New to group, few questions about next steps

[Guest guest]

I was diagnosed with PSC on Friday Dec 29th, 2006. On the day I was

diganosed, I had a stent placed and promptly developed pancreatitis. I

was in the hospital for 6 days. The stent was replaced on 2/19/07 and

I went home after the procedure. At home, I developed symptoms of

pancreatitis again and went back to the hospital for another 2 days. A

liver biopsy was done on 2/14/07, with staging between 0 and 1.

I am currently taking Urso, and went back to the gastro doctor this

week. I was originally led to believe that after the second stent

placement, it would be taken out and not replaced. After the last

consultation, my doctor is saying the stents will be replaced every 4

months, for the foreseeable future. I would like to get a second

opinion, but am unsure what my next step should be. Is the Mayo clinic

someplace I should pursue, or is there another hospital/group I should

consult?

This has been a bit overwhelming. Thanks in advance for any advice.

Tony Winkler

[Guest guest]

They do a very good job at the Mayo Clinic and getting a second

opinion from them is a great idea.

>

> I was diagnosed with PSC on Friday Dec 29th, 2006. On the day I

was

> diganosed, I had a stent placed and promptly developed

pancreatitis. I

> was in the hospital for 6 days. The stent was replaced on 2/19/07

and

> I went home after the procedure. At home, I developed symptoms of

> pancreatitis again and went back to the hospital for another 2

days. A

> liver biopsy was done on 2/14/07, with staging between 0 and 1.

>

> I am currently taking Urso, and went back to the gastro doctor this

> week. I was originally led to believe that after the second stent

> placement, it would be taken out and not replaced. After the last

> consultation, my doctor is saying the stents will be replaced every

4

> months, for the foreseeable future. I would like to get a second

> opinion, but am unsure what my next step should be. Is the Mayo

clinic

> someplace I should pursue, or is there another hospital/group I

should

> consult?

>

> This has been a bit overwhelming. Thanks in advance for any advice.

>

> Tony Winkler

>