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Hi, and God Bless... I am sorry to hear you have chiari, as my 10 year old

also had it, and we went through surgery a year ago. Sad to say no change

with his condition. The best person to ask is in Paradice, she knows

the best of the best in your area !!!! I know there is one in Washington she

recomends and he is wonderful !!!

WYVERN NC @aol.com is her address.. is the best !!!!! And once you

speak to her you will love her !!!! We get tons of wonderful support and

information from her here on this sight...

Get a second opinion !!!!!!!! I don't know your systoms or if you have a

syrinx, but when it comes to surgery get the best the first time !

Please ask !!!!!!

Best Wishes.... Ginger

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  • 6 years later...

Hello all

Been a while but wanted to say HI

I have tried to read most of the posts and pray for those who are struggling and rejoice for those who have had the events that take them away from the day to day struggles.

For the new members, welcome and soooooo sorry that you even know about this board or group.

As you see we all have ups and downs but this is a good group and most of the people here truly care. To talk to people that “GET IT” is priceless.

Walt, Whidbey Island Wa

IPF, NSIP, UIP, DIP 10/06

Life may not be the party we hoped for, but while we are here we might as well dance

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Hi Walt ... good to see a post from you again. Hope all is well with you and your son.

MamaSher, age 70. IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Hello all

Hello all Been a while but wanted to say HI I have tried to read most of the posts and pray for those who are struggling and rejoice for those who have had the events that take them away from the day to day struggles.

For the new members, welcome and soooooo sorry that you even know about this board or group.

As you see we all have ups and downs but this is a good group and most of the people here truly care. To talk to people that “GET IT” is priceless.

Walt, Whidbey Island Wa

IPF, NSIP, UIP, DIP 10/06

Life may not be the party we hoped for, but while we are here we might as well dance

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