? about transplants at your center

[Guest guest]

I was just “looking around” our center’s

data and wonder if at your center the numbers are the close to the same.

At Baylor from 1988 – 2006 I found: (of those

transplanted)

16 people had PSC & Crohn’s disease

26 people had PSC, but no bowel disease

36 people had PSC & “other” (have no

idea what that means)

111 people had PSC & U.C.

So the folks with U.C. far out number all the rest

needing transplants. Interesting

isn’t it? Is it the same at

your center?

Barb in Texas - Together in the Fight, Whatever it Takes!

Son Ken (32) UC 91 - PSC 99 Listed 7/21/06 @ Baylor Dallas

[Guest guest]

It is true that PSC-UC has a higher % of transplants than other PSC

types. But Baylor's % is quite a bit higher than the national data.

Type National% Baylor%

PSC-CD 13.2 8.5

PSC-No IBD 27.0 13.8

PSC-Other 21.3 19.0

PSC-UC 38.4 58.7

Other seems to have been a catch-all category more widely used prior

to 1994 than after 1996:

Type National% National%

1996-2006 1988-1993

PSC-CD 15.1 7.2

PSC-No IBD 31.9 12.5

PSC-Other 8.7 56.3

PSC-UC 44.3 24.0

Region 4 (TX,OK) while having a higher than average rate of tx for

PSC-UC (51.5%) is not the highest. That honor is held by Region 8

(CO,WY,NE,IA,KS,M0 - 55.1%). Regions 9 (NY,VT) and 3

(AR,LA,MS,AL,GA,FL) do the lowest % of PSC-UC transplants, 29.7 and

31.5% respectively.

Tim R

> At Baylor from 1988 - 2006 I found: (of those transplanted)

>

> 16 people had PSC & Crohn's disease

> 26 people had PSC, but no bowel disease

> 36 people had PSC & " other " (have no idea what that means)

> 111 people had PSC & U.C.

>

> So the folks with U.C. far out number all the rest needing transplants.

> Interesting isn't it? Is it the same at your center?

[Guest guest]

-----Original

Message-----

It is true that PSC-UC has a higher % of transplants than other

PSC types.

Thanks Tim, any idea

why? Maybe more people have

UC? Nah, that would probably be too

simple a conclusion – has to be something more.

Barb in Texas - Together in the Fight, Whatever it Takes!

Son Ken (32) UC 91 - PSC 99 Listed 7/21 @ Baylor Dallas

[Guest guest]

> -----Original Message-----

> It is true that PSC-UC has a higher % of transplants than other PSC

> types.

44.3% for UC vs 15.1% for CD, PSC-No IBD 31.9% for none, and 8.7% for

other for transplants done from 1996 to 2006.

> Thanks Tim, any idea why? Maybe more people have UC?

I think that is the reason. A high percentage of PSC patients have UC

so a high percentage of those who get a transplant also have UC.

Actually the combined UC and CD percentage seem a bit low, 59.4%, when

you consider the estimate that 75% of PSCer have IBD.

Tim R