Guest guest Posted March 18, 2007 Report Share Posted March 18, 2007 > Dear All,> We need your help !! Virtual Walk 2 is underway and > we need as many walkers as possible.> It's easy, it's fun and it is making it possible to fight for a > treatment for PSC!!!> Last year we raised $44,500 and we are now supporting beginning > research with the STOPSC registry. We are also giving a prize for > the best PSC research to foster more research and attention to PSC.> We are together in this fight whatever it takes and we can all help > by registering for the walk. Your donations are being put to work!> To register go to www.pscpartners.org and learn more by clicking on > the 2007 Virtual Walk introduction and then register by clicking on > 2007 Virtual Walk registration form.> Registration is $25 and you will get everything you need in a kit. > Tee-shirt, permanent marker, signature sheets, directions, sample > letters, thank you letter and return envelope. "Walking" through email is a great way to get donations and you can place the name of the donor on your shirt for them. See the email I sent to my friends and family below and feel free to copy. You will be pleasantly surprised at how many people will send a check.> > We will make a difference.> Everyone can help.> My thanks to all,> Lee Dear All. I am participating in our March annual walk for PSC Partners Seeking a Cure. We are raising funds for research that will lead to a treatment and a cure. PSC Partners Seeking a Cure has already been so successful in helping patients and caregivers and now we are starting to fund research. We will continue to provide education, help and support for patients and caregivers. Please see our list of accomplishments below. I am collecting donations and signatures of support on my Partners tee-shirt the whole month of March. If you would like to donate, your donation is tax deductible and I will place your name on my shirt to display at the conference.Checks should be made out to:PSC Partners Seeking A Cure Mail to :Lee Bria 10851 Mangrove Cay Ln NEUnit 813St. sburg, FL. 33716I am truly grateful for all the support and generosity of all my friends and family.We are making a difference.All my best,LeePSC Partners Seeking a Cure’s Successes Since our Inception in January 2005-We’re the only organization dedicated to finding a cause for PSC and providing education and support for PSC patients and caregivers. We are a totally volunteer foundation with an administrative expense of only 1.5%.-Our active website (with information regarding our educational, support, and research activities) has an average of 30,000 hits per month.-Our PSC Literature site has 53,000 abstracts in the database covering all aspects of PSC and related diseases, which is accessed by physicians, researchers, and patients.-We publish a free online newsletter with the latest information regarding research, the financial position of the foundation and other subjects of interest to PSCers and caregivers.-We created a brochure entitled “Living With PSC” which is available to PSCers, physicians, and caregivers. So far, 2800 brochures have been handed out nationally.-We hold annual national conferences for PSCers and caregivers. The first two were held in Denver and Pittsburgh respectively and were attended by about 100 participants each. A CD of each conference is available for people who were unable to attend.-Our third national conference in April 2007 will have an additional CME course for medical professionals. We have attendees from Canada, the UK, Sweden, and Israel.-Our annual fundraiser, the Virtual Walk, raised $44,400 its first year (2006).-Our Medical Scientific Advisory Committee is actively engaged in deciding where to allocate our funds for PSC research. In 2006, our board of directors approved financial support for two types of PSC research: -$20,000 donated to STOPSC registry run by The Foundation -$3000 prize donated to the most promising junior PSC researcher to be awarded at the 2007 annual meeting of AASLD (American Association for the Study of Liver Diseases).-Our individual members are working locally on organ donation awareness.-We have a growing list of corporate and individual sponsors.> Quote Link to comment Share on other sites More sharing options...
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