Re: O2 levels and other questions?

[Guest guest]

Sharon

I had two instruments in Pulmonary Rehab. The most common one is an incentive spirometer.

Here is one at $6.95:

http://www.allegromedical.com/respiratory-therapy-c534/airlife-volumetric-incentive-spirometer-without-valve-4000ml-capacity-p190080.html

Another model at $7.95

http://www.allegromedical.com/respiratory-therapy-c534/voldyne-5000-volumetric-exerciser-5000ml-capacity-p174158.html

Then there is a inspiratory muscle trainer

http://www.medexsupply.com/respiratory-breathing-therapy-products-respiratory-miscellaneous-respironics-pflex-inspiratory-muscle-trainer-10-cs-x_pid-17494.html

I did find that trainer on ebay in individual units.

You may be able to find these items locally.

And there is an expiratory muscle trainer that I have not used and wouldn't unless suggested by doctor as I'm not familiar with it being used for PF and it does require some calibration I believe.

> > >> > > bruce,> > > thanks!> > > i looked on ebay, there are brands on there:> > > oled> > > nonin> > > nissei> > > and pulseox....> > >> > > at the bottom is a website i think which pays to be there and that> is> > > www.clinicalguard. com.au and has octivetech brand! up to 40% off.> > >> > > thanks for helping me with this. xx> > >> >>

[Guest guest]

Sher

Well, if she'd pay for my air ticket, I'd be glad to deliver her one

from the states....lol

> >

> > From: monique moniquekirkby@

> > Subject: O2 levels and other questions?

> > To: Breathe-Support

> > Date: Tuesday, September 30, 2008, 4:23 AM

> >

> >

> > hi guys, just a couple of questions as so newly diagnosed!

> >

> > are we supposed to have a certain level of oxygen to feel ok? and is

> > this worked out by one of those things you slip on your finger when

> you

> > also get your blood pressure checked at the hospital? is that oxygen

> > saturation or something, and how often should we check this etc?

> >

> > is it normal to have slight tingling in both my hands too, sortof

like

> > lack of blood circulation?

> >

> > and also, today my lungs have felt very sore, i feel like i have to

> > stretch my back out to almost stretch my lungs, does that sound

weird?

> > and i sometimes get sharp pains and also hurts a bit to breath in

> lately

> >

> > thanks for any help!

> >

> > regards monique

> >

>

[Guest guest]

Well gee whiz Bruce, that seems like an easy thing to do! I'd hate to see the bottom line cost for delivery of a $65 item however. lol

MamaSher, age 70. IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

O2 levels and other questions?> > To: Breathe-Support > > Date: Tuesday, September 30, 2008, 4:23 AM> >> >> > hi guys, just a couple of questions as so newly diagnosed!> >> > are we supposed to have a certain level of oxygen to feel ok? and is> > this worked out by one of those things you slip on your finger when> you> > also get your blood pressure checked at the hospital? is that oxygen> > saturation or something, and how often should we check this etc?> >> > is it normal to have slight tingling in both my hands too, sortoflike> > lack of blood circulation?> >> > and also, today my lungs have felt very sore, i feel like i have to> > stretch my back out to almost stretch my lungs, does that soundweird?> > and i sometimes get sharp pains and also hurts a bit to breath in> lately> >> > thanks for any help!> >> > regards monique> >>

[Guest guest]

Hi All. I have a question..how long did you or do youstay in Pulmonary Rehab? With insurance I pay forty a session and it is an amount that is too difficult for more then the six weeks I did. That was a year ago. BY the way MB I was 49 when I was dx ...now 52 I thought I was too young !!!!! NOW we know how truly unfair illness is. My heart goes out to those who just started to live their dreams and this horrendous challenge struck.

NSIPMarch 05land

Re: O2 levels and other questions?

Sharon

I had two instruments in Pulmonary Rehab. The most common one is an incentive spirometer.

Here is one at $6.95:

http://www.allegrom edical.com/ respiratory- therapy-c534/ airlife-volumetr ic-incentive- spirometer- without-valve- 4000ml-capacity- p190080.html

Another model at $7.95

http://www.allegrom edical.com/ respiratory- therapy-c534/ voldyne-5000- volumetric- exerciser- 5000ml-capacity- p174158.html

Then there is a inspiratory muscle trainer

http://www.medexsup ply.com/respirat ory-breathing- therapy-products -respiratory- miscellaneous- respironics- pflex-inspirator y-muscle- trainer-10- cs-x_pid- 17494.html

I did find that trainer on ebay in individual units.

You may be able to find these items locally.

And there is an expiratory muscle trainer that I have not used and wouldn't unless suggested by doctor as I'm not familiar with it being used for PF and it does require some calibration I believe.

> > >> > > bruce,> > > thanks!> > > i looked on ebay, there are brands on there:> > > oled> > > nonin> > > nissei> > > and

pulseox....> > >> > > at the bottom is a website i think which pays to be there and that> is> > > www.clinicalguard. com.au and has octivetech brand! up to 40% off.> > >> > > thanks for helping me with this. xx> > >> >>

[Guest guest]

My rehab suggested 40 sessions. I took a different approach though.

> > > >

> > > > bruce,

> > > > thanks!

> > > > i looked on ebay, there are brands on there:

> > > > oled

> > > > nonin

> > > > nissei

> > > > and pulseox....

> > > >

> > > > at the bottom is a website i think which pays to be there and

that

> > is

> > > > www.clinicalguard. com.au and has octivetech brand! up to 40%

off.

> > > >

> > > > thanks for helping me with this. xx

> > > >

> > >

> >

>

[Guest guest]

Sher

Actually cheaper than last time I looked. Depending on what airport I'm

flying into anywhere from $1100-2000, coach of course. The only time

I've been there was in 1980 and flew first class for business and ticket

was $4500.

> > >

> > > From: monique moniquekirkby@

> > > Subject: O2 levels and other questions?

> > > To: Breathe-Support

> > > Date: Tuesday, September 30, 2008, 4:23 AM

> > >

> > >

> > > hi guys, just a couple of questions as so newly diagnosed!

> > >

> > > are we supposed to have a certain level of oxygen to feel ok? and

is

> > > this worked out by one of those things you slip on your finger

when

> > you

> > > also get your blood pressure checked at the hospital? is that

oxygen

> > > saturation or something, and how often should we check this etc?

> > >

> > > is it normal to have slight tingling in both my hands too, sortof

> like

> > > lack of blood circulation?

> > >

> > > and also, today my lungs have felt very sore, i feel like i have

to

> > > stretch my back out to almost stretch my lungs, does that sound

> weird?

> > > and i sometimes get sharp pains and also hurts a bit to breath in

> > lately

> > >

> > > thanks for any help!

> > >

> > > regards monique

> > >

> >

>

[Guest guest]

thanks bruce i knew i could count on you

sharon p ph 2008

Subject: Re: O2 levels and other questions?To: Breathe-Support Date: Thursday, October 2, 2008, 11:22 AM

Sharon

I had two instruments in Pulmonary Rehab. The most common one is an incentive spirometer.

Here is one at $6.95:

http://www.allegrom edical.com/ respiratory- therapy-c534/ airlife-volumetr ic-incentive- spirometer- without-valve- 4000ml-capacity- p190080.html

Another model at $7.95

http://www.allegrom edical.com/ respiratory- therapy-c534/ voldyne-5000- volumetric- exerciser- 5000ml-capacity- p174158.html

Then there is a inspiratory muscle trainer

http://www.medexsup ply.com/respirat ory-breathing- therapy-products -respiratory- miscellaneous- respironics- pflex-inspirator y-muscle- trainer-10- cs-x_pid- 17494.html

I did find that trainer on ebay in individual units.

You may be able to find these items locally.

And there is an expiratory muscle trainer that I have not used and wouldn't unless suggested by doctor as I'm not familiar with it being used for PF and it does require some calibration I believe.

> > >> > > bruce,> > > thanks!> > > i looked on ebay, there are brands on there:> > > oled> > > nonin> > > nissei> > > and

pulseox....> > >> > > at the bottom is a website i think which pays to be there and that> is> > > www.clinicalguard. com.au and has octivetech brand! up to 40% off.> > >> > > thanks for helping me with this. xx> > >> >>

[Guest guest]

Hi ,

My pulmonary rehab program was 3 hours, 3 times a week for 8 weeks. The insurance I had at the time paid for everything with a $20 co-pay for each calender month I was enrolled. At the time I thought it was an odd way to do it but Aetna sometimes marches to a different drummer....lol I realize it can get expensive without good insurance coverage but I'd encourage you to do as much of it as you can for as long as you can. The impact of rehab on my recovery was IMMENSE!! As a matter of fact now that my Medicare is kicking in shortly I am going to ask my pulmo if he can write me an order to go through rehab again. I know Duke has an awesome rehab program and it could only do me good.

Beth-Moderator

Fibrotic NSIP 06/06 UCTD 06/08

Re: O2 levels and other questions?

Sharon

I had two instruments in Pulmonary Rehab. The most common one is an incentive spirometer.

Here is one at $6.95:

http://www.allegrom edical.com/ respiratory- therapy-c534/ airlife-volumetr ic-incentive- spirometer- without-valve- 4000ml-capacity- p190080.html

Another model at $7.95

http://www.allegrom edical.com/ respiratory- therapy-c534/ voldyne-5000- volumetric- exerciser- 5000ml-capacity- p174158.html

Then there is a inspiratory muscle trainer

http://www.medexsup ply.com/respirat ory-breathing- therapy-products -respiratory- miscellaneous- respironics- pflex-inspirator y-muscle- trainer-10- cs-x_pid- 17494.html

I did find that trainer on ebay in individual units.

You may be able to find these items locally.

And there is an expiratory muscle trainer that I have not used and wouldn't unless suggested by doctor as I'm not familiar with it being used for PF and it does require some calibration I believe.

> > >> > > bruce,> > > thanks!> > > i looked on ebay, there are brands on there:> > > oled> > > nonin> > > nissei> > > and

pulseox....> > >> > > at the bottom is a website i think which pays to be there and that> is> > > www.clinicalguard. com.au and has octivetech brand! up to 40% off.> > >> > > thanks for helping me with this. xx> > >> >>

[Guest guest]

...just in passing. Wow, $40/session for rehab is horrible and with insurance. I paid $5 copay when I was in rehab. To my knowledge, rehab is usually Rx for so many sessions/months or whatever and then re-evaluated. Depends a lot on what you are going for and/or what you are trying to achieve.

I could not have gone to rehab had it cost me that much.

You were dx young. Heck, you're still young. I turned 70 in August and I'm still

wondering where the years went.

MamaSher, age 70. IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Re: O2 levels and other questions?

Sharon

I had two instruments in Pulmonary Rehab. The most common one is an incentive spirometer.

Here is one at $6.95:

http://www.allegrom edical.com/ respiratory- therapy-c534/ airlife-volumetr ic-incentive- spirometer- without-valve- 4000ml-capacity- p190080.html

Another model at $7.95

http://www.allegrom edical.com/ respiratory- therapy-c534/ voldyne-5000- volumetric- exerciser- 5000ml-capacity- p174158.html

Then there is a inspiratory muscle trainer

http://www.medexsup ply.com/respirat ory-breathing- therapy-products -respiratory- miscellaneous- respironics- pflex-inspirator y-muscle- trainer-10- cs-x_pid- 17494.html

I did find that trainer on ebay in individual units.

You may be able to find these items locally.

And there is an expiratory muscle trainer that I have not used and wouldn't unless suggested by doctor as I'm not familiar with it being used for PF and it does require some calibration I believe.

> > >> > > bruce,> > > thanks!> > > i looked on ebay, there are brands on there:> > > oled> > > nonin> > > nissei> > > and pulseox....> > >> > > at the bottom is a website i think which pays to be there and that> is> > > www.clinicalguard. com.au and has octivetech brand! up to 40% off.> > >> > > thanks for helping me with this. xx> > >> >>

[Guest guest]

I do regret I don't travel like we used to. Airline travel fell by the wayside some time ago but we loved Amtrak. Even the bedrooms are to small for comfort tho'. What with O2 stuff to drag along.

MamaSher, age 70. IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

O2 levels and other questions?> > > To: Breathe-Support > > > Date: Tuesday, September 30, 2008, 4:23 AM> > >> > >> > > hi guys, just a couple of questions as so newly diagnosed!> > >> > > are we supposed to have a certain level of oxygen to feel ok? andis> > > this worked out by one of those things you slip on your fingerwhen> > you> > > also get your blood pressure checked at the hospital? is thatoxygen> > > saturation or something, and how often should we check this etc?> > >> > > is it normal to have slight tingling in both my hands too, sortof> like> > > lack of blood circulation?> > >> > > and also, today my lungs have felt very sore, i feel like i haveto> > > stretch my back out to almost stretch my lungs, does that sound> weird?> > > and i sometimes get sharp pains and also hurts a bit to breath in> > lately> > >> > > thanks for any help!> > >> > > regards monique> > >> >>

[Guest guest]

Thanks Beth ,Your response was helpful and needed . I think it's time I ask insurance if i can go back for treatment. I hope your visit is a blast and this last part of a stressfull job is as smooth as possible. NSIPMarch 05land

Re: O2 levels and other questions?

Sharon

I had two instruments in Pulmonary Rehab. The most common one is an incentive spirometer.

Here is one at $6.95:

http://www.allegrom edical.com/ respiratory- therapy-c534/ airlife-volumetr ic-incentive- spirometer- without-valve- 4000ml-capacity- p190080.html

Another model at $7.95

http://www.allegrom edical.com/ respiratory- therapy-c534/ voldyne-5000- volumetric- exerciser- 5000ml-capacity- p174158.html

Then there is a inspiratory muscle trainer

http://www.medexsup ply.com/respirat ory-breathing- therapy-products -respiratory- miscellaneous- respironics- pflex-inspirator y-muscle- trainer-10- cs-x_pid- 17494.html

I did find that trainer on ebay in individual units.

You may be able to find these items locally.

And there is an expiratory muscle trainer that I have not used and wouldn't unless suggested by doctor as I'm not familiar with it being used for PF and it does require some calibration I believe.

> > >> > > bruce,> > > thanks!> > > i looked on ebay, there are brands on there:> > > oled> > > nonin> > > nissei> > > and

pulseox....> > >> > > at the bottom is a website i think which pays to be there and that> is> > > www.clinicalguard. com.au and has octivetech brand! up to 40% off.> > >> > > thanks for helping me with this. xx> > >> >>

[Guest guest]

,

Most insurance will pay for you to go through cardiac or pulmonary rehab once every 12 months if your doctor deems it necessary. I can't imagine a doctor saying no if you requested to go back to rehab!

Beth-Moderator

Fibrotic NSIP 06/06 UCTD 06/08

Re: O2 levels and other questions?

Sharon

I had two instruments in Pulmonary Rehab. The most common one is an incentive spirometer.

Here is one at $6.95:

http://www.allegrom edical.com/ respiratory- therapy-c534/ airlife-volumetr ic-incentive- spirometer- without-valve- 4000ml-capacity- p190080.html

Another model at $7.95

http://www.allegrom edical.com/ respiratory- therapy-c534/ voldyne-5000- volumetric- exerciser- 5000ml-capacity- p174158.html

Then there is a inspiratory muscle trainer

http://www.medexsup ply.com/respirat ory-breathing- therapy-products -respiratory- miscellaneous- respironics- pflex-inspirator y-muscle- trainer-10- cs-x_pid- 17494.html

I did find that trainer on ebay in individual units.

You may be able to find these items locally.

And there is an expiratory muscle trainer that I have not used and wouldn't unless suggested by doctor as I'm not familiar with it being used for PF and it does require some calibration I believe.

> > >> > > bruce,> > > thanks!> > > i looked on ebay, there are brands on there:> > > oled> > > nonin> > > nissei> > > and

pulseox....> > >> > > at the bottom is a website i think which pays to be there and that> is> > > www.clinicalguard. com.au and has octivetech brand! up to 40% off.> > >> > > thanks for helping me with this. xx> > >> >>

[Guest guest]

And if a doctor says no, you tell him yes. I'm amazed its not automatic,

but I had to ask to get my referral to respiratory rehab. Left to wait

for instructions from my original doctor, I would not be using a

treadmill or incentive spirometer or anything else. Now, I couldn't do

some of the rehab things because of other conditions, so we did the ones

I could do.

When I reach the stage I can't treadmill or get out and walk, I'll at

least set a path in my apartment and slowly do some laps up and down or

around it. There is some level that nearly all of us can do.

> > > >

> > > > bruce,

> > > > thanks!

> > > > i looked on ebay, there are brands on there:

> > > > oled

> > > > nonin

> > > > nissei

> > > > and pulseox....

> > > >

> > > > at the bottom is a website i think which pays to be there and

that

> > is

> > > > www.clinicalguard. com.au and has octivetech brand! up to 40%

off.

> > > >

> > > > thanks for helping me with this. xx

> > > >

> > >

> >

>

[Guest guest]

thankyou bruce!

i will look at those, but i just also saw one on ebay that i would love

you to see if its ok? please?

oled oximeter

pulseox sp02

fda: 510k number KO 70371

artg number: 135574

ce, tuv, fda, tga approved

$165 aud.

thanks again bruce!

[Guest guest]

thanks once again bruce!

i have just sent a question to that cheaper one on ebay, the one that

you said people over there get too, to see if it comes with a warranty

as it didnt say. the other dearer one has a 2year guarantee, so hmmmm,

see what they say and i will make a decision! your right about if

something goes wrong... i may be better getting the one from australia,

the dearer one with 2yr guarantee, so much easier if something goes

wrong!

it also comes in pink! ha!!!

i love pink,, and besides, if its for sickness, why not put a groovy

spin on it, so not so boring when i will be looking at it everyday!!!

xx

[Guest guest]

Reality is that if its delivered in good condition the warranty may not

be critical on them, especially cheaper models. ly, unless there is

a problem when delivered, most of them are going to blame any future

problems on you. And, they'll probably be within reason as they don't

know how many times you've dropped it. I know I've sure dropped mine a

bunch.

And how did I know the groovy pink got your attention? It does look

stylish. I want a stylish one now...not pink though.

>

> thanks once again bruce!

> i have just sent a question to that cheaper one on ebay, the one that

> you said people over there get too, to see if it comes with a warranty

> as it didnt say. the other dearer one has a 2year guarantee, so hmmmm,

> see what they say and i will make a decision! your right about if

> something goes wrong... i may be better getting the one from

australia,

> the dearer one with 2yr guarantee, so much easier if something goes

> wrong!

> it also comes in pink! ha!!!

> i love pink,, and besides, if its for sickness, why not put a groovy

> spin on it, so not so boring when i will be looking at it everyday!!!

>

> xx

>