Status of Judy W at Methodist Hospital, Indianapolis

[Guest guest]

Hello All,

I made it down to the comuter room for a few minutes at least, of

course I used my walker speeding backwards down the long hallway

called Professonal Avenue.

The first 3 days I got Sulumedrol 500 mg steriod IVs first, then my

6 hours of Thymoglobulin. The side effect I get from the

Thymoglobulin is severe headache, but night before last they gave me

some type of injection that helped so at least I am getting sleep at

night. However, I still had some headache yesterda y a.m. so they

gave me a different med injection in my pic line along with the

SuluMedtrol and the Th ymoglobulin and not only worked but put me to

sleep so I had a 3 hour nap yesterda y afternoon. (The y on this

computer isn't working correctl y). Anyway that nap was so good

thank goodness as the y had decided I need a blood transfusion also

(2 units) so I was on IV's from around 2 p.m. to 3 a.m. and didn't

go to sleep again after my nap until 3.a.m.. But I still got at

least 8 hours sleep the night before and 6 counting the 3 hour nap

from 3 to 6 in the afternoon. My WBC has also lowered thanks to the

Thymo (which it did on day 3 last Nov. also) so the y said toda y

the y will cut m y Th ymo dosage in 1/2 & the nurse practioner for

my doctor claimed it wouldn't keep me here any longer but you never

know until the time comes for sure when they will release you. I am

hoping I will be able to go home after day 7, but am figuring that

won't be until Tues. because on day 7 if they don't start the IV's

until afternoon it's too late to go home then. On the 13th the y

are having a 10 year Transplant reunion here for transplant

recipients, transplant workers, donor families, and those on the

transplant list. I spoke with Kerry who said she was #2 on the

list and told her there was another tansplant here this week so

could put her up as #1. At least she is plannng to come to the

reunion and I hope to get to go home on Tues. and come back over on

TSat for the picnic. Well the meds must be making me sleeping when

I am keyboarding so I will log off. You all take care.

Love and Aloha,

Jud y IPF 10/06 TX 8/22/07 Rejection treatments Sep 0 7 (outpatient)

and rejection treament & lung collapse 11/07 and rejection Grade 2

now. But am feeling stronger so pra ying that this treatment works.

[Guest guest]

Hi Judy,

It is so good to see your post! Thank you so much for keeping all of us informed throughout your transplant journey. You are in my prayers. God bless you-

R. (52) Sarcoid/PF 3/2006 Carlsbad, California

Subject: Status of Judy W at Methodist Hospital, IndianapolisTo: Breathe-Support Date: Friday, September 5, 2008, 9:39 AM

Hello All,I made it down to the comuter room for a few minutes at least, of course I used my walker speeding backwards down the long hallway called Professonal Avenue.The first 3 days I got Sulumedrol 500 mg steriod IVs first, then my 6 hours of Thymoglobulin. The side effect I get from the Thymoglobulin is severe headache, but night before last they gave me some type of injection that helped so at least I am getting sleep at night. However, I still had some headache yesterda y a.m. so they gave me a different med injection in my pic line along with the SuluMedtrol and the Th ymoglobulin and not only worked but put me to sleep so I had a 3 hour nap yesterda y afternoon. (The y on this computer isn't working correctl y). Anyway that nap was so good thank goodness as the y had decided I need a blood transfusion also (2 units) so I was on IV's from around 2 p.m. to 3 a.m. and didn't go

to sleep again after my nap until 3.a.m.. But I still got at least 8 hours sleep the night before and 6 counting the 3 hour nap from 3 to 6 in the afternoon. My WBC has also lowered thanks to the Thymo (which it did on day 3 last Nov. also) so the y said toda y the y will cut m y Th ymo dosage in 1/2 & the nurse practioner for my doctor claimed it wouldn't keep me here any longer but you never know until the time comes for sure when they will release you. I am hoping I will be able to go home after day 7, but am figuring that won't be until Tues. because on day 7 if they don't start the IV's until afternoon it's too late to go home then. On the 13th the y are having a 10 year Transplant reunion here for transplant recipients, transplant workers, donor families, and those on the transplant list. I spoke with Kerry who said she was #2 on the list and told her there was another tansplant here this

week so could put her up as #1. At least she is plannng to come to the reunion and I hope to get to go home on Tues. and come back over on TSat for the picnic. Well the meds must be making me sleeping when I am keyboarding so I will log off. You all take care.Love and Aloha,Jud y IPF 10/06 TX 8/22/07 Rejection treatments Sep 0 7 (outpatient)and rejection treament & lung collapse 11/07 and rejection Grade 2 now. But am feeling stronger so pra ying that this treatment works.

[Guest guest]

I am praying for you Judy . Take Care.

IPF 2/07 Il

[Guest guest]

Hi Judy,

I hope you're doing better and the meds are helping! I hope you have

a speedy recovery! and be able to go to the picnic.

Irene

> Hello All,

> I made it down to the comuter room for a few minutes at least, of

> course I used my walker speeding backwards down the long hallway

> called Professonal Avenue.

>

> The first 3 days I got Sulumedrol 500 mg steriod IVs first, then my

> 6 hours of Thymoglobulin. The side effect I get from the

> Thymoglobulin is severe headache, but night before last they gave

me

> some type of injection that helped so at least I am getting sleep

at

> night. However, I still had some headache yesterda y a.m. so

they

> gave me a different med injection in my pic line along with the

> SuluMedtrol and the Th ymoglobulin and not only worked but put me

to

> sleep so I had a 3 hour nap yesterda y afternoon. (The y on this

> computer isn't working correctl y). Anyway that nap was so good

> thank goodness as the y had decided I need a blood transfusion also

> (2 units) so I was on IV's from around 2 p.m. to 3 a.m. and didn't

> go to sleep again after my nap until 3.a.m.. But I still got at

> least 8 hours sleep the night before and 6 counting the 3 hour nap

> from 3 to 6 in the afternoon. My WBC has also lowered thanks to

the

> Thymo (which it did on day 3 last Nov. also) so the y said toda y

> the y will cut m y Th ymo dosage in 1/2 & the nurse practioner for

> my doctor claimed it wouldn't keep me here any longer but you never

> know until the time comes for sure when they will release you. I

am

> hoping I will be able to go home after day 7, but am figuring that

> won't be until Tues. because on day 7 if they don't start the IV's

> until afternoon it's too late to go home then. On the 13th the y

> are having a 10 year Transplant reunion here for transplant

> recipients, transplant workers, donor families, and those on the

> transplant list. I spoke with Kerry who said she was #2 on the

> list and told her there was another tansplant here this week so

> could put her up as #1. At least she is plannng to come to the

> reunion and I hope to get to go home on Tues. and come back over on

> TSat for the picnic. Well the meds must be making me sleeping when

> I am keyboarding so I will log off. You all take care.

> Love and Aloha,

> Jud y IPF 10/06 TX 8/22/07 Rejection treatments Sep 0 7 (outpatient)

> and rejection treament & lung collapse 11/07 and rejection Grade 2

> now. But am feeling stronger so pra ying that this treatment works.