OT - I just wanted to share our wonderful day

March 30, 2007

First, I want to explain that my sister has ALS (a terminal incurable

illness) and her husband has stage IV melanoma. Today there was a

fundraiser for them and it was such a huge success that the BBQ

company ran out of BBQ and we had to get BBQ from another BBQ place.

It had great media coverage from the local paper and the local news

here is the link the local news story:

This was the first time I have seen my sister happy in quite a

while. The reporters got some of the details wrong like (her

symptoms started in May but she was not diagnosed until Jan of this

year the story said she was diagnosed in May). It also says that

this was being done by Glen's neighbors when it was his coworkers not

his neigbors.

That was the first part of my wonderful day. The rest of the

wonderful day was that it was my daughter's 5th birthday and for her

birthday present she was a Jr. Lady Cat and danced in front of

thousands of people at the Charlotte Bobcat's game. She did such a

good job - I was so proud of her. You were suppose to be 6 to

participate although they allowed some 5 year olds who had been

taking dance for a while but she just turned 5 today so she was the

youngest girl out there (there were 120 girls) and when they did the

practice clinic last week she was still 4.

I know this is off topic but with everything that has been going on

with my family's health including feeling worse with his PSC

it is nice to have a really great day!

Regards,

Nichole (wife of PSC & UC 08/04)

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