RE: Differences in Rejection

[Guest guest]

-----Original

Message-----

I finally got my biopsy results back and it showed recurrent PSC,

scarring of the liver grade 2 out of 4 and possible

early chronic rejection.

Nikki,

I’m so sorry to

hear about your rPSC, it has to be devastating news. How are you doing?

Barb in Texas - Together in the Fight, Whatever it Takes!

Son Ken (33) UC 91 - PSC 99 Listed 7/21 @ Baylor Dallas

[Guest guest]

Barb:

I'm doing okay I guess considering the circumstances. Thank you for

asking and caring, it means a lot.

Nikki

>

> -----Original Message-----

> I finally got my biopsy results back and it showed recurrent PSC,

> scarring of the liver grade 2 out of 4 and possible

> early chronic rejection.

>

> Nikki,

> I'm so sorry to hear about your rPSC, it has to be devastating news.

> How are you doing?

>

> Barb in Texas - Together in the Fight, Whatever it Takes!

> Son Ken (33) UC 91 - PSC 99 Listed 7/21 @ Baylor Dallas

>

[Guest guest]

My son has chronic rejection. He has also had episodes of acute

rejection.

Acute rejection generally means a 48-hour inpatient stay with steroid

blasts.

Chronic rejection means his immunosupressant baseline is set higher and

his levels are monitored more often. With kids the biggest concern is

that prolonged high levels of immunosupression increase the risk of

posttransplant lympoproliferative disorder. But I don't think PTLD is a

big worry for adults.

Pam

(mom to Quantell, 16, dx 1996, tx 2001, dx recurrent PSC with AIH

overlap 2006)