Guest guest Posted October 3, 2008 Report Share Posted October 3, 2008 , I do understand exactly what your saying. I just honestly love this group. I know somejust can't understand but I have been here long enough and have read about lives and personalities. I have felt the pain and felt the sorrows THEN I have enjoyed the happy, loving times.That is what makes up a family "Air Family" And oh to meet face to face is AWESOME.I do hope the Down Under folks can meet.. have lunch and hugs... Can't beat that.Love you. Love & Prayers, PeggyFlorida, IPF/UIP 2004"I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly." <image002.gif>My thoughts have been prompted by Sher’s words in response to looking at the Taste of Tassie Photos..Feeling Close on This Forum:Cyberspace & this Group has given me the chance to reach out & find others in the same situation as myself. In local media outlets, there are touching, heartfelt articles, stories, awareness & research funding campaigns about Breast Cancer, Depression, Heart Disease, Motor Neurone Disease, Multiple Sclerosis… all sorts of things & all very well & as it should be, BUT…. NEVER about OUR condition!What makes it even worse is that whenever LUNGS are mentioned it’s ALWAYS a negative campaign with lots of ‘blame’ attached to people causing their own illnesses! At the moment we are subjected to the grossest images of smokers with various forms of cancers including the absolutely most DISGUSTING pictures of Mouth Cancer plastered across our TV screens (Right on Dinner Time!)It never fails to make me feel marginalised!We really only have each other to turn to… & in Australia that means precious few (which of course is great in some ways!)It IS important to feel emotionally close to each other… & sharing our lives as well as our illness is a great way of doing just that. Somehow it demonstrates that we are more than our illness… & we can put the effect of the condition firmly in the context of each of our lives. We’re here for the Long Haul & that means talking about our everyday lives as much as our illness.Not only that we can ‘feel ‘ each other’s personality in our humour, venting, rages, tears, sorrows, stories, & general seemingly ‘about nothing’ messages….it’s AlWAYS about something!...... which is great since most of us are never likely to meet each other in the flesh!Love you Air Family..couldn’t DO without you!Cheers, in Oz <image003.jpg>IPF: Fibrotic NSIP/UIP ??Reynauds' May 2007 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2008 Report Share Posted October 3, 2008 Well said as always. This group is so real. We are so lucky to have the internet and the ability to reach others. Oh, I so wish I could meet you in the flesh. But, I've met the real you and shared in all aspects of our thoughts and lives. True friends are true friends however we meet them and wherever they are. Ironic that this horrible disease has given me more friends than ever in my life and more than I ever would have found without it. > > > > My thoughts have been prompted by Sher's words in response to looking at > the Taste of Tassie Photos.. > > Feeling Close on This Forum: > > Cyberspace & this Group has given me the chance to reach out & find others > in the same situation as myself. In local media outlets, there are > touching, heartfelt articles, stories, awareness & research funding > campaigns about Breast Cancer, Depression, Heart Disease, Motor Neurone > Disease, Multiple Sclerosis. all sorts of things & all very well & as it > should be, BUT.. NEVER about OUR condition! > > What makes it even worse is that whenever LUNGS are mentioned it's ALWAYS a > negative campaign with lots of 'blame' attached to people causing their own > illnesses! At the moment we are subjected to the grossest images of smokers > with various forms of cancers including the absolutely most DISGUSTING > pictures of Mouth Cancer plastered across our TV screens (Right on Dinner > Time!) > > It never fails to make me feel marginalised! > > We really only have each other to turn to. & in Australia that means precious > few (which of course is great in some ways!) > > It IS important to feel emotionally close to each other. & sharing our lives > as well as our illness is a great way of doing just that. Somehow it > demonstrates that we are more than our illness. & we can put the effect of > the condition firmly in the context of each of our lives. We're here for the > Long Haul & that means talking about our everyday lives as much as our > illness. > > Not only that we can 'feel ' each other's personality in our humour, > venting, rages, tears, sorrows, stories, & general seemingly 'about nothing' > messages..it's AlWAYS about something!...... which is great since most of us > are never likely to meet each other in the flesh! > > Love you Air Family..couldn't DO without you! > > Cheers, > > in Oz > > IPF: Fibrotic NSIP/UIP ?? > Reynauds' > May 2007 > Quote Link to comment Share on other sites More sharing options...
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