Re: To Joy Kilgore - re: memory and stories

[Guest guest]

In a message dated 2/14/02 6:18:42 PM US Eastern Standard Time,

jkilgore@... writes:

I have really been feeling lousy and have been in bed mostly, plus I really

have been having a hard time remembering and focusing. Could you please tell

me your story of CP and it's progression?

Joy,

I know exactly what you mean about focusing. I have a notebook by my computer

so I can take notes when I read the post. Always feel free to ask any

question and ask it again. You may also want to visit the PAI home page,

www.pancassociation.org and read many other stories. Have you sent your story

in yet?

Take care,

Karyn

KarynWms@... " >Karyn , RN/Founder/President

http://www.pancassociation.org " >Pancreatitis Association International

Phone 1- /

[Guest guest]

Karyn, Everything seems so overwhelming. There are so many battles to fight and

all of this while you are fighting pain, nausea and just generally tired. Do

you have anxiety? Sorry it takes so long to respond, but I think I am really

having major trouble with this disease. I can't get in to see a GI, or at least

the one my internal medicine doctor referred me to, he won't take my insurance.

My doc is trying, but he doesn't know enough about this " thing " to really help.

Although, he guessed and put me on Kutrase, which definitely helped. He has

taken me up to Vicodin. But I am having to take it every 4 hours. I don't know

how long it will be before I can get in to see a GI at Beaumont Army

hospital ( my husband is retired marine). Gosh, I keep wondering what I did or

didn't do to make this happen. Is it possible to have acute attacks from about

the age of 5-8 yrs old. Then it resurface from 11-15 yrs old. With a few

attacks between 25-46 yrs old. Then at 46 it goes chronic? I have always had

nausea, pain, but I was diagnosed with ulcers. Of course this started in the

early 60s'. I remember when my Mother died in 1997 that I had a " horrible "

attack and I really didn't even put it together with the same pain as

pancreatitis until last week. I just chalked it up to " stress " and ulcers. But

it was always weird how the " ulcers " went away for years and came back. I know

I am rambling, and I thank all of you for being here. I have been trying so

hard to explain how I feel to my sister and she try's to understand, but I don't

think she really can grasp the whole horrible reality. I have a GYN appt. next

week. Then I have another appt. 03/04 with the internal medicine. Then on

03/14 I have an appt. with my PCP at Beaumont, hopefully, to get referred to a

GI there. DAMN THIS THING.! I guess I had better go. Geez, I am soooooo

frustrated.

Thanks again,

Joy

Re: To Joy Kilgore - re: memory and stories

In a message dated 2/14/02 6:18:42 PM US Eastern Standard Time,

jkilgore@... writes:

I have really been feeling lousy and have been in bed mostly, plus I really

have been having a hard time remembering and focusing. Could you please tell

me your story of CP and it's progression?

Joy,

I know exactly what you mean about focusing. I have a notebook by my computer

so I can take notes when I read the post. Always feel free to ask any

question and ask it again. You may also want to visit the PAI home page,

www.pancassociation.org and read many other stories. Have you sent your story

in yet?

Take care,

Karyn

KarynWms@... " >Karyn , RN/Founder/President

http://www.pancassociation.org " >Pancreatitis Association

International

Phone 1- /

[Guest guest]

Joy,

I can sympathize with you as I have trouble getting to the right Dr. And now I

found one in MN< who wrote to me and told he he thinks he can help. This is the

most encouraging news I have received since my Whipple in 94. Now I got to get

my PCP and HMO to agaree, as I sure will be a fihjt, as they don't like to refer

out of area. So hang in there---

and hopefully on of your up coming Dr. apt. will help.

Godd wishes and your in my prayers.

Louie in WV Re: To Joy Kilgore - re: memory and stories

In a message dated 2/14/02 6:18:42 PM US Eastern Standard Time,

jkilgore@... writes:

I have really been feeling lousy and have been in bed mostly, plus I really

have been having a hard time remembering and focusing. Could you please tell

me your story of CP and it's progression?

Joy,

I know exactly what you mean about focusing. I have a notebook by my

computer

so I can take notes when I read the post. Always feel free to ask any

question and ask it again. You may also want to visit the PAI home page,

www.pancassociation.org and read many other stories. Have you sent your

story

in yet?

Take care,

Karyn

KarynWms@... " >Karyn , RN/Founder/President

http://www.pancassociation.org " >Pancreatitis Association

International

Phone 1- /

[Guest guest]

Thank you Ed. I am beginning to get it. Without this place with all you

wonderful people, I think I would go crazy.

I will say a BUNCH of prayers for you that you have really found help. To bad

I'm not in Minnesota, I'm in El Paso, TX.

You think your doc has a twin here? Ha!Ha!

Joy

Re: To Joy Kilgore - re: memory and stories

In a message dated 2/14/02 6:18:42 PM US Eastern Standard Time,

jkilgore@... writes:

I have really been feeling lousy and have been in bed mostly, plus I

really

have been having a hard time remembering and focusing. Could you please

tell

me your story of CP and it's progression?

Joy,

I know exactly what you mean about focusing. I have a notebook by my

computer

so I can take notes when I read the post. Always feel free to ask any

question and ask it again. You may also want to visit the PAI home page,

www.pancassociation.org and read many other stories. Have you sent your

story

in yet?

Take care,

Karyn

KarynWms@... " >Karyn , RN/Founder/President

http://www.pancassociation.org " >Pancreatitis Association

International

Phone 1- /