Guest guest Posted February 11, 2002 Report Share Posted February 11, 2002 I don't know if I can help you or not. My husband had spent 5 months in hospital. He had chronic pancreatitis, a massive ventral hernia, malnutrition and pancreatic insufficiency. It was a nightmare. He was well and one night he took an attack and that was just the start of everything. Apparently a gallstone blocked the bile duct and he went downhill from there. He went from 240 down to 155. After many surgeries he came home. He was well for approx. 8 months and then he started vomiting. Nothing would stay down. He spent more time in Emerg than I'd like to remember. He had constant diarrhea and vomiting. Not even water would stay down. After 1 1/2 years like this they finally decided to do something. He had been wasting away with inability to eat. He was constantly nauseated. He had been followed for quite some time with pseudocysts. He went on total parenteral nutrition. They finally decided to have a jejunostomy tube in place for feeding. Because of his surgeries they decided this would have to be through his ventral hernia. They repaired his massive ventral hernia and inserted a feeding jejunostomy tube through is small intestine and, of course, ends up in his jejuneum. Jim has been ill for approximately 6 years. He is 43 now. Since having the feeding tube in place life has been great. He still has his ups and downs but at least he gets his nutrition. He gained his weight back to 200 lbs. For the past six months he has been eating normally. Sometimes he just hooks up and takes in water if he feels pain but rarely. He is on Demerol every day, but he has settled down. His family doctor wanted to pull the tube, but Jim absolutely refuses. So every six months he just goes in and has a new tube inserted. This procedure is nothing. They stitch it in place so it doesn't fall out. He never has had any infection. I thank God for this procedure. For now it is his security blanket so to speak. If he wants to leave it in, so be it. Right now he is eating perfectly normal. If an attack comes on he backs off his food and takes it easy for a few days. The doctors had never seen a case like his. They didn't expect Jim to live but he fought back and today he is 100% improved. I always wonder what the long term effects of this will be. They say his pancreas is `shot` but he is a survivor. Hope this has helped you. If there is anything else I can do, please don't hesitate in asking. My sense of humour has carried me through all this and believe me it hasn't been easy being the wife. We now own two lazyboys, one in the bedroom and one in the living room. Ha! Bye for now Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2002 Report Share Posted February 11, 2002 Hello everybody.I am facing the placement of a jejunostomy feeding tube.Dr.Hawes MUSC recommended an endoscopic gastro-jejunostomy,which is done with help of an endoscope,with 2 tubings,one in stomachthe other longer one reaching the jejunum.My gastroenterologist does not want to place this because of problems withclotting and malpositioning,apparently he had bad experiences,He wants the surgeon to place a diredt Jejunostomy tubewhich requires a 4-5 inch incision and 2 days of hospital stay,so real surgery which I dont want.What kind of tubing have you had ,or anybody who has had this in the past.The surgical approach seems so drastic for a hopefully temporary condition.Any suggestions?The direct jejunostomy is apparently safer ,no clotting or kinking,tube is secured but requires the large incision,apparently the loop of bowel is brought up the abdominal wall. I am very anxious Birgit _________________________________________________________________ Send and receive Hotmail on your mobile device: http://mobile.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2002 Report Share Posted February 11, 2002 Hello Birgit. I had a direct jejunostomy tube which was inserted surgically. My jejunum(part of the small intestine) was attached to my adominal wall. In fact I do not have a feeding tube anymore and my jejunum is still attached to my abdominal wall. I had luck with the direct jejunostomy tube, but it came out after a few days. It was a very thin and small feeding tube. After it came out the surgeon didn't bother to replace it. Also, I had the jejunal tube which is inserted into your stomach and another tube protrudes down into your jejunum. I had more problems with this type of feeding tube. Yes, it did get clogged alot. Yes, it did back it's way out of me. It didn't want to stay in place. My body was rejecting it. The feeding tube site also kept getting infected. When it moved, it was very painful. My GI docs wanted to have a permanent feeding tube placed,but I did not want to have that done. birgit belcher birgitbelcher@...> wrote: Hello everybody.I am facing the placement of a jejunostomy feeding tube.Dr.Hawes MUSC recommended an endoscopic gastro-jejunostomy,which is done with help of an endoscope,with 2 tubings,one in stomachthe other longer one reaching the jejunum.My gastroenterologist does not want to place this because of problems withclotting and malpositioning,apparently he had bad experiences,He wants the surgeon to place a diredt Jejunostomy tubewhich requires a 4-5 inch incision and 2 days of hospital stay,so real surgery which I dont want.What kind of tubing have you had ,or anybody who has had this in the past.The surgical approach seems so drastic for a hopefully temporary condition.Any suggestions?The direct jejunostomy is apparently safer ,no clotting or kinking,tube is secured but requires the large incision,apparently the loop of bowel is brought up the abdominal wall. I am very anxious Birgit _________________________________________________________________ Send and receive Hotmail on your mobile device: http://mobile.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2002 Report Share Posted February 14, 2002 > > > Hello everybody.I am facing the placement of a jejunostomy feeding > tube. Hi Birgit. I had a jejunostomecty (sp?) back in 1997. The took a small part of my intestine and redirected my bile duct directly into the liver. The surgery was successful, but it never cured the chronic pancreatitis. If you have any questions about the surgery, I would be more than happy to answer them for you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2002 Report Share Posted February 14, 2002 Thanks for the note,.Your surgery was apparently different from what they have planned with me.It will be a endoscopically placed gastrostomy with a jejeunostomy tube inside of this which is reaching down to the jejunum.this is less of a surgical procedure butthey tend to get clogged.What were they feeding you? Jevity or Peptomen? We will see how it goes I am quite anxious about the whole procedure and artificial feedings that I am facing. Birgit > >Reply-To: pancreatitis >To: pancreatitis >Subject: Re: Jejunostomy feeding tube >Date: Thu, 14 Feb 2002 21:12:02 -0000 > > > > > > > > Hello everybody.I am facing the placement of a jejunostomy >feeding > > tube. > >Hi Birgit. I had a jejunostomecty (sp?) back in 1997. The took a >small part of my intestine and redirected my bile duct directly into >the liver. The surgery was successful, but it never cured the >chronic pancreatitis. If you have any questions about the surgery, I >would be more than happy to answer them for you. > > > _________________________________________________________________ Join the world’s largest e-mail service with MSN Hotmail. http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
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