Guest guest Posted December 28, 2006 Report Share Posted December 28, 2006 My son was diagnosed with autism based on ADI-R and ADOS. So when I said he was mildly autistic, it was not because he has the signs I mentioned in my previous post (Hand flapping, looking from corner of his eyes,no speech...) but it was due to the fact that he has been formally diagnosed by an expert. I do not know if ADOS and ADI-R can mislead and have wrong results. I hope they can and my son is not really autistic, but for now I assume he has autism. Based on what we were told at the evaluation session, 3 factors are considered to label a kid autistic: -lack of language and communication skills -Sensory simulations and repetitive actions -lack of social interactions What we saw during the 15-20 minutes of ADOS, which is play based, did not reveal any clue about social interactions. It was 2 PM, his nap time, he was very tired so that after the ADOS he fell down sleep in his mom's lap...I assume social interaction factor was mainly concluded based on ADI-R which is a parent's based questioner. fkewatson <kwatsoneei@...> wrote: I'm glad to hear that others feel the same as I re: this subject. The school system tried to tell me my child was autistic because of his expressive language delay and the fact that he is a picky eater (I did not listen or accept that). He's 3! These are the same people who told me, " apraxia is not a neurological disorder " . My cousin's typically developing 4 year old eats fewer things than my son (heck, my husband eats fewer things than my son) AND he spends a lot of time lining up his toys - something that my son has rarely done. I understand that to be just a lower level of play (sorting, grouping) but in today's society lining up toys equals autism. In the ages and stages (ages 3-5) section of the June 2006 Parenting magazine it addressed lining up toys as a normal function of development during that age group. Now, I know that Parenting magazine is not a peer-reviewed scientific journal, but it would be pretty irresponsible to print such information if lining up toys only indicated a problem. Hand flapping is a sensory (proprioceptive) response to try to calm a child down in an excited state. So is toe walking and many other behaviors including jumping up and down. No one has ever created a stir over jumping up and down when excited! And the visual stimulation is sensory as well (if you've read The Out of Sync Child and Sensational Kids that might be familiar). Expressive speech delay plus sensory issues does not always equal autism. I've done as much research on typical development as I have on apraxia, sensory integration and autism and I find that the range of development for each age group is so broad that it is impossible to " standardize " a child. Sure, if your gut is telling you that your child may be autistic, then by all means find all the help you can get. But likewise, if your gut is telling you it may not be autism (like mine is), then do whatever you have the means to do to make sure all possibilities are explored before accepting a diagnosis that you feel may be wrong. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2006 Report Share Posted December 28, 2006 Thanks for the recommendadtions. The Dr told us he had mild to moderate (closer to moderate, according to him) autism. I think he was speaking of severity. Meantime he told that IQ and language development are 2 important factors for prediction of how well he will do when he grows up and how well he would respond to the interventions. As I wrote " I assume he has autism " and we have actually started an early intervention plan. maryebe <eberlein@...> wrote: I would first try carnosine (carnaware.com) and essential GSH from wellnesshealth.com. These really, really helped my daughter, who had both ASD and apraxia. Could you say more about what you mean by mild autism? This means wildly different things to different people. My other recommendations are to do ABA and medical intervention with a Dan doctor. Fixing your child's nutritional deficiencies may have a dramatic effect. good luck > > Hi > My son's receptive language is progressing very well but he has not > added up to the 4 words he was able to say. He is 2.5 and mildly > autistic. > Could anybody give some piece of advice to what to do to help him to > talk. I am doing some works based on the book " More than words " with > him, but he seems has not taken off in his speaking yet. Any other > suggestion? > Thanks > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2006 Report Share Posted December 28, 2006 My son was diagnosed with autism based on ADI-R and ADOS. So when I said he was mildly autistic, it was not because he has the signs I mentioned in my previous post (Hand flapping, looking from corner of his eyes,no speech...) but it was due to the fact that he has been formally diagnosed by an expert. I do not know if ADOS and ADI-R can mislead and have wrong results. I hope they can and my son is not really autistic, but for now I assume he has autism. Based on what we were told at the evaluation session, 3 factors are considered to label a kid autistic: -lack of language and communication skills -Sensory simulations and repetitive actions -lack of social interactions What we saw during the 15-20 minutes of ADOS, which is play based, did not reveal any clue about social interactions. It was 2 PM, his nap time, he was very tired so that after the ADOS he fell down sleep in his mom's lap...I assume social interaction factor was mainly concluded based on ADI-R which is a parent's based questioner. fkewatson <kwatsoneei@...> wrote: I'm glad to hear that others feel the same as I re: this subject. The school system tried to tell me my child was autistic because of his expressive language delay and the fact that he is a picky eater (I did not listen or accept that). He's 3! These are the same people who told me, " apraxia is not a neurological disorder " . My cousin's typically developing 4 year old eats fewer things than my son (heck, my husband eats fewer things than my son) AND he spends a lot of time lining up his toys - something that my son has rarely done. I understand that to be just a lower level of play (sorting, grouping) but in today's society lining up toys equals autism. In the ages and stages (ages 3-5) section of the June 2006 Parenting magazine it addressed lining up toys as a normal function of development during that age group. Now, I know that Parenting magazine is not a peer-reviewed scientific journal, but it would be pretty irresponsible to print such information if lining up toys only indicated a problem. Hand flapping is a sensory (proprioceptive) response to try to calm a child down in an excited state. So is toe walking and many other behaviors including jumping up and down. No one has ever created a stir over jumping up and down when excited! And the visual stimulation is sensory as well (if you've read The Out of Sync Child and Sensational Kids that might be familiar). Expressive speech delay plus sensory issues does not always equal autism. I've done as much research on typical development as I have on apraxia, sensory integration and autism and I find that the range of development for each age group is so broad that it is impossible to " standardize " a child. Sure, if your gut is telling you that your child may be autistic, then by all means find all the help you can get. But likewise, if your gut is telling you it may not be autism (like mine is), then do whatever you have the means to do to make sure all possibilities are explored before accepting a diagnosis that you feel may be wrong. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2006 Report Share Posted December 29, 2006 Thanks for the recommendadtions. The Dr told us he had mild to moderate (closer to moderate, according to him) autism. I think he was speaking of severity. Meantime he told that IQ and language development are 2 important factors for prediction of how well he will do when he grows up and how well he would respond to the interventions. As I wrote " I assume he has autism " and we have actually started an early intervention plan. maryebe <eberlein@...> wrote: I would first try carnosine (carnaware.com) and essential GSH from wellnesshealth.com. These really, really helped my daughter, who had both ASD and apraxia. Could you say more about what you mean by mild autism? This means wildly different things to different people. My other recommendations are to do ABA and medical intervention with a Dan doctor. Fixing your child's nutritional deficiencies may have a dramatic effect. good luck > > Hi > My son's receptive language is progressing very well but he has not > added up to the 4 words he was able to say. He is 2.5 and mildly > autistic. > Could anybody give some piece of advice to what to do to help him to > talk. I am doing some works based on the book " More than words " with > him, but he seems has not taken off in his speaking yet. Any other > suggestion? > Thanks > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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