Strictures after Transplant

[Guest guest]

Hello everyone! I'm back! Hope all is doing well or as well as can be

expected with PSC. I have been doing great since my transplant in

12/25/2004 but last Monday I went to have my monthly labs done and the

Alk. Phos was up (still in the normal range but way up from where it

has been) and my GGT was in the high range. Talked with my cordnator

and she said that I might have a stricture. How common is it for

people, after transplant, to get strictures?

Nikki in NC

Transplanted 12/25/2004 (best Christmas present I ever received)

[Guest guest]

My son's alk phos popped up suddenly after 18 months of perfect. The dr said that stricture is the #1 cause but there were other possibilites that were not a biggy. They repeated his teste to week in a row and the # was back to normal. Martiravenbird28904 wrote: Hello everyone! I'm back! Hope all is doing well or as well as can be expected with PSC. I have been doing great since my transplant in 12/25/2004 but last Monday I went to have my monthly labs done and the Alk.

Phos was up (still in the normal range but way up from where it has been) and my GGT was in the high range. Talked with my cordnator and she said that I might have a stricture. How common is it for people, after transplant, to get strictures?Nikki in NCTransplanted 12/25/2004 (best Christmas present I ever received)

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[Guest guest]

Hi Nikki in N C,

I was tx on Aug 2,2002 and in 2005 I got sick and my blood test showed positive for gram negative. Seems that my bile duct/ intestine tie in narrowed down and gave me anasty blood infection called klebsiella (have not used it in a while, maybe mispelled), because the bile backed up into the blood stream. I ended up with a stent and a drain tube in my tummy for a couple of months, but everything is fine now. Better than fine, great. Probably not your problem, but all knowledge may be useful. Hope all turns out fine. Tim L

--

[Guest guest]

My strictures in all three of my transplanted ducts (living donor

receipient here) appeared just six weeks after transplant. It took a

while for them to nail down the cause, then they put in stents. The

external stents stayed in for six months. At the end of that time, my

lab values were much improved, so we removed them. The bile flow is

still not perfect, but I'm on Urso to keep it moving. It wasn't a

pleasant process, but it seems to have helped. All I can say is that

everything I've read about strictures is that they occur in anywhere

from 15% to 26% transplants. Those are numbers I'm pulling out of my

head from past reading, though. My team acted like it was especially

common problem for living donor transplants...

HTH,

Deb in VA

PSC 1998, Gallbladder removed 1998, UC 1999, Listed Ltx 2001, LDLTX

5/19/2005, 13 PTC's with drain placements/replacements 9/2005-3/2006,

3 sinus surgeries in 2006, Osteopenia July 2006, 3 GI bleeds since

August 2006 because of intestinal varicies at the anastamosis site of

my roux en y.

How common is it for

> people, after transplant, to get strictures?

>

> Nikki in NC

> Transplanted 12/25/2004 (best Christmas present I ever received)

>

>

>

>

>

>

> ---------------------------------

> It's here! Your new message!

> Get new email alerts with the free Yahoo! Toolbar.

>

[Guest guest]

Deb,So good to see you posting.I think of you so often and wonder how you are doing.I hope that this year things will really settle down for you.I'm thinking good thoughts for you.Lee HTH,Deb in VAPSC 1998, Gallbladder removed 1998, UC 1999, Listed Ltx 2001, LDLTX 5/19/2005, 13 PTC's with drain placements/replacements 9/2005-3/2006, 3 sinus surgeries in 2006, Osteopenia July 2006, 3 GI bleeds since August 2006 because of intestinal varicies at the anastamosis site of my roux en y.

[Guest guest]

Thanks to all that have responded to my post. I am to get labs done in

the morning again and if they are still high or even higher, then they

are going to do an ERCP to see if the reason is a stricture and if so

stent it, or see if the PSC is coming back, which I hope it is not!

Thanks again to all.

Nikki

Transplant: 12/25/2004

[Guest guest]

Hello all-

My transplant was June 2004, and my Alk Phos has been slowly climbing

as well, and is now slightly above spec. I'm also concerned this is

the start of a recurrence, but we'll have to just wait and see.

Jon

>

> Thanks to all that have responded to my post. I am to get labs done in

> the morning again and if they are still high or even higher, then they

> are going to do an ERCP to see if the reason is a stricture and if so

> stent it, or see if the PSC is coming back, which I hope it is not!

> Thanks again to all.

>

> Nikki

> Transplant: 12/25/2004

>

[Guest guest]

I had my transplant in Sept '06 and in January they

had to install a stent where they connected my bile

duct to the intestine. They called it surgical

scaring. Before they found the problem I thought my

psc came back.

--- jms_758 wrote:

> Hello all-

>

> My transplant was June 2004, and my Alk Phos has

> been slowly climbing

> as well, and is now slightly above spec. I'm also

> concerned this is

> the start of a recurrence, but we'll have to just

> wait and see.

>

> Jon

>

>

>

>

> >

> > Thanks to all that have responded to my post. I am

> to get labs done in

> > the morning again and if they are still high or

> even higher, then they

> > are going to do an ERCP to see if the reason is a

> stricture and if so

> > stent it, or see if the PSC is coming back, which

> I hope it is not!

> > Thanks again to all.

> >

> > Nikki

> > Transplant: 12/25/2004

> >

>

>

>

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[Guest guest]

Jon:

Hate to hear your Alk. Phos is going up. Hoepfully, it will go back

down and is not a rejection. I had to have my labs redone again

today and now all of my liver enzymes are in the " high " range. They

are thinking that it is rejection. I wish you the very best. Keep

me posted.

Nikki

> >

> > Thanks to all that have responded to my post. I am to get labs

done in

> > the morning again and if they are still high or even higher, then

they

> > are going to do an ERCP to see if the reason is a stricture and

if so

> > stent it, or see if the PSC is coming back, which I hope it is

not!

> > Thanks again to all.

> >

> > Nikki

> > Transplant: 12/25/2004

> >

>

[Guest guest]

Lee,

Thanks for the kind words - me, too, I could sure use " boring " for a

while! I've been off-line a lot trying to get my life back now that I'm

feeling somewhat better. I still have a few hurdles to overcome, but

mentally, I'm focusing on the positive (which was hard to do this past

year). Hope all is well - I think of you and Bill often...

Take care,

Deb in VA

PSC 1998, Gallbladder removed 1998, UC 1999, Listed Ltx 2001, LDLTX

5/19/2005, 13 PTC's with drain placements/replacements 9/2005-3/2006,

3 sinus surgeries in 2006, Osteopenia July 2006, 3 GI bleeds since

August 2006 because of intestinal varicies at the anastamosis site of

my roux en y.