Sojgrens Syndrome

[Guest guest]

Hi all, I wondered if anyone with PSC has also been diagnosed with Sojgrens Syndrome (dry eyes/mouth)? I understand that it usually effects those with PBC but wondered if anyone here had this problem? I don't know too much about it but I'm sure someone out there can share. from Oklahoma PSC 2002

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[Guest guest]

Hi ;

I've read that sclerosing cholangitis can occassionally be associated

with Sjogren syndrome (Sicca syndrome); as described in this article

from Online Mendelian Inheritance in Man, there seems to be a common

genetic predisposition:

PANCREATITIS, SCLEROSING CHOLANGITIS, AND SICCA COMPLEX

http://www.ncbi.nlm.nih.gov/entrez/dispomim.cgi?id=260480

For more information on Sjogren's syndrome you might take a look at

these articles:

SJOGREN SYNDROME

http://www.ncbi.nlm.nih.gov/entrez/dispomim.cgi?id=270150

Sjögren's Syndrome

http://www.lef.org/protocols/prtcl-144.shtml

The former is a bit technical, while the latter gives more practical

information on how to managage dry eyes and mouth. I hope that this

is helpful.

Best regards,

Dave

(father of (21); PSC 07/03; UC 08/03)

[Guest guest]

YES! I have Sojgrens and it is further complicated

from meds that I take that also have side effects of

dry mouth and dry eyes.

Because of it, my mouth is always dry, causing higher

levels of bacteria which then makes my mouth prone to

more infections and tooth problems (especially decay)

I have found Oasis Moisturizing Mouth Spray and it

works pretty good, giving me at least a half/hour of

moisture in my mouth.

Cindy Baudoux-Northrup

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[Guest guest]

,

I have chronic dry eyes. The last time that I saw my eye doctor, i

told him that i was waking up in the middle of the night with what felt

like scratches on my eyes. After checking my eyes, he told me that

they were scratched and that it was probably due to my PSC and the my

eyes being dry during REM. He told me to use Lubricant Eye Ointment.

This can be bought over the counter and it helps with the eyes at

night. He didn't call it Sojgrens Syndrome, but it could be. Not sure

Baker wrote:

Hi all,

I wondered if anyone with PSC has also been diagnosed with

Sojgrens Syndrome (dry eyes/mouth)? I understand that it usually

effects those with PBC but wondered if anyone here had this problem? I

don't know too much about it but I'm sure someone out there can share.

from Oklahoma

PSC 2002

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Yahoo! Small Business gives you all

the tools to get online.