Re: Beth preaches rehab....lol

[Guest guest]

MB

Well, it makes us feel better, it makes us better, and it makes us feel

more in control. Oh, I hated treadmills. First started late 2005 on one.

Then had concussion in January 2006 so was grounded. After that I tried

to get back on one. But, I couldn't even get going, so immediately out

of breath. Old, out of shape, allergies. Right? My mental health

counselor knew I had done it before and was trying. When I was diagnosed

she was like " now we know. " She had insisted all along there was

something physical being missed. But we thought more along neurological

lines so I was getting second opinions there.

I can't tell you how exhilarated I was the first time I got on the

treadmill with oxygen. All of a sudden I knew why I couldn't before. I

was shocked. I did thirty minutes and it wasn't hard at all. Oh, and to

find out that if I wanted to go faster I could just turn the oxygen up.

So much was suddenly explained. We know in retrospect that the onset of

PF, before diagnosis, played a large role in my worst levels of

depression. It wasn't the major part but it just multiplied the impact.

I still hate taking time out of my day for the treadmill. Walking and

getting nowhere. But, each time after I do it, I can say to myself that

" I'm not so bad off if I can do that. Heck, I never did that before. "

It's a reminder that I still can function. I don't care if it takes 2

lpm or 12 lpm, we're still doing it.

Now, rehab teaches you how, gets you to do it, provides education,

provides social interaction with classmates. But, maybe more than

anything, it provides objective reinforcement of capabilities. I hear

the pride in Jane's words when she talks about what she just did there

on a given day. I can tell you that i heard that same pride in Gwynne

when her rehab was a few laps in her living room. Sometimes we need to

remind ourselves not of what we can't do, but what we can do.

> >

> > From: Beth mbmurtha (AT) yahoo (DOT) com>

> > Subject: Re: Treadmill Routine

> > To: Breathe-Support@ yahoogroups. com

> > Date: Sunday, October 5, 2008, 7:57 PM

> >

> >

> > Bruce,

> > It sure sounds like you've got a good routine going....what are you

> thinking needs adjustment? Do you feel like you could/should be doing

> more? Just be cautious about pushing too hard, ok? Just say, 'yes

> dear'. LOL

> >

> > I use the treadmill 4 or 5 days a week. I start out between 1.3 and

> 1.5 mph for 2 or 3 minutes and then gradually move it up to 2.5 mph

> usually for between 45 and 50 minutes. During that time I do move it

up

> to 3.5 mph for short bursts of 2 minutes or so. I do that 4 or 5 times

> during my time on the treadmill. My O2 needs on the treadmill are

> completely insane. I learned in rehab that for me to maintain sats in

> the mid 90's while doing this type of exercise I need to wear a

> venti-mask (cannulla just don't cut it) and I need 12 liters per

minute

> in O2 flow. It was my 3rd week in rehab by the time we had this

figured

> out. This keeps my sats as I said in the mid-90's and my heart rate in

> the 120's. In a perfect week this is what I do, I often have imperfect

> weeks. Such as when I was sick recently. I'm working back up to my

> routine. The week after next I'm going to Peggy's for a few days and

my

> routine will vanish again. But more often than not this is

> > what I do and I feel better when I do it.

> >

> > I also still do the upper body routine with the 2 and 5 pound

weights

> that I learned in rehab. That I only do 3 times a week and it

typically

> takes me about 25 minutes.

> >

> >

> > Beth-Moderator

> > Fibrotic NSIP 06/06 UCTD 06/08

> >

> >

> >

> >

> >

> >

> > Treadmill Routine

> >

> >

> >

> > Beth/Jane others

> >

> > I know you're a regular treadmill user but this would also be to any

> > others who are. What is your routine? How often? How long? What

paces

> > and what levels of oxygen? Pulse rates?

> >

> > Nosy, aren't I?

> >

> > I'm thinking mine may need some modification.

> >

> > I use the treadmill every other day. I do breathing exercises in

> > between, plus I'm pretty active most days.

> >

> > I spend 45 minutes on the treadmill. I do just a couple of minutes

at

> > 1.5 mph and then go to 2 mph. I stay there about 5 minutes and then

go

> > to 2.5. 2.5 is my maximum based on my balance.

> >

> > I use 4 lpm and 5 lpm. I can go to 2 mph on 4 lpm and can go up to

2.5

> > mph on 4 lpm sometimes initially but ultimately to maintain my sats

> > around 92-93% I have to increase to 5 lpm. Otherwise, I slow down to

2

> > mph and let my sats built back to 94% or so, then to 2.5 a bit more.

I

> > don't let myself drop below 92% without slowling down or upping the

> > oxygen based both on room for error and seeing no reason to be at

90%

> on

> > one flow when I could be on 93% at a higher flow. Even on 5 lpm with

> the

> > pollen the way it is I sometimes can't stay at 2.5 mph.

> >

> > My pulse rate rises to around 110, spending most of my time between

> 105

> > and 110 which is right for my age.

> >

> > In the 45 minutes, I typically will cover about 1.5 miles.

> >

>