Re: Transplant Lists and Cancer

[Guest guest]

Thank you to everyone for your responses.

I went for the MRI the other day but there seems to still be great debate about

the mass. The radiologist thinks it is ok but the urologist and the

gastroenterologist seem to think that it probably needs to be gotten out of

there. If it were not for the PSC and the drugs that I am taking, then the

urologist would be content with just watching the mass for another 3 months. He

said that kidney cancer is caused by a problem with the body's immune system,

and we already know that my immune system is all messed up. It also does not

respond well to treatment and it is difficult to detect with needle biopsy or

MRI. The Gastro just doesn't think it is worth the chance. I have an

appointment with the surgeon next Monday and we will see what he says but I am

prepared to have that part of my kidney removed just to be safe. Thanks again.

PSC '01

>>> " Martha " 4/12/2007 9:34 AM >>>

Transplant requires immunosuppression and that can allow cancer to

come back in a big way. If you have had cancer and are 5 years

cancer-free it is considered a cure. But they will check very

carefully when it comes time to be listed.

When I was referred to the transplant team for biliary bypass surgery,

they were extra careful about checking a swollen lymph node in my

armpit and wanted a new mammogram. Fortunately it was due to a hangnail!

Do you know that the kidney problem is cancer, or are you just worried

at this point?

Martha (MA)

>

> Do any of you know how you are affected as far as a transplant list,

if you are told that you have kidney cancer but the tumor has already

been removed?

>

> I am not currently on a list and I don't have any problems related

to my liver but I'm worried about when it does come time to be listed.

Thanks.

>

> PSC '01

>

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[Guest guest]

Hi ,

I have bilateral cysts in my kidneys that were discovered during my routine MRCP last year...one of them is almost 6cm. Thankfully, they tell me they are nothing to worry about, just cysts, but I worry anyway since my kidneys hurt often...especially during cholangitis attacks! And it's especially worrisome because my father passed away from kidney cancer 2 years ago. I wish his kidney cancer had been monitored and discovered earlier. He had no clue until he had noticeable blood in his urine and by that point it had already metastasized to the liver, lungs, and brain. It was a rough road for him with no good treatment options and he survived only 6 months from diagnosis. I have not researched the those options since then, but at the time it seemed to be one of those cancers that brightest and best hope was to find it early and excise it. I'm currently preparing my records to try to be evaluated for transplant and hope to get some better grasp on what might be going on with my own kidneys at the same time. I guess I have to wonder if maybe cysts can be a precursor to cancer in some people? I wish you all the best and hope you are able to get some more definitive advice from your doctors.

Jeff PSC 1989

Re: Transplant Lists and Cancer

Thank you to everyone for your responses.

I went for the MRI the other day but there seems to still be great debate about the mass. The radiologist thinks it is ok but the urologist and the gastroenterologist seem to think that it probably needs to be gotten out of there. If it were not for the PSC and the drugs that I am taking, then the urologist would be content with just watching the mass for another 3 months. He said that kidney cancer is caused by a problem with the body's immune system, and we already know that my immune system is all messed up. It also does not respond well to treatment and it is difficult to detect with needle biopsy or MRI. The Gastro just doesn't think it is worth the chance. I have an appointment with the surgeon next Monday and we will see what he says but I am prepared to have that part of my kidney removed just to be safe. Thanks again.

PSC '01

>>> "Martha" <mmdrolma (AT) yahoo (DOT) com> 4/12/2007 9:34 AM >>>

Transplant requires immunosuppression and that can allow cancer to

come back in a big way. If you have had cancer and are 5 years

cancer-free it is considered a cure. But they will check very

carefully when it comes time to be listed.

When I was referred to the transplant team for biliary bypass surgery,

they were extra careful about checking a swollen lymph node in my

armpit and wanted a new mammogram. Fortunately it was due to a hangnail!

Do you know that the kidney problem is cancer, or are you just worried

at this point?

Martha (MA)

>

> Do any of you know how you are affected as far as a transplant list,

if you are told that you have kidney cancer but the tumor has already

been removed?

>

> I am not currently on a list and I don't have any problems related

to my liver but I'm worried about when it does come time to be listed.

Thanks.

>

> PSC '01

>

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not the intended recipient(s), you are notified

that the dissemination, distribution or copying

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received this message in error, or are not the

named recipient(s), please notify the sender

and delete this e-mail from your computer.

ETMC has implemented secure messaging for

certain types of messages. For more information

about our secure messaging system, go to:

http://www.etmc.org/mail/

Thank you.

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