Re: 2007 Conference (Better long on science than inaccurate pacification)

[Guest guest]

,

I appreciated your talk and the power point graphics becuase it

showed advancement of understanding. I didn't understand all of it,

but it was much better than a talk given later that characterized PSC

as an " indolent disease. " I wanted to shout " BALONEY " (Slang.

foolishness; nonsense.)but the speaker was such a kind gentleman and I

could tell that he was trying to comfort those that found the diagnosis

overwhelming. The definition of Indolent is: " Pathology. causing little

or no pain; inactive or relatively benign " While it is true that PSC

can be asymptomatic for several years when diagnosed early on, this

information gives little understanding of the disease. I would rather

learn more about the disease, even if complicated, than to be comforted

with meaningless information.

Von