Diet

[Guest guest]

Hi,

The best thing to do is walk, if you can. I have friends who have lost weight

and kept it off from walking every day. They've tried different diets and

excercise, and the walking is the best.

My one friend who started walking a couple years ago says she feels as strong as

an ox, and she never felt better in her life.

Diet

Hi all --

I hope everyone had a great Christmas and has a great New Year.

I was wondering if anyone has any comments on diets -- low-carb vs

low-fat? A few years ago I did the low-carb diet and lost 30 pounds

(and have kept it off!!). This was shortly before all my problems

with VEDS started to kick up so I'm a little leery about trying it

again -- coincidence???? I would like to lose about 10 more lbs. I

am exercising three times a week and, alas, have cut out " snack "

foods (of course, my favorite). So far, haven't lost an ounce!!

I am on two meds for blood pressure and my heart damage - a beta-

blocker and an ace-inhibitor. I really feel my metabolism is low -

heart rate is usually between 53-60. Sometimes I feel the only way

to lose is to stop eating all together - which I wouldn't do cause I

love to eat too much!!!!!!!

Any ideas anyone has would really help. Thanks so much.

Patti

To learn more about EDS, visit our website: http://www.ceda.ca

------------------------------------------------------------------------------

[Guest guest]

Patti,

I know how hard it can be to lose weight. I have battled this problem for

years. I have hypothyroidism, B-12 deficiency and have had a low

haemoglobin since my early teens. Last May I re-joined Weight Watchers and

have lost 46.6 pounds. I did Weight Watchers years ago and became a

lifetime member, then had another child and then, well let's just say life

sent me quite a few curves, so I am back at it again and truly believe that

it is a sound reasonable plan for weight loss. I find it easy to manage and

to adjust and fit my life and I don't feel deprived at all.

Beth

----- Original Message -----

>

> I was wondering if anyone has any comments on diets -- low-carb vs

> low-fat? A few years ago I did the low-carb diet and lost 30 pounds

> (and have kept it off!!). This was shortly before all my problems

> with VEDS started to kick up so I'm a little leery about trying it

> again -- coincidence???? I would like to lose about 10 more lbs. I

> am exercising three times a week and, alas, have cut out " snack "

> foods (of course, my favorite). So far, haven't lost an ounce!!

>

> I am on two meds for blood pressure and my heart damage - a beta-

> blocker and an ace-inhibitor. I really feel my metabolism is low -

> heart rate is usually between 53-60. Sometimes I feel the only way

> to lose is to stop eating all together - which I wouldn't do cause I

> love to eat too much!!!!!!!

>

> Any ideas anyone has would really help. Thanks so much.

[Guest guest]

Patti,

I know how hard it can be to lose weight. I have battled this problem for

years. I have hypothyroidism, B-12 deficiency and have had a low

haemoglobin since my early teens. Last May I re-joined Weight Watchers and

have lost 46.6 pounds. I did Weight Watchers years ago and became a

lifetime member, then had another child and then, well let's just say life

sent me quite a few curves, so I am back at it again and truly believe that

it is a sound reasonable plan for weight loss. I find it easy to manage and

to adjust and fit my life and I don't feel deprived at all.

Beth

----- Original Message -----

>

> I was wondering if anyone has any comments on diets -- low-carb vs

> low-fat? A few years ago I did the low-carb diet and lost 30 pounds

> (and have kept it off!!). This was shortly before all my problems

> with VEDS started to kick up so I'm a little leery about trying it

> again -- coincidence???? I would like to lose about 10 more lbs. I

> am exercising three times a week and, alas, have cut out " snack "

> foods (of course, my favorite). So far, haven't lost an ounce!!

>

> I am on two meds for blood pressure and my heart damage - a beta-

> blocker and an ace-inhibitor. I really feel my metabolism is low -

> heart rate is usually between 53-60. Sometimes I feel the only way

> to lose is to stop eating all together - which I wouldn't do cause I

> love to eat too much!!!!!!!

>

> Any ideas anyone has would really help. Thanks so much.

[Guest guest]

Patti,

> I was wondering if anyone has any comments on diets -- low-carb vs

> low-fat? A few years ago I did the low-carb diet and lost 30 pounds

The best thing I can tell you about dieting is not to do a diet. Instead,

work on portion control and healthy choices. For example, you can start by

reading the labels at the grocery store. Instead of sour cream, buy low

calorie or low fat sour cream. Check the labels to see which has fewer

calories and fat.

Next work on reducing the amount of food you eat. If you only eat one big

meal a day, try eating smaller meals throughout the day. Also drink LOTS of

water. Water will help keep you feeling full. It also keeps you well

hydrated and your system flushed out.

Whatever you do, don't go into the process thinking you are going to deny

yourself everything you enjoy just for the weight loss. This is the best

way to guarantee failure. Allow yourself the things you enjoy, just do it

in moderation. For example, if you have a latte every day, cut back to

every other day or once a week, but don't eliminate it completely. When you

do have your weekly latte, savor it all the more. If it's chocolate you

love, have one small piece per day to indulge yourself rather than eating a

whole candy bar. In this way you can still enjoy the foods you love while

still keeping your weight loss goals.

I also highly recommend the arthritis-dieters list on yahoogroups.

http://health.groups.yahoo.com/group/arthritis-dieters/ They are full of

ideas for losing weight with EDS. They are also really supportive and

helpful.

-Barb

[Guest guest]

Patti,

> I was wondering if anyone has any comments on diets -- low-carb vs

> low-fat? A few years ago I did the low-carb diet and lost 30 pounds

The best thing I can tell you about dieting is not to do a diet. Instead,

work on portion control and healthy choices. For example, you can start by

reading the labels at the grocery store. Instead of sour cream, buy low

calorie or low fat sour cream. Check the labels to see which has fewer

calories and fat.

Next work on reducing the amount of food you eat. If you only eat one big

meal a day, try eating smaller meals throughout the day. Also drink LOTS of

water. Water will help keep you feeling full. It also keeps you well

hydrated and your system flushed out.

Whatever you do, don't go into the process thinking you are going to deny

yourself everything you enjoy just for the weight loss. This is the best

way to guarantee failure. Allow yourself the things you enjoy, just do it

in moderation. For example, if you have a latte every day, cut back to

every other day or once a week, but don't eliminate it completely. When you

do have your weekly latte, savor it all the more. If it's chocolate you

love, have one small piece per day to indulge yourself rather than eating a

whole candy bar. In this way you can still enjoy the foods you love while

still keeping your weight loss goals.

I also highly recommend the arthritis-dieters list on yahoogroups.

http://health.groups.yahoo.com/group/arthritis-dieters/ They are full of

ideas for losing weight with EDS. They are also really supportive and

helpful.

-Barb

[Guest guest]

Patti,

> I was wondering if anyone has any comments on diets -- low-carb vs

> low-fat? A few years ago I did the low-carb diet and lost 30 pounds

The best thing I can tell you about dieting is not to do a diet. Instead,

work on portion control and healthy choices. For example, you can start by

reading the labels at the grocery store. Instead of sour cream, buy low

calorie or low fat sour cream. Check the labels to see which has fewer

calories and fat.

Next work on reducing the amount of food you eat. If you only eat one big

meal a day, try eating smaller meals throughout the day. Also drink LOTS of

water. Water will help keep you feeling full. It also keeps you well

hydrated and your system flushed out.

Whatever you do, don't go into the process thinking you are going to deny

yourself everything you enjoy just for the weight loss. This is the best

way to guarantee failure. Allow yourself the things you enjoy, just do it

in moderation. For example, if you have a latte every day, cut back to

every other day or once a week, but don't eliminate it completely. When you

do have your weekly latte, savor it all the more. If it's chocolate you

love, have one small piece per day to indulge yourself rather than eating a

whole candy bar. In this way you can still enjoy the foods you love while

still keeping your weight loss goals.

I also highly recommend the arthritis-dieters list on yahoogroups.

http://health.groups.yahoo.com/group/arthritis-dieters/ They are full of

ideas for losing weight with EDS. They are also really supportive and

helpful.

-Barb

[Guest guest]

I was wondering if anyone has any comments on diets

Actually, I have several, starting with " most of them don't work. "

A really good book on the subject is " Body for Life " by Bill

. Most of you probably haven't read it, but I suspect many

of you have at least seen it in book stores because it was on the

top ten list for either two or three years straight a few years ago.

And before any one thinks that this is just another " get rich quick "

type book by another fad author, I would like to mention that he has

personally not made one dime off of the book. Every cent he has

received in royalties has been donated to the " Make a Wish

Foundation " for kids.

On page 33 he says " What we have really got is a junk heap of false

conclusions, endless contradictions, and half-baked exercise and

nutrition theories that are creating so much uncertainty and

confusion, most people don't know which way to turn. "

The biggest single problem with any diet is the mind-set of what you

are trying to achieve. What most people are trying to " achieve " is a

changed body image. What they say instead is that they want

to " lose weight. " These goals are not necessarily the same thing.

In the short-term, almost any of the " diets " will get " results. "

But in the long-term, virtually all of them fail. And they all fail

for the same reason. Long-term change in body image/weight loss

requires long-term change in life style. There is simply no way

around it.

In the short-term, probably the worst single thing you can do is get

on that basic bathroom scale every morning because all it does is

measure " weight. " It does not measure meaningful change. What

you " weigh " is NOT the issue. The " issue " is body composition -

the percentage of fat to lean body mass. Directly linked to this are

metabolic rates and the relative weights of fat versus lean tissue.

There are some excellent digital scales that measure body fat

composition along with weight. If you are serious about making " a

change " it would be a good investment to get one.

Per " ...our genetic programming gives our bodies the

ability to control the production of enzymes, which in turn, control

every aspect of our metabolism. Due to this fact, your body

will 'fight back' when you severely reduce food intake - it

decreases the rate at which it burns fat. " This lowers your

metabolic rates. He then adds " People who force themselves to stick

with a crash diet will lose body weight, but it's a very unfavorable

type of weight loss. Typically, half of the pounds lost come from

muscle tissue that is sacrificed. It's very important to remember

muscle is your body's metabolic furnace. Muscle uses energy, even

while you're sleeping. Fat pretty much just sits there. "

But the kicker is that " when you go off the diet...you will gain

back the fat you lost, and more. That's because you've turned your

body into a less efficient fat burning machine by losing muscle. "

To put this into perspective, assume a weight of 200 pounds and a

body fat percentage of 25. The split would be 150 pounds of muscle

and 50 pounds of fat. If you drop 20 pounds (with half being muscle

and half being fat) you end up with 140 pounds of muscle and 40

pounds of fat. But, you then go off the diet and put the 20 pounds

back on. The weight doesn't go back on at the same ratio - you

don't gain at a 50-50 rate because your metabolic rate isn't the

same anymore. You might gain, say 8 pounds of muscle but 12 pounds

of fat. Now the ratio (for the same 200 pound starting point) is

148 pounds of muscle versus 52 pounds of fat. You end up at 26%

instead of the starting 25%. More imporantly, your basal metabolic

rate has also changed in the process. And this is the typical cycle

for most people.

Over a period of years you just end up getting farther behind.

The basic premise of his program is four things: Proper nutrition,

aeorbic excercise, resistance training, and supplementation. I can

personally attest to the effectiveness of this program and the

validity of the above statements because I went on it myself five

years ago. I started at 217 pounds and 27.8% body fat (157 pounds

of muscle versus 60 pounds of fat). Had I been stuck with just the

basic bathroom scale, I would have become very frustrated very

fast. After three weeks of concentrated effort, I still weighed 217

pounds. But - my body fat had dropped to 24%. For every pound of

fat I lost, I gained one pound in lean tissue. My body mass

composition had changed to 165 pounds of lean versus 52 pounds of

fat. I still weighed the same, but there was a major shift in

composition and metabolic rates. After six months, I was at 173

pounds and 13% body fat. I ended up losing 6 pounds of muscle, but

38 pounds of fat. I've never been in better condition in my life

and this was at age 55.

Unfortunately, I moved three years ago. My life style reverted back

to what it had been - very sedentary. When I retired 8 months ago,

I was right back where I was five years, to the exact pound and

percentage. Since then, I have dropped 20 pounds and 5 percentage

points. The only " change " is that I have become " more active. " I

haven't been tied to a desk for 8 hours a day and just the extra

walking around made the difference. In other words, increased

activity or movement which in turn, helped improve my basal

metabolic rate, thereby causing my body to become more efficient in

burning fat.

One other comment about composition versus weight. Let's start with

that same 217 pounds at 27.8%. Then let's compare it to a 20 pound

loss versus a 20 pound gain in " weight " over two or three crash and

burn cyles versus doing it right. Care to guess what the health and

appearance differences would be at 197 pounds " weight " at 30% body

fat versus 237 pounds at 15%? The starting weight would be a 157/60

split. The crash and burn " loss " would be 138/59. But the 20

pound " gain " would be 201/36. At what " weight " do you think I would

be healthiest and have the best appearance? Like I implied up

above - define what your " goal " really is.

I have been following the posts and am well aware that the issue of

excercise is a complicated one for those with EDS. I am equally

aware that the, in some cases extreme, doses and quantities of meds

have to be considered where the topic of supplementation is involved.

Even so, the fact remains that if you are serious about changing

your body image, you need to make some basic life style changes.

And this does not mean crash or starvation diets - anything but

that.

Nutrition - eat healthy and often, but in smaller amounts. You gain

nothing from depriving your body of the balanced nutrients it needs,

whether that is carbs, protiens or necessary fats. The recommended

eating plan is six smaller meals a day instead of three big ones (or

even worse in some cases - two or even one). You could very easily

end up eating more in a day's time than before. But by doing it in

smaller quanities more often during the day, the body has an

opportunity to process it without turning the excess into fat.

Exercise - this does not have to mean three one-hour trips to the

local gym a week, jogging on the treadmill and pumping iron like the

newly elected Governor of California. Let's face it - jogging with

EDS knees isn't all that good a thing. And wonky shoulders and free

weights don't mix well together at all. The issue is activity and

movement in some form that elevates the aeorbic rate to help burn

fat and provides resistance to increase lean muscle mass, which in

combination improve the basal metabolic rate.

I am not even going to discuss the issue of supplementation (things

like creatine) other than to say they are extremely effective if

your goal is to REALLY improve your body image. They have a place

and purpose, but not necessarily with many of the conditions I have

read about on the list. For basic hypermobility, I would see no

problem. But for more advanced situations or more serious varieties

I could not recommend them without prior consultation with the

primary health care provider - as in the one prescribing the meds.

[Guest guest]

I was wondering if anyone has any comments on diets

Actually, I have several, starting with " most of them don't work. "

A really good book on the subject is " Body for Life " by Bill

. Most of you probably haven't read it, but I suspect many

of you have at least seen it in book stores because it was on the

top ten list for either two or three years straight a few years ago.

And before any one thinks that this is just another " get rich quick "

type book by another fad author, I would like to mention that he has

personally not made one dime off of the book. Every cent he has

received in royalties has been donated to the " Make a Wish

Foundation " for kids.

On page 33 he says " What we have really got is a junk heap of false

conclusions, endless contradictions, and half-baked exercise and

nutrition theories that are creating so much uncertainty and

confusion, most people don't know which way to turn. "

The biggest single problem with any diet is the mind-set of what you

are trying to achieve. What most people are trying to " achieve " is a

changed body image. What they say instead is that they want

to " lose weight. " These goals are not necessarily the same thing.

In the short-term, almost any of the " diets " will get " results. "

But in the long-term, virtually all of them fail. And they all fail

for the same reason. Long-term change in body image/weight loss

requires long-term change in life style. There is simply no way

around it.

In the short-term, probably the worst single thing you can do is get

on that basic bathroom scale every morning because all it does is

measure " weight. " It does not measure meaningful change. What

you " weigh " is NOT the issue. The " issue " is body composition -

the percentage of fat to lean body mass. Directly linked to this are

metabolic rates and the relative weights of fat versus lean tissue.

There are some excellent digital scales that measure body fat

composition along with weight. If you are serious about making " a

change " it would be a good investment to get one.

Per " ...our genetic programming gives our bodies the

ability to control the production of enzymes, which in turn, control

every aspect of our metabolism. Due to this fact, your body

will 'fight back' when you severely reduce food intake - it

decreases the rate at which it burns fat. " This lowers your

metabolic rates. He then adds " People who force themselves to stick

with a crash diet will lose body weight, but it's a very unfavorable

type of weight loss. Typically, half of the pounds lost come from

muscle tissue that is sacrificed. It's very important to remember

muscle is your body's metabolic furnace. Muscle uses energy, even

while you're sleeping. Fat pretty much just sits there. "

But the kicker is that " when you go off the diet...you will gain

back the fat you lost, and more. That's because you've turned your

body into a less efficient fat burning machine by losing muscle. "

To put this into perspective, assume a weight of 200 pounds and a

body fat percentage of 25. The split would be 150 pounds of muscle

and 50 pounds of fat. If you drop 20 pounds (with half being muscle

and half being fat) you end up with 140 pounds of muscle and 40

pounds of fat. But, you then go off the diet and put the 20 pounds

back on. The weight doesn't go back on at the same ratio - you

don't gain at a 50-50 rate because your metabolic rate isn't the

same anymore. You might gain, say 8 pounds of muscle but 12 pounds

of fat. Now the ratio (for the same 200 pound starting point) is

148 pounds of muscle versus 52 pounds of fat. You end up at 26%

instead of the starting 25%. More imporantly, your basal metabolic

rate has also changed in the process. And this is the typical cycle

for most people.

Over a period of years you just end up getting farther behind.

The basic premise of his program is four things: Proper nutrition,

aeorbic excercise, resistance training, and supplementation. I can

personally attest to the effectiveness of this program and the

validity of the above statements because I went on it myself five

years ago. I started at 217 pounds and 27.8% body fat (157 pounds

of muscle versus 60 pounds of fat). Had I been stuck with just the

basic bathroom scale, I would have become very frustrated very

fast. After three weeks of concentrated effort, I still weighed 217

pounds. But - my body fat had dropped to 24%. For every pound of

fat I lost, I gained one pound in lean tissue. My body mass

composition had changed to 165 pounds of lean versus 52 pounds of

fat. I still weighed the same, but there was a major shift in

composition and metabolic rates. After six months, I was at 173

pounds and 13% body fat. I ended up losing 6 pounds of muscle, but

38 pounds of fat. I've never been in better condition in my life

and this was at age 55.

Unfortunately, I moved three years ago. My life style reverted back

to what it had been - very sedentary. When I retired 8 months ago,

I was right back where I was five years, to the exact pound and

percentage. Since then, I have dropped 20 pounds and 5 percentage

points. The only " change " is that I have become " more active. " I

haven't been tied to a desk for 8 hours a day and just the extra

walking around made the difference. In other words, increased

activity or movement which in turn, helped improve my basal

metabolic rate, thereby causing my body to become more efficient in

burning fat.

One other comment about composition versus weight. Let's start with

that same 217 pounds at 27.8%. Then let's compare it to a 20 pound

loss versus a 20 pound gain in " weight " over two or three crash and

burn cyles versus doing it right. Care to guess what the health and

appearance differences would be at 197 pounds " weight " at 30% body

fat versus 237 pounds at 15%? The starting weight would be a 157/60

split. The crash and burn " loss " would be 138/59. But the 20

pound " gain " would be 201/36. At what " weight " do you think I would

be healthiest and have the best appearance? Like I implied up

above - define what your " goal " really is.

I have been following the posts and am well aware that the issue of

excercise is a complicated one for those with EDS. I am equally

aware that the, in some cases extreme, doses and quantities of meds

have to be considered where the topic of supplementation is involved.

Even so, the fact remains that if you are serious about changing

your body image, you need to make some basic life style changes.

And this does not mean crash or starvation diets - anything but

that.

Nutrition - eat healthy and often, but in smaller amounts. You gain

nothing from depriving your body of the balanced nutrients it needs,

whether that is carbs, protiens or necessary fats. The recommended

eating plan is six smaller meals a day instead of three big ones (or

even worse in some cases - two or even one). You could very easily

end up eating more in a day's time than before. But by doing it in

smaller quanities more often during the day, the body has an

opportunity to process it without turning the excess into fat.

Exercise - this does not have to mean three one-hour trips to the

local gym a week, jogging on the treadmill and pumping iron like the

newly elected Governor of California. Let's face it - jogging with

EDS knees isn't all that good a thing. And wonky shoulders and free

weights don't mix well together at all. The issue is activity and

movement in some form that elevates the aeorbic rate to help burn

fat and provides resistance to increase lean muscle mass, which in

combination improve the basal metabolic rate.

I am not even going to discuss the issue of supplementation (things

like creatine) other than to say they are extremely effective if

your goal is to REALLY improve your body image. They have a place

and purpose, but not necessarily with many of the conditions I have

read about on the list. For basic hypermobility, I would see no

problem. But for more advanced situations or more serious varieties

I could not recommend them without prior consultation with the

primary health care provider - as in the one prescribing the meds.

[Guest guest]

I am on a HIGH protein diet as this helps healing (or so my GP says)

I am to eat as much lean red meat as I can, as well as other protein,

but I was told that the red meat was best.

I am NOT losing weight (although ( sure could do with it) but I am to

much of a fussy snacking type eater.

Sharon :-<

> Hi all --

>

> I hope everyone had a great Christmas and has a great New Year.

>

> I was wondering if anyone has any comments on diets -- low-carb vs

> low-fat? A few years ago I did the low-carb diet and lost 30

pounds

> (and have kept it off!!). This was shortly before all my problems

> with VEDS started to kick up so I'm a little leery about trying it

> again -- coincidence???? I would like to lose about 10 more lbs.

I

> am exercising three times a week and, alas, have cut out " snack "

> foods (of course, my favorite). So far, haven't lost an ounce!!

>

> I am on two meds for blood pressure and my heart damage - a beta-

> blocker and an ace-inhibitor. I really feel my metabolism is low -

> heart rate is usually between 53-60. Sometimes I feel the only way

> to lose is to stop eating all together - which I wouldn't do cause

I

> love to eat too much!!!!!!!

>

> Any ideas anyone has would really help. Thanks so much.

>

> Patti

[Guest guest]

I am on a HIGH protein diet as this helps healing (or so my GP says)

I am to eat as much lean red meat as I can, as well as other protein,

but I was told that the red meat was best.

I am NOT losing weight (although ( sure could do with it) but I am to

much of a fussy snacking type eater.

Sharon :-<

> Hi all --

>

> I hope everyone had a great Christmas and has a great New Year.

>

> I was wondering if anyone has any comments on diets -- low-carb vs

> low-fat? A few years ago I did the low-carb diet and lost 30

pounds

> (and have kept it off!!). This was shortly before all my problems

> with VEDS started to kick up so I'm a little leery about trying it

> again -- coincidence???? I would like to lose about 10 more lbs.

I

> am exercising three times a week and, alas, have cut out " snack "

> foods (of course, my favorite). So far, haven't lost an ounce!!

>

> I am on two meds for blood pressure and my heart damage - a beta-

> blocker and an ace-inhibitor. I really feel my metabolism is low -

> heart rate is usually between 53-60. Sometimes I feel the only way

> to lose is to stop eating all together - which I wouldn't do cause

I

> love to eat too much!!!!!!!

>

> Any ideas anyone has would really help. Thanks so much.

>

> Patti

[Guest guest]

I am on a HIGH protein diet as this helps healing (or so my GP says)

I am to eat as much lean red meat as I can, as well as other protein,

but I was told that the red meat was best.

I am NOT losing weight (although ( sure could do with it) but I am to

much of a fussy snacking type eater.

Sharon :-<

> Hi all --

>

> I hope everyone had a great Christmas and has a great New Year.

>

> I was wondering if anyone has any comments on diets -- low-carb vs

> low-fat? A few years ago I did the low-carb diet and lost 30

pounds

> (and have kept it off!!). This was shortly before all my problems

> with VEDS started to kick up so I'm a little leery about trying it

> again -- coincidence???? I would like to lose about 10 more lbs.

I

> am exercising three times a week and, alas, have cut out " snack "

> foods (of course, my favorite). So far, haven't lost an ounce!!

>

> I am on two meds for blood pressure and my heart damage - a beta-

> blocker and an ace-inhibitor. I really feel my metabolism is low -

> heart rate is usually between 53-60. Sometimes I feel the only way

> to lose is to stop eating all together - which I wouldn't do cause

I

> love to eat too much!!!!!!!

>

> Any ideas anyone has would really help. Thanks so much.

>

> Patti

[Guest guest]

With my knee problems I cannot walk much :-<, and with my shoulder

etc I cannot swim etc, so WHAT exercise can I do ?????

Sharon

> Hi,

> The best thing to do is walk, if you can. I have friends who have

lost weight and kept it off from walking every day. They've tried

different diets and excercise, and the walking is the best.

> My one friend who started walking a couple years ago says she feels

as strong as an ox, and she never felt better in her life.

> Diet

>

>

> Hi all --

>

> I hope everyone had a great Christmas and has a great New Year.

>

> I was wondering if anyone has any comments on diets -- low-carb

vs

> low-fat? A few years ago I did the low-carb diet and lost 30

pounds

> (and have kept it off!!). This was shortly before all my

problems

> with VEDS started to kick up so I'm a little leery about trying

it

> again -- coincidence???? I would like to lose about 10 more

lbs. I

> am exercising three times a week and, alas, have cut out " snack "

> foods (of course, my favorite). So far, haven't lost an ounce!!

>

> I am on two meds for blood pressure and my heart damage - a beta-

> blocker and an ace-inhibitor. I really feel my metabolism is

low -

> heart rate is usually between 53-60. Sometimes I feel the only

way

> to lose is to stop eating all together - which I wouldn't do

cause I

> love to eat too much!!!!!!!

>

> Any ideas anyone has would really help. Thanks so much.

>

> Patti

>

>

>

> To learn more about EDS, visit our website: http://www.ceda.ca

>

>

>

>

> --------------------------------------------------------------------

----------

>

[Guest guest]

With my knee problems I cannot walk much :-<, and with my shoulder

etc I cannot swim etc, so WHAT exercise can I do ?????

Sharon

> Hi,

> The best thing to do is walk, if you can. I have friends who have

lost weight and kept it off from walking every day. They've tried

different diets and excercise, and the walking is the best.

> My one friend who started walking a couple years ago says she feels

as strong as an ox, and she never felt better in her life.

> Diet

>

>

> Hi all --

>

> I hope everyone had a great Christmas and has a great New Year.

>

> I was wondering if anyone has any comments on diets -- low-carb

vs

> low-fat? A few years ago I did the low-carb diet and lost 30

pounds

> (and have kept it off!!). This was shortly before all my

problems

> with VEDS started to kick up so I'm a little leery about trying

it

> again -- coincidence???? I would like to lose about 10 more

lbs. I

> am exercising three times a week and, alas, have cut out " snack "

> foods (of course, my favorite). So far, haven't lost an ounce!!

>

> I am on two meds for blood pressure and my heart damage - a beta-

> blocker and an ace-inhibitor. I really feel my metabolism is

low -

> heart rate is usually between 53-60. Sometimes I feel the only

way

> to lose is to stop eating all together - which I wouldn't do

cause I

> love to eat too much!!!!!!!

>

> Any ideas anyone has would really help. Thanks so much.

>

> Patti

>

>

>

> To learn more about EDS, visit our website: http://www.ceda.ca

>

>

>

>

> --------------------------------------------------------------------

----------

>

[Guest guest]

With my knee problems I cannot walk much :-<, and with my shoulder

etc I cannot swim etc, so WHAT exercise can I do ?????

Sharon

> Hi,

> The best thing to do is walk, if you can. I have friends who have

lost weight and kept it off from walking every day. They've tried

different diets and excercise, and the walking is the best.

> My one friend who started walking a couple years ago says she feels

as strong as an ox, and she never felt better in her life.

> Diet

>

>

> Hi all --

>

> I hope everyone had a great Christmas and has a great New Year.

>

> I was wondering if anyone has any comments on diets -- low-carb

vs

> low-fat? A few years ago I did the low-carb diet and lost 30

pounds

> (and have kept it off!!). This was shortly before all my

problems

> with VEDS started to kick up so I'm a little leery about trying

it

> again -- coincidence???? I would like to lose about 10 more

lbs. I

> am exercising three times a week and, alas, have cut out " snack "

> foods (of course, my favorite). So far, haven't lost an ounce!!

>

> I am on two meds for blood pressure and my heart damage - a beta-

> blocker and an ace-inhibitor. I really feel my metabolism is

low -

> heart rate is usually between 53-60. Sometimes I feel the only

way

> to lose is to stop eating all together - which I wouldn't do

cause I

> love to eat too much!!!!!!!

>

> Any ideas anyone has would really help. Thanks so much.

>

> Patti

>

>

>

> To learn more about EDS, visit our website: http://www.ceda.ca

>

>

>

>

> --------------------------------------------------------------------

----------

>

[Guest guest]

I'm with you.

Everyone tells me to excercise to stregnthen my muscles, to help hold my joints

in place. But, I can't do much.

My pt is not having me do resistance excercise. Tiny movements - sometimes only

an inch, if that's all I can do.

You basically just tighten up your muscles. Sometimes I use rubber tubing,

attached to something, and gently do the excercises. I mean tiny movements, and

if there is any pain at all, I stop.

It is sort of like doing pilates, but with smaller movements.

Diet

>

>

> Hi all --

>

> I hope everyone had a great Christmas and has a great New Year.

>

> I was wondering if anyone has any comments on diets -- low-carb

vs

> low-fat? A few years ago I did the low-carb diet and lost 30

pounds

> (and have kept it off!!). This was shortly before all my

problems

> with VEDS started to kick up so I'm a little leery about trying

it

> again -- coincidence???? I would like to lose about 10 more

lbs. I

> am exercising three times a week and, alas, have cut out " snack "

> foods (of course, my favorite). So far, haven't lost an ounce!!

>

> I am on two meds for blood pressure and my heart damage - a beta-

> blocker and an ace-inhibitor. I really feel my metabolism is

low -

> heart rate is usually between 53-60. Sometimes I feel the only

way

> to lose is to stop eating all together - which I wouldn't do

cause I

> love to eat too much!!!!!!!

>

> Any ideas anyone has would really help. Thanks so much.

>

> Patti

>

>

>

> To learn more about EDS, visit our website: http://www.ceda.ca

>

>

>

>

> --------------------------------------------------------------------

----------

>

[Guest guest]

I'm with you.

Everyone tells me to excercise to stregnthen my muscles, to help hold my joints

in place. But, I can't do much.

My pt is not having me do resistance excercise. Tiny movements - sometimes only

an inch, if that's all I can do.

You basically just tighten up your muscles. Sometimes I use rubber tubing,

attached to something, and gently do the excercises. I mean tiny movements, and

if there is any pain at all, I stop.

It is sort of like doing pilates, but with smaller movements.

Diet

>

>

> Hi all --

>

> I hope everyone had a great Christmas and has a great New Year.

>

> I was wondering if anyone has any comments on diets -- low-carb

vs

> low-fat? A few years ago I did the low-carb diet and lost 30

pounds

> (and have kept it off!!). This was shortly before all my

problems

> with VEDS started to kick up so I'm a little leery about trying

it

> again -- coincidence???? I would like to lose about 10 more

lbs. I

> am exercising three times a week and, alas, have cut out " snack "

> foods (of course, my favorite). So far, haven't lost an ounce!!

>

> I am on two meds for blood pressure and my heart damage - a beta-

> blocker and an ace-inhibitor. I really feel my metabolism is

low -

> heart rate is usually between 53-60. Sometimes I feel the only

way

> to lose is to stop eating all together - which I wouldn't do

cause I

> love to eat too much!!!!!!!

>

> Any ideas anyone has would really help. Thanks so much.

>

> Patti

>

>

>

> To learn more about EDS, visit our website: http://www.ceda.ca

>

>

>

>

> --------------------------------------------------------------------

----------

>

[Guest guest]

You basically just tighten up your muscles. Sometimes I use rubber

tubing, attached to something, and gently do the excercises.

Good comments on exercise.

What you are describing is called " isometric exercise. " You don't

even need to move as little as an inch like you said. As an

example, you could put one hand over the back of your other hand and

then just push into the palm. You aren't moving either hand or arm,

but the arm that is doing the pushing is getting a resistence - it

is enough to " fire the muscle " and make it contract.

Granted, you are not getting the same benefit that you would if you

were able to do the movement through the full range of motion. Nor

are you getting the benefit that you would if you were able to do

both the active and passive actions of the movement. Using weight

lifting as an example, you have the resistence of raising the weight

to full extension. But you also have a different resistence when

you lower the weight. You need to do both actions to fully exercise

all of the fibers of a muscle. (Active and Passive aren't the

correct technical terms but I don't remember them off the top of my

head and I don't feel like looking them up at the moment. You get

the idea).

But the point is, you ARE getting a very positive benefit from just

the simple action of making the muscle fire by contracting it. You

are going to do two things with this - you are going to increase

the " tone of the muscle " - firm it up - and you are going to gain

strength. You won't build muscle mass, but that isn't your goal in

the first place.

On this last point, a general rule of thumb is that " higher weight

with fewer repitions builds mass; lower weight with more repitions

increases muscle tone. " The reason that the one builds mass is that

you are deliberately causing minor tears in the muscle fibers. As

these tears or micro-injuries heal, they build muscle tissue.

That's not your goal.

As to the effectiveness of isometrics, I don't think any of us have

ever seen a WILD animal jog on a treadmill, pump iron, or use any of

those wierd looking machines pushed by Tony Little or Body by Jake.

Yet, they are all supremely fit. Other than running to catch their

dinner or running to avoid being dinner, the only exercises they do

are isometric/stretching activities.

[Guest guest]

You basically just tighten up your muscles. Sometimes I use rubber

tubing, attached to something, and gently do the excercises.

Good comments on exercise.

What you are describing is called " isometric exercise. " You don't

even need to move as little as an inch like you said. As an

example, you could put one hand over the back of your other hand and

then just push into the palm. You aren't moving either hand or arm,

but the arm that is doing the pushing is getting a resistence - it

is enough to " fire the muscle " and make it contract.

Granted, you are not getting the same benefit that you would if you

were able to do the movement through the full range of motion. Nor

are you getting the benefit that you would if you were able to do

both the active and passive actions of the movement. Using weight

lifting as an example, you have the resistence of raising the weight

to full extension. But you also have a different resistence when

you lower the weight. You need to do both actions to fully exercise

all of the fibers of a muscle. (Active and Passive aren't the

correct technical terms but I don't remember them off the top of my

head and I don't feel like looking them up at the moment. You get

the idea).

But the point is, you ARE getting a very positive benefit from just

the simple action of making the muscle fire by contracting it. You

are going to do two things with this - you are going to increase

the " tone of the muscle " - firm it up - and you are going to gain

strength. You won't build muscle mass, but that isn't your goal in

the first place.

On this last point, a general rule of thumb is that " higher weight

with fewer repitions builds mass; lower weight with more repitions

increases muscle tone. " The reason that the one builds mass is that

you are deliberately causing minor tears in the muscle fibers. As

these tears or micro-injuries heal, they build muscle tissue.

That's not your goal.

As to the effectiveness of isometrics, I don't think any of us have

ever seen a WILD animal jog on a treadmill, pump iron, or use any of

those wierd looking machines pushed by Tony Little or Body by Jake.

Yet, they are all supremely fit. Other than running to catch their

dinner or running to avoid being dinner, the only exercises they do

are isometric/stretching activities.

[Guest guest]

You basically just tighten up your muscles. Sometimes I use rubber

tubing, attached to something, and gently do the excercises.

Good comments on exercise.

What you are describing is called " isometric exercise. " You don't

even need to move as little as an inch like you said. As an

example, you could put one hand over the back of your other hand and

then just push into the palm. You aren't moving either hand or arm,

but the arm that is doing the pushing is getting a resistence - it

is enough to " fire the muscle " and make it contract.

Granted, you are not getting the same benefit that you would if you

were able to do the movement through the full range of motion. Nor

are you getting the benefit that you would if you were able to do

both the active and passive actions of the movement. Using weight

lifting as an example, you have the resistence of raising the weight

to full extension. But you also have a different resistence when

you lower the weight. You need to do both actions to fully exercise

all of the fibers of a muscle. (Active and Passive aren't the

correct technical terms but I don't remember them off the top of my

head and I don't feel like looking them up at the moment. You get

the idea).

But the point is, you ARE getting a very positive benefit from just

the simple action of making the muscle fire by contracting it. You

are going to do two things with this - you are going to increase

the " tone of the muscle " - firm it up - and you are going to gain

strength. You won't build muscle mass, but that isn't your goal in

the first place.

On this last point, a general rule of thumb is that " higher weight

with fewer repitions builds mass; lower weight with more repitions

increases muscle tone. " The reason that the one builds mass is that

you are deliberately causing minor tears in the muscle fibers. As

these tears or micro-injuries heal, they build muscle tissue.

That's not your goal.

As to the effectiveness of isometrics, I don't think any of us have

ever seen a WILD animal jog on a treadmill, pump iron, or use any of

those wierd looking machines pushed by Tony Little or Body by Jake.

Yet, they are all supremely fit. Other than running to catch their

dinner or running to avoid being dinner, the only exercises they do

are isometric/stretching activities.

[Guest guest]

Hey everyone. I am wondering if any of you all have tried a low-fat

diet to help slow the progression of PSC? I have been wondering if

this would help at all since bile is what helps break down fat -

perhaps if you consume less fat you would produce less bile which would

lead to less scarring?? Just something I've been wondering - anyone

have any knowledge about this?

Also, has anyone tried using the new yogurt that's out now " Dannon

Activia " as a treatment for UC or Crohn's? It's supposed to help the

digestive system so I was also just curious about that. Let me know if

you have any insight.

Sindy H.

Illinois

PSC 2007

[Guest guest]

I find that my itching gets worse when I'm not eating right...too much

fat equals much more itching. Plus, when I overdo the fat, I get

nauseous. So, while I don't think diet can slow the progression of

PSC, I do think that limiting fat intake will reduce some of the symptoms.

I'm also a big believer in probiotics...Dannon Activia is great for

that, along with Stonyfield Farms yogurt. You need to find a brand

that has all of the different pre- and pro-biotic cultures. Pushing

that stuff took my Crohns down to almost nothing...almost no flareups.

And, on those times when I do feel a flareup coming on, taking an

extra serving or two of yogurt knocks the problem down. It also

tastes much better than pills.

Tom

PSC 1999

Crohns 2005

>

> Hey everyone. I am wondering if any of you all have tried a low-fat

> diet to help slow the progression of PSC? I have been wondering if

> this would help at all since bile is what helps break down fat -

> perhaps if you consume less fat you would produce less bile which would

> lead to less scarring?? Just something I've been wondering - anyone

> have any knowledge about this?

>

> Also, has anyone tried using the new yogurt that's out now " Dannon

> Activia " as a treatment for UC or Crohn's? It's supposed to help the

> digestive system so I was also just curious about that. Let me know if

> you have any insight.

>

> Sindy H.

> Illinois

> PSC 2007

>

[Guest guest]

You will probably think me insane…but my daughter has PSC and

ulcerative colitis …she was experiencing pain, and many ulcerative

colitis symptoms and really bad liver level tests… was getting a

“cholangitis” attack probably every three months…fever, pain,

misery for an eight year old…

We put her on the Hallelujah Acres diet and started

her on a supplement called Juice

Plus. Her quality of life has improved soooo much that the last visit to

her gastro doc, had him baffled…he kept asking the same questions and

refused to believe it was the diet that helped…but…

I believe it was. Our whole family went on the diet and have all

experienced a better quality of life…I was having serious health issues

as well.

Anyway…if you want to talk with me about it all feel free to

email me anytime ) kjb4me@...

Beth Hunt

From:

[mailto: ] On Behalf Of sindyjay

Sent: Wednesday, March 21, 2007

8:58 AM

To:

Subject: Diet

Hey everyone. I am wondering if any of you all have

tried a low-fat

diet to help slow the progression of PSC? I have been wondering if

this would help at all since bile is what helps break down fat -

perhaps if you consume less fat you would produce less bile which would

lead to less scarring?? Just something I've been wondering - anyone

have any knowledge about this?

Also, has anyone tried using the new yogurt that's out now " Dannon

Activia " as a treatment for UC or Crohn's? It's supposed to help the

digestive system so I was also just curious about that. Let me know if

you have any insight.

Sindy H.

Illinois

PSC 2007