Guest guest Posted September 19, 2008 Report Share Posted September 19, 2008 Thank you, Bruce. It was you who inspired me to do this. I will repeat it in another few weeks. I do think that if I didn't have PF that my stats would be remarkable for a man my age. My pulmo no longer requsts a PFT or a walk or an x-ray or ct scan since the biopsy. He did listen, though. I see him 10/7 for my now quarterly visit and my GP 10/16 for my annual. I get more from him. The reality is that I feel really good, as well as I ever have. I still have that sense of being really healthy despite the knowledge that I have PF. I also know in my bones that someday it may kick into high gear. No matter, I'll do what I have learned from all of the good people of this support group: be positive, enjoy life and do what Mama Sher always says: keep on keeping. Jack79/IPF - UIP/dx06/05 Maine Re: My Day JackThats great, both that you did that and your SATS. Now, it will give yousomething to compare against but also tells you a couple of things aboutyesterday. On the two flights of stairs, you'd be better off and feelbetter if you paused between flights. The same goes for unloading theboxes. Break work down into smaller increments with just a brief pause.Have you ever been checked during sleep? If not, you might want yourdoctor to prescribe an overnight oximeter (they'll just bring arecording oximeter to you for your home), just to see how it is. Mostpeople drop at sleep because breathing slows down. Also, the rest of theinformation you gathered will be excellent information for your doctor.He can do all the PFT's and six minute walks he wants but right now youhave knowledge of a typical day that he couldn't get without hooking youup to a 24 hour recorder. Even then he wouldn't be able to relate theSATS to the activities as you just did.>> Taking my cue from Bruce, I tracked my SATS during the day yesterday. This is how it went:>> 1. On awaking at 5:00 am97> 2. Climbing stairs - one flight96> 3. Climbing stairs - two flights88> 4. 30 minutes stretching exercises & weight workout 97> 5. Shower95> 6. Four hours sitting/working at desk - lots of movement 97> 7. Grocery shopping93> 8. Off load & stack in garage19 boxes of bath exhaust fans 89> 9. 30 minute medium brisk walk. SATS flucuated due to> up and down hilly terrain 91 - 95. End was steep hill> to my house which sits at the top, ending figure 93> 10. Bedtime at last with a coughing fit93>> I assume these are good numbers to have, but since I am in year fourfollowing my dx, I keep waiting for> them to drop.>> Jack> 79/IPF - UIP/dx06/05 Maine> Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.