Re: Bob update/prednisone/ Dee

[Guest guest]

> RE: Bob update/prednisone

>

> > Prednisone DOES have side effects - but the condition you are

treating is

> > typically much, much worse. It is an extremely powerful

medication, and is

> > not to be taken likely. On the other hand, it is one of the " Big

Guns " for

> > treating autoimmune diseases (except PSC, of course).

> >

> > I'll take the side effects of prednisone any day, over that of

not breathing

> > (due to asthma).

> >

> > On another note, I struggle with saying we have compromised or

depressed

> > immune systems; we really have overactive immune systems (unless

you are

> > taking immunosuppressants like prednisone, CellCept, Prograf,

etc.).

> > Ulcers are also thought to be an immune system malfunction/over-

reaction.

> >

> > I understand your meaning, though - it IS pretty frustrating.

> >

> >

> > Arne

> > 56 - UC 1977, PSC 2000

> > Alive and (mostly) well in Minnesota

________________________________

> >

> > From: [mailto:psc-

support ] On

> > Behalf Of Deanna Vinovich

> > > MizKit, Maureen, Barb and others:

> > >

> > ...He has started the dreaded pred. and it will take 6 weeks of

trial to see

> > if it is working.

> >

> > ...Just keep a mental note of the ulcer situation it can happen

to people

> > who are immuno-depressed...

>

> Dee Vinovich, GRI

> Your Realtor for Life

> Traders Realty Corp.

> 721 W. Lake

> Peoria, IL 61614

> dvinovich@...

>

Arne and Dee,

I agree wholeheartedly!!.

Iam still on Prednisone on a two month taper. I no longer have the

Crohns ulcers in my mouth, which once a month or so would plague me,

terrible deep nickel sized ulcers. They heal very slowly. Also I have

NO! arthritis pain. I feel like Iam 16 again. Iam going to enjoy the

two months I have pain free. I dont think there is any other med that

will work for my Crohns other than Prednisone or Remicade. Iam also

taking Colazal (Basalazide), with very minimal side effects

(alteration of taste). At the end of the taper I'll see if the

Colazal keeps me in remission.

Wishing Bob a quick recovery!

Andi, PSC/Crohns 2001/2002 Modesto, California