your training although it's *only* a half marathon.

McInerney

Naperville, IL

[Guest guest]

Hi !

Thank you so much for your support and donation! I'm so touched by

everyone's support and generosity. I never expected to get such a

great response. Also, my employer North Fork Bank has agreed to

sponsor me with a contribution of $1000 in addition to what i have

already raised on my own! I really can't believe it. So, yes, I

raised my target accordingly.

Please pass on the word to visit www.firstgiving.com/runforbilly and

support PSC Parteners Seeking a Cure.

Hope all is well!

Tina

>

> Hey Tina,

>

> I noticed that you have updated your goal.:-) It looks like yesterday

> was a pretty good day for donations.

>

> This is a great way for everyone to support Tina, who is part of the

> fmaily here. It is also a great way to support all of us sicne all the

> contributions go to PSC Partners ...

>

> Now, keep up with your training although it's *only* a half marathon.

>

> McInerney

> Naperville, IL

>

[Guest guest]

Dear Tina,Thank you so very much for this great effort.How could I not support a "Run for " when my own is 24 with PSC ?I just returned home from NY because he was in New York Presbyterian Hospital and has a bad case of mono.I'm sorry my donation couldn't be more but I am also doing the Partners Virtual Walk at the same time to raise money for a treatment and a cure.I would encourage everyone to take some time to support Tina and any of the walkers doing the Virtual Walk to help make a difference.We can do it!!We can all help.LeeRun for & PSC Partners Seeking a Cure -www.firstgiving.org/runforbilly.