Re: Joyce Dalton update 9/13/08

[Guest guest]

Thank you Kerry for such a great detailed update on Joyce. I know that we'll all be praying for her, especially that they find a way to get her home as soon as possible.

Also glad to hear that Judy is doing well. Thank God!

Kerry please know that I'm praying for your phone to ring with the perfect lungs for you!!!

Beth

Age 48 Fibrotic NSIP 06/06 UCTD 07/08

Change everything. Love and Forgive

Joyce Dalton update 9/13/08

Hi Group,I just got off the phone w/ Lucian. Joyce had been in ICU since she went into the hospital and she's been moved to a different unit. I was thinking/hoping this meant there was improvement in her health. Lucian explained that the reason she was moved was because she signed the do not resucitate order so this move reflects that change only. He said they have her on about 30 liters coming from the wall units, basically the same they were piecing together between her home unit and the tank w/ mask. For her to move at all just completely drops her oxygen out. He said she just can't move at all except to lay or sit up. She had been able to walk into the doctors every time before this last Wednesday. He said she has been sleeping mostly. Nausea has been a big problem (and any food she could stomach would go right thru her) and now no movement to work up any appetite or help w/ strength.

She's burning calories with every movement and not able to offset it. They have added 3 viagra a day to her Flolan to try to open up more blood vessels to get the oxygen in. Of course that's also causing headaches. Gretchen is there w/ Lucian now and just left and will be back. They are taking turns helping out along w/ some other friends. They want to get her home as soon as possible. Lucian is not happy w/ the level of care they take w/ her Flolan and the bandages and all the work he knows it takes to keep germs away from the ports, etc. We all know Joyce wants to be at home. They have a very close friend w/ Hospice who's as close as a daughter per Lucian and they are talking w/ her. They will do what it takes, nurses in home or whatever to take care of her. He specifically asked me to update the group here online and said he was going to call Peggy. Peggy, he said a call to you was in the

list earlier today but he got sidetracked. Also Leanne, he said he can't get calls thru to you. Joyce is in Jewish Hospital in Louisville, KY. I don't have direct info, but the main line is .Also, while I'm updating... Judy Walling was released from Clarian Methodist on Thursday she's doing well. I finally got to meet her in person today at the Heart/Lung Transplant Reunion picnic. No news on me... just waiting on my lungs.Everyone... Prayers and love for Joyce,Kerry38 IPF '01S. IN

[Guest guest]

Kerry, Thank you so much for the update on

our Joyce.

Wishing that the news was better .

My prayers go out to Lucein and Joyce and the entire family as they go

through

what must be agonizing pain together.

Z fibriotic NSIP/05

Z 64,

fibriotic NSIP/o5/PA

And “mild”

PH/10/07 and Reynaud’s too!!

No, NSIP was not

self-inflicted…I never smoked!

Potter,

reader,carousel lover and MomMom to

Darah

and Sara

“I’m gonna

be iron like a lion in Zion” Bob Marley

Vinca

Minor-periwinkle is my flower

Kerry wrote:

Hi Group,

I just got off the phone w/ Lucian. Joyce had been in ICU since she

went into the hospital and she's been moved to a different unit. I

was thinking/hoping this meant there was improvement in her health.

Lucian explained that the reason she was moved was because she

signed the do not resucitate order so this move reflects that change

only. He said they have her on about 30 liters coming from the wall

units, basically the same they were piecing together between her

home unit and the tank w/ mask. For her to move at all just

completely drops her oxygen out. He said she just can't move at all

except to lay or sit up. She had been able to walk into the doctors

every time before this last Wednesday. He said she has been

sleeping mostly. Nausea has been a big problem (and any food she

could stomach would go right thru her) and now no movement to work

up any appetite or help w/ strength. She's burning calories with

every movement and not able to offset it. They have added 3 viagra

a day to her Flolan to try to open up more blood vessels to get the

oxygen in. Of course that's also causing headaches. Gretchen is

there w/ Lucian now and just left and will be back. They are

taking turns helping out along w/ some other friends. They want to

get her home as soon as possible. Lucian is not happy w/ the level

of care they take w/ her Flolan and the bandages and all the work he

knows it takes to keep germs away from the ports, etc. We all know

Joyce wants to be at home. They have a very close friend w/ Hospice

who's as close as a daughter per Lucian and they are talking w/

her. They will do what it takes, nurses in home or whatever to take

care of her. He specifically asked me to update the group here

online and said he was going to call Peggy. Peggy, he said a call

to you was in the list earlier today but he got sidetracked. Also

Leanne, he said he can't get calls thru to you. Joyce is in Jewish

Hospital in Louisville, KY. I don't have direct info, but the main

line is .

Also, while I'm updating... Judy Walling was released from Clarian

Methodist on Thursday she's doing well. I finally got to meet her

in person today at the Heart/Lung Transplant Reunion picnic. No

news on me... just waiting on my lungs.

Everyone... Prayers and love for Joyce,

Kerry

38 IPF '01

S. IN

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[Guest guest]

MB, I am so glad you are still coming, I hope Jane is too.. I just can't stand this day.. I need tocall Lucian. I knew I should have called today. I hope all her girls get home.  Love  & Prayers, PeggyFlorida,  IPF/UIP 2004"I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly."  Thank you Kerry for such a great detailed update on Joyce. I know that we'll all be praying for her, especially that they find a way to get her home as soon as possible. Also glad to hear that Judy is doing well. Thank God! Kerry please know that I'm praying for your phone to ring with the perfect lungs for you!!! Beth Age 48 Fibrotic NSIP 06/06 UCTD 07/08 Change everything. Love and Forgive       Joyce Dalton update 9/13/08Hi Group,I just got off the phone w/ Lucian. Joyce had been in ICU since she went into the hospital and she's been moved to a different unit. I was thinking/hoping this meant there was improvement in her health. Lucian explained that the reason she was moved was because she signed the do not resucitate order so this move reflects that change only. He said they have her on about 30 liters coming from the wall units, basically the same they were piecing together between her home unit and the tank w/ mask. For her to move at all just completely drops her oxygen out. He said she just can't move at all except to lay or sit up. She had been able to walk into the doctorsevery time before this last Wednesday. He said she has been sleeping mostly. Nausea has been a big problem (and any food she could stomach would go right thru her) and now no movement to work up any appetite or help w/ strength. She's burning calories with every movement and not able to offset it. They have added 3 viagra a day to her Flolan to try to open up more blood vessels to get the oxygen in. Of course that's also causing headaches. Gretchen is there w/ Lucian now and just left and will be back. They are taking turns helping out along w/ some other friends. They want to get her home as soon as possible. Lucian is not happy w/ the level of care they take w/ her Flolan and the bandages and all the work he knows it takes to keep germs away from the ports, etc. We all know Joyce wants to be at home. They have a very close friend w/ Hospice who's as close as a daughter per Lucian and they are talking w/ her. They will do what it takes, nurses in home or whatever to take care of her. He specifically asked me to update the group here online and said he was going to call Peggy. Peggy, he said a call to you was in the list earlier today but he got sidetracked. Also Leanne, he said he can't get calls thru to you. Joyce is in Jewish Hospital in Louisville, KY. I don't have direct info, but the main line is .Also, while I'm updating... Judy Walling was released from Clarian Methodist on Thursday she's doing well. I finally got to meet her in person today at the Heart/Lung Transplant Reunion picnic. Nonews on me... just waiting on my lungs.Everyone... Prayers and love for Joyce,Kerry38 IPF '01S. IN

[Guest guest]

Peggy,

I know, I hate this too with every fiber of my being. I hope all her girls get there in time and I hope they can get Joyce home. We all know how much she HATES the "Big House" as she calls it. I just want her to be home if it's at all possible. God bless Lucien. He is such a loving loyal husband.

Beth

Age 48 Fibrotic NSIP 06/06 UCTD 07/08

Change everything. Love and Forgive

Joyce Dalton update 9/13/08

Hi Group,I just got off the phone w/ Lucian. Joyce had been in ICU since she went into the hospital and she's been moved to a different unit. I was thinking/hoping this meant there was improvement in her health. Lucian explained that the reason she was moved was because she signed the do not resucitate order so this move reflects that change only. He said they have her on about 30 liters coming from the wall units, basically the same they were piecing together between her home unit and the tank w/ mask. For her to move at all just completely drops her oxygen out. He said she just can't move at all except to lay or sit up. She had been able to walk into the doctorsevery time before this last Wednesday. He said she has been sleeping mostly. Nausea has been a big problem (and any food she could stomach would go right thru her) and now no movement to work up any appetite or help w/ strength. She's burning calories with every movement and not able to offset it. They have added 3 viagra a day to her Flolan to try to open up more blood vessels to get the oxygen in. Of course that's also causing headaches. Gretchen is there w/ Lucian now and just left and will be back. They are taking turns helping out along w/ some other friends. They want to get her home as soon as possible. Lucian is not happy w/ the level of care they take w/ her Flolan and the bandages and all the work he knows it takes to keep germs away from the ports, etc. We all know Joyce wants to be at home. They have a very close friend w/ Hospice who's as close as a daughter per Lucian and they are talking w/ her. They will do what it takes, nurses in home or whatever to take care of her. He specifically asked me to update the group here online and said he was

going to call Peggy. Peggy, he said a call to you was in the list earlier today but he got sidetracked. Also Leanne, he said he can't get calls thru to you. Joyce is in Jewish Hospital in Louisville, KY. I don't have direct info, but the main line is .Also, while I'm updating... Judy Walling was released from Clarian Methodist on Thursday she's doing well. I finally got to meet her in person today at the Heart/Lung

Transplant Reunion picnic. Nonews on me... just waiting on my lungs.Everyone... Prayers and love for Joyce,Kerry38 IPF '01S. IN

[Guest guest]

Kerry

Thanks. I know that was a difficult message to deliver. Just let her

know we're all here with her....hoping her pain is controlled as much as

possible.

>

> Hi Group,

>

> I just got off the phone w/ Lucian. Joyce had been in ICU since she

> went into the hospital and she's been moved to a different unit. I

> was thinking/hoping this meant there was improvement in her health.

> Lucian explained that the reason she was moved was because she

> signed the do not resucitate order so this move reflects that change

> only. He said they have her on about 30 liters coming from the wall

> units, basically the same they were piecing together between her

> home unit and the tank w/ mask. For her to move at all just

> completely drops her oxygen out. He said she just can't move at all

> except to lay or sit up. She had been able to walk into the doctors

> every time before this last Wednesday. He said she has been

> sleeping mostly. Nausea has been a big problem (and any food she

> could stomach would go right thru her) and now no movement to work

> up any appetite or help w/ strength. She's burning calories with

> every movement and not able to offset it. They have added 3 viagra

> a day to her Flolan to try to open up more blood vessels to get the

> oxygen in. Of course that's also causing headaches. Gretchen is

> there w/ Lucian now and just left and will be back. They are

> taking turns helping out along w/ some other friends. They want to

> get her home as soon as possible. Lucian is not happy w/ the level

> of care they take w/ her Flolan and the bandages and all the work he

> knows it takes to keep germs away from the ports, etc. We all know

> Joyce wants to be at home. They have a very close friend w/ Hospice

> who's as close as a daughter per Lucian and they are talking w/

> her. They will do what it takes, nurses in home or whatever to take

> care of her. He specifically asked me to update the group here

> online and said he was going to call Peggy. Peggy, he said a call

> to you was in the list earlier today but he got sidetracked. Also

> Leanne, he said he can't get calls thru to you. Joyce is in Jewish

> Hospital in Louisville, KY. I don't have direct info, but the main

> line is .

>

> Also, while I'm updating... Judy Walling was released from Clarian

> Methodist on Thursday she's doing well. I finally got to meet her

> in person today at the Heart/Lung Transplant Reunion picnic. No

> news on me... just waiting on my lungs.

>

> Everyone... Prayers and love for Joyce,

> Kerry

> 38 IPF '01

> S. IN

>

[Guest guest]

Dear Kerry,

Thank you for the update on our Queen Huggy Joyce .....please let her ( & Lucien) know that there is a circle of love & support stretching across millions of miles, ocean & sky....

in Oz

>> Hi Group,> > I just got off the phone w/ Lucian. Joyce had been in ICU since she > went into the hospital and she's been moved to a different unit. I > was thinking/hoping this meant there was improvement in her health. > Lucian explained that the reason she was moved was because she > signed the do not resucitate order so this move reflects that change > only. He said they have her on about 30 liters coming from the wall > units, basically the same they were piecing together between her > home unit and the tank w/ mask. For her to move at all just > completely drops her oxygen out. He said she just can't move at all > except to lay or sit up. She had been able to walk into the doctors > every time before this last Wednesday. He said she has been > sleeping mostly. Nausea has been a big problem (and any food she > could stomach would go right thru her) and now no movement to work > up any appetite or help w/ strength. She's burning calories with > every movement and not able to offset it. They have added 3 viagra > a day to her Flolan to try to open up more blood vessels to get the > oxygen in. Of course that's also causing headaches. Gretchen is > there w/ Lucian now and just left and will be back. They are > taking turns helping out along w/ some other friends. They want to > get her home as soon as possible. Lucian is not happy w/ the level > of care they take w/ her Flolan and the bandages and all the work he > knows it takes to keep germs away from the ports, etc. We all know > Joyce wants to be at home. They have a very close friend w/ Hospice > who's as close as a daughter per Lucian and they are talking w/ > her. They will do what it takes, nurses in home or whatever to take > care of her. He specifically asked me to update the group here > online and said he was going to call Peggy. Peggy, he said a call > to you was in the list earlier today but he got sidetracked. Also > Leanne, he said he can't get calls thru to you. Joyce is in Jewish > Hospital in Louisville, KY. I don't have direct info, but the main > line is .> > Also, while I'm updating... Judy Walling was released from Clarian > Methodist on Thursday she's doing well. I finally got to meet her > in person today at the Heart/Lung Transplant Reunion picnic. No > news on me... just waiting on my lungs.> > Everyone... Prayers and love for Joyce,> Kerry> 38 IPF '01> S. IN>

[Guest guest]

I really hate to hear this about Joyce. I hope she will get better soon and get back home as I know she wants to be. God is there and takes care of all. You are in thoughts and prayers, Joyce, along with your family. Get better soon!!CaroASTHMA 1976,OSTEOARTHRITIS 2002, COPD 02/06, IPF 08/07, UIP 01/08, RHEUMATOID ARTHRITIS 03/08 SJOGREN SYNDROME 07/08Mississippi

Thank you Kerry for such a great detailed update on Joyce. I know that we'll all be praying for her, especially that they find a way to get her home as soon as possible.

Also glad to hear that Judy is doing well. Thank God!

Kerry please know that I'm praying for your phone to ring with the perfect lungs for you!!!

Beth

Age 48 Fibrotic NSIP 06/06 UCTD 07/08

Change everything. Love and Forgive

Joyce Dalton update 9/13/08

Hi Group,I just got off the phone w/ Lucian. Joyce had been in ICU since she went into the hospital and she's been moved to a different unit. I was thinking/hoping this meant there was improvement in her health. Lucian explained that the reason she was moved was because she signed the do not resucitate order so this move reflects that change only. He said they have her on about 30 liters coming from the wall units, basically the same they were piecing together between her home unit and the tank w/ mask. For her to move at all just completely drops her oxygen out. He said she just can't move at all except to lay or sit up. She had been able to walk into the doctorsevery time before this last Wednesday. He said she has been sleeping mostly. Nausea has been a big problem (and any food she could stomach would go right thru her) and now no movement to work up any appetite or help w/ strength. She's burning calories with every movement and not able to offset it. They have added 3 viagra a day to her Flolan to try to open up more blood vessels to get the oxygen in. Of course that's also causing headaches. Gretchen is there w/ Lucian now and just left and will be back. They are taking turns helping out along w/ some other friends. They want to get her home as soon as possible. Lucian is not happy w/ the level of care they take w/ her Flolan and the bandages and all the work he knows it takes to keep germs away from the ports, etc. We all know Joyce wants to be at home. They have a very close friend w/ Hospice who's as close as a daughter per Lucian and they are talking w/ her. They will do what it takes, nurses in home or whatever to take care of her. He specifically asked me to update the group here online and said he was

going to call Peggy. Peggy, he said a call to you was in the list earlier today but he got sidetracked. Also Leanne, he said he can't get calls thru to you. Joyce is in Jewish Hospital in Louisville, KY. I don't have direct info, but the main line is .Also, while I'm updating... Judy Walling was released from Clarian Methodist on Thursday she's doing well. I finally got to meet her in person today at the Heart/Lung

Transplant Reunion picnic. Nonews on me... just waiting on my lungs.Everyone... Prayers and love for Joyce,Kerry38 IPF '01S. IN