Re: Poll results for Diagnosed Conditions

[Guest guest]

It seems to be fairly well spread in diagnosed conditions from 1 to 8

conditions. Perhaps I misinterpreted my own poll but I certainly came

out the oddball with 19.

>

>

> The following Breathe-Support poll is now closed. Here are the

> final results:

>

>

> POLL QUESTION: How many diagnosed medical conditions do you have? You

may have more than one condition affecting the same body part so count

them all or multiple body parts affected by a single condition which

would be just one. Just use your best guess in defining condition.

>

> CHOICES AND RESULTS

> - 3, 4 votes, 14.29%

> - 4, 3 votes, 10.71%

> - 5, 4 votes, 14.29%

> - 6, 5 votes, 17.86%

> - 7, 2 votes, 7.14%

> - 8, 1 votes, 3.57%

> - 9, 0 votes, 0.00%

> - 10, 0 votes, 0.00%

> - 11, 0 votes, 0.00%

> - 12, 0 votes, 0.00%

> - 13, 0 votes, 0.00%

> - 14, 0 votes, 0.00%

> - 15, 0 votes, 0.00%

> - 16, 0 votes, 0.00%

> - 17, 0 votes, 0.00%

> - 18, 0 votes, 0.00%

> - 19, 1 votes, 3.57%

> - 20 or more, 0 votes, 0.00%

> - 1, 2 votes, 7.14%

> - 2, 6 votes, 21.43%

>

>

>

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> http://groups.yahoo.com/group/Breathe-Support

>

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http://help.yahoo.com/l/us/yahoo/groups/original/members/web/index.html

>

[Guest guest]

bruce ,can I ask ?you have 19 dx conditions?what are they all?are you counting your split personality's ? LOLIt seems to be fairly well spread in diagnosed conditions from 1 to 8conditions. Perhaps I misinterpreted my own poll but I certainly cameout the oddball with 19.>>> The following Breathe-Support poll is now closed. Here are the> final results:>>> POLL QUESTION: How many diagnosed medical conditions do you have? Youmay have more than one condition affecting the same body part so countthem all or multiple body parts affected by a single condition whichwould be just one. Just use your best guess in defining condition.>> CHOICES AND RESULTS> - 3, 4 votes, 14.29%> - 4, 3 votes, 10.71%> - 5, 4 votes, 14.29%> - 6, 5 votes, 17.86%> - 7, 2 votes, 7.14%> - 8, 1 votes, 3.57%> - 9, 0 votes, 0.00%> - 10, 0 votes, 0.00%> - 11, 0 votes, 0.00%> - 12, 0 votes, 0.00%> - 13, 0 votes, 0.00%> - 14, 0 votes, 0.00%> - 15, 0 votes, 0.00%> - 16, 0 votes, 0.00%> - 17, 0 votes, 0.00%> - 18, 0 votes, 0.00%> - 19, 1 votes, 3.57%> - 20 or more, 0 votes, 0.00%> - 1, 2 votes, 7.14%> - 2, 6 votes, 21.43%>>>> For more information about this group, please visit> http://groups.yahoo.com/group/Breathe-Support>> For help with Yahoo! Groups, please visit>http://help.yahoo.com/l/us/yahoo/groups/original/members/web/index.html> Brett Bowserbrett@...

[Guest guest]

Dearest Bruce, I have just turned my puter on and I just am so thrilled to see a post from you..I was just in prayer and you were on my heart as usual. How goes it?? Are you up and around ?Please don't tell me your working.. How is the Princess ? And Misty ? OH I AM SO HAPPY.. Love & Prayers, PeggyFlorida,  IPF/UIP 2004"I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly."  bruce ,can I ask ?you have 19 dx conditions?what are they all?are you counting your split personality's ? LOLIt seems to be fairly well spread in diagnosed conditions from 1 to 8conditions. Perhaps I misinterpreted my own poll but I certainly cameout the oddball with 19.>>> The following Breathe-Support poll is now closed. Here are the> final results:>>> POLL QUESTION: How many diagnosed medical conditions do you have? Youmay have more than one condition affecting the same body part so countthem all or multiple body parts affected by a single condition whichwould be just one. Just use your best guess in defining condition.>> CHOICES AND RESULTS> - 3, 4 votes, 14.29%> - 4, 3 votes, 10.71%> - 5, 4 votes, 14.29%> - 6, 5 votes, 17.86%> - 7, 2 votes, 7.14%> - 8, 1 votes, 3.57%> - 9, 0 votes, 0.00%> - 10, 0 votes, 0.00%> - 11, 0 votes, 0.00%> - 12, 0 votes, 0.00%> - 13, 0 votes, 0.00%> - 14, 0 votes, 0.00%> - 15, 0 votes, 0.00%> - 16, 0 votes, 0.00%> - 17, 0 votes, 0.00%> - 18, 0 votes, 0.00%> - 19, 1 votes, 3.57%> - 20 or more, 0 votes, 0.00%> - 1, 2 votes, 7.14%> - 2, 6 votes, 21.43%>>>> For more information about this group, please visit> http://groups.yahoo.com/group/Breathe-Support>> For help with Yahoo! Groups, please visit>http://help.yahoo.com/l/us/yahoo/groups/original/members/web/index.html>Brett Bowserbrett (AT) vectordist (DOT) com

[Guest guest]

Brett

More important than my 19 is how are you? If thats what it took to

get to see a post from you it was worth it.

Ok, trying to think-I'll just group by area or doctor:

Pulmonary-Usual Interstitial Pneumonitis.

Rheumatology-Undifferentiated Connective Tissue Disease or

Polymyositis. Debate on what is still going on. Reason for belief of

autoimmune include history of GERD with a patulous esophagus on chest

CT scan, elevated ESR, CRP, CK, aldolase and ANA along with an

atypical chest CT scan. Current Rheumatologist just referred to

another for an additional opinion. Also referred to an additional

neurologist specializing in autoimmune related issues.

Neurological-Peripheral Neuropathy with Restless Limbs. Also, balance

and gait issues. Sleep Disorder.

Oncology-Swollen Lymph nodes. Just tested also for parathyroid cancer

and appears negative. Visit scheduled at urge of rheumatologist for

testing for Myeloma. Also, pre-cancerous tumor removed from colon in

2005, no recurrence.

Gastroenterology-Severe GERD/Acid Reflux. Damaged and weak lower

esophagus sphincter. Globus/Tight upper sphincter (swallowing

problems).

ENT-Hearing loss and tinnitus, partly from previous Tympanoplasty

with Mastoidectomy for removal of cholesteotoma. No recurrance of the

cholesteotoma to date. Hay Fever, Chronic Rhinitis, Allergies, Sinus

Problems.

Ophthalmology-Just can't see, but nothing serious. Extreme

nearsightedness and astigmatism. Developing cataracts but not to

point of surgery.

Nephrologist-Renal Insufficiency (+/- 50%). Elevated parathyroid.

Vitamin D insufficiency.

Dermatologist-Recurring problem with skin breakouts and bumps of

unknown cause. Possible tests for Sarcoid.

Other-Hypothyroidism

Psychiatric-(No don't have multiple personality but once was in a

group with a very nice girl who did-she had gotten it down from an

identified 99 with names to only 2 and she was able to manage the one

that still wouldn't go away. Very hard to imagine that illness).

Depression, Anxiety, Panic Disorder, Social Anxiety, Obsessive

Compulsive Personality Disorder.

I'm not sure how that all adds up except it adds up to 16 doctors

with the latest two referrals. Have no idea how many of these things

have a connection. I might make a great study after I'm dead if I end

up donating my body to science. You see the list and its staggering

but the fact is I'm feeling good and I'm happy and I'm enjoying life.

The conditions which can be managed, I'm managing. Other conditions

are still being investigated but I'm not changing any part of my life

while the doctors try to figure it all out. Mainly I'm watching my

lungs and determined that everything else is going to outlast them.

Actually PF makes parts easier as I don't worry about the kidneys

because we do believe they'll outlast the lungs. If I was going to

live another 20 years then it would be a different story. Last

comments from my nephrologist last time was walking over and

asking " Are you happy? " Yes. " Are you having fun? " Yes. Then thats

all that matters. Gastroenterologist is basically that he's not going

to do anything inside my esophagus unless its emergency basis as so

much has already been done (5 upper endoscopies, one motility study)

and take 80 mg of Nexium a day, take very small dose of Valium with

meals if needed for the Globus, and live). Get another colonoscopy in

2010 (I've had 4). Swollen lymph nodes being rechecked with new CT in

October. Biopsy only if they grow more.

I guess I feel much better than I should but I'm not stopping that.

I'm not living life on the basis of what might happen in the future.

I go to a lot of doctors but I do not let scheduling them interfere

with scheduling pleasure or travel. I wasn't travelling and it was

too hot to get out so I went 12 times in August and got some out of

the way. I'm taking care of myself and enjoying life. I'm not in

denial but I'm just not going to spend my time thinking of things I

can't control. I'm able to do all this because I have the world's

greatest mental health counselor. She makes sure I stay on track.

Yes, she gives me homework assignments. lol. Also, I have all my

friends here on the forum always around to talk to. Getting a

terminal disease isn't my way of choice to make friends but it works.

I laugh. I enjoy. I don't smile for pictures well, but I smile a lot

inside.

> > >

> > >

> > > The following Breathe-Support poll is now closed. Here are the

> > > final results:

> > >

> > >

> > > POLL QUESTION: How many diagnosed medical conditions do you

have?

> > You

> > may have more than one condition affecting the same body part so

count

> > them all or multiple body parts affected by a single condition

which

> > would be just one. Just use your best guess in defining condition.

> > >

> > > CHOICES AND RESULTS

> > > - 3, 4 votes, 14.29%

> > > - 4, 3 votes, 10.71%

> > > - 5, 4 votes, 14.29%

> > > - 6, 5 votes, 17.86%

> > > - 7, 2 votes, 7.14%

> > > - 8, 1 votes, 3.57%

> > > - 9, 0 votes, 0.00%

> > > - 10, 0 votes, 0.00%

> > > - 11, 0 votes, 0.00%

> > > - 12, 0 votes, 0.00%

> > > - 13, 0 votes, 0.00%

> > > - 14, 0 votes, 0.00%

> > > - 15, 0 votes, 0.00%

> > > - 16, 0 votes, 0.00%

> > > - 17, 0 votes, 0.00%

> > > - 18, 0 votes, 0.00%

> > > - 19, 1 votes, 3.57%

> > > - 20 or more, 0 votes, 0.00%

> > > - 1, 2 votes, 7.14%

> > > - 2, 6 votes, 21.43%

> > >

> > >

> > >

> > > For more information about this group, please visit

> > > http://groups.yahoo.com/group/Breathe-Support

> > >

> > > For help with Yahoo! Groups, please visit

> > >

> > http://help.yahoo.com/l/us/yahoo/groups/original/members/web/

> > index.html

> > >

> >

> >

> >

>

> Brett Bowser

> brett@...

>

[Guest guest]

I miss you too!, Sher Dearest Bruce, I have just turned my puter on and I just am so thrilled to see a post from you..I was just in prayer and you were on my heart as usual. How goes it?? Are you up and around ?Please don't tell me your working.. How is the Princess ? And Misty ? OH I AM SO HAPPY.. Love & Prayers, PeggyFlorida, IPF/UIP 2004"I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly." <pastedGraphic.tiff> bruce ,can I ask ?you have 19 dx conditions?what are they all?are you counting your split personality's ? LOLIt seems to be fairly well spread in diagnosed conditions from 1 to 8conditions. Perhaps I misinterpreted my own poll but I certainly cameout the oddball with 19.>>> The following Breathe-Support poll is now closed. Here are the> final results:>>> POLL QUESTION: How many diagnosed medical conditions do you have? Youmay have more than one condition affecting the same body part so countthem all or multiple body parts affected by a single condition whichwould be just one. Just use your best guess in defining condition.>> CHOICES AND RESULTS> - 3, 4 votes, 14.29%> - 4, 3 votes, 10.71%> - 5, 4 votes, 14.29%> - 6, 5 votes, 17.86%> - 7, 2 votes, 7.14%> - 8, 1 votes, 3.57%> - 9, 0 votes, 0.00%> - 10, 0 votes, 0.00%> - 11, 0 votes, 0.00%> - 12, 0 votes, 0.00%> - 13, 0 votes, 0.00%> - 14, 0 votes, 0.00%> - 15, 0 votes, 0.00%> - 16, 0 votes, 0.00%> - 17, 0 votes, 0.00%> - 18, 0 votes, 0.00%> - 19, 1 votes, 3.57%> - 20 or more, 0 votes, 0.00%> - 1, 2 votes, 7.14%> - 2, 6 votes, 21.43%>>>> For more information about this group, please visit> http://groups.yahoo.com/group/Breathe-Support>> For help with Yahoo! Groups, please visit>http://help.yahoo.com/l/us/yahoo/groups/original/members/web/index.html>Brett Bowserbrett (AT) vectordist (DOT) com Brett Bowserbrett@...