Guest guest Posted September 21, 2008 Report Share Posted September 21, 2008 Elisa, We all need encouragement from time to time. I'm the queen of doing too much and trying to take care of and please everyone but myself. I've recently gotten myself in a bit over my head taking care of a friends mother a few days a week. In the beginning I just wanted to help but as she's deteriorated it's become more demanding and I honestly can't do it for much longer. After everything I've been through it's still difficult for me to say ENOUGH. But say it I will if the current assisted living plans for Virginia fall through. It's funny that you mentioned the Nasher Museum at Duke, I was just there a couple of weeks ago to see the El Greco exhibit. Duke has a beautiful campus, though I feel old when I'm there when all the students are around. LOL If you are ever in the area, please give me a call! Look after yourself! Beth Age 48 Fibrotic NSIP 06/06 UCTD 07/08 Change everything. Love and Forgive Autoimmune Markers & ILD> >> >> >> > Morning Air Family,> > I have been puzzling about variousAutoimmune Markers that get searched for in blood tests. My Skin-CancerSpecialist told me to get my blood checked for these annually even ifI'd had a previous negative result. So just had them done again via myGP & when I rang for my results the Nurse said they were all marked bymy GP as `No Action'. I had a consultation with same GP & he didn'tmention anything either. I got copies of all the tests that had beendone & after I got home & read them carefully, noticed that lo & beholdI had returned a Positive Result for Ro52 (ENA Marker) …so I thenhad a follow –up consultation with Dr Google (the one bloke we allhave in common to help us out!)> > This Ro52 seems to be an odd Marker when it occursalone, the significance of which is still being researched & discussed…it is known to be a problem for babies whose mothers'return this result in their pre-natal tests. Babies can get a neo-natalform of Lupus. It also seems to be associated with myosotis,scleroderma, sjogrens'…..with connective tissue diseases in general.Research dated 2002 came to the conclusion that returning a positive forRo52 alone SHOULD be considered an indicator for Autoimmune, CTD but thedifficulty is that there is no absolute specificity for which one!> > Because I have Reynaud's', a known companion toScleroderma & occasionally some of the other CTD's I've always beenhighly suspicious that I do have an underlying CTD. The Reynaud's' isgetting progressively worse but there's no other real definitive skinchanges to point to Scleroderma. My cheeks have been bright shiny redwith lots of broken capillaries, for a few years now but it's not whatI'd call a RASH…there's the odd thickening on my finger joints butmostly on the index finger that gets hammered in the garden…..I dohave allots of arthritic aches n' pains but they could well be just wearn' tear….I know there is a form of Scleroderma that doesn't affectthe skin but internal organs only….nice thought that one… NOT!> > My middle name is `Detective'. .I HATE not knowingwhat is what! I have a strong feeling that there is more to my ILD thanis immediately apparent!> > Are any of you aware of whether you have had apositive result for this Ro52 ENA Marker???? Do you also haveReynaud's' or a known CTD?????> > Cheers,> > in Oz> >> > IPF: Fibrotic NSIP/UIP ??> > Reynauds'> > May 2007> >> >> Quote Link to comment Share on other sites More sharing options...
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