first treatment went well!

[Guest guest]

hi guys!

just wanted to say i had my first lot of chemo today at the hospital

via iv, which took about 2and a half hours all up. they loaded me up

with anti nausea drugs first and then saline solution. and gave me

loads and loads of info, by the male nurse just continually talking to

me the whole time about what i should know, do, and not do, and look

out for with my temperature etc, they are so nice there.

so far so good.

am feeling spacey, as they also gave me an anti anxiety sedative, but

not crazy.... well,, maybe my hubby might add im crazy!!!!

speak soon,

monique

age 33

polymyositis dx jan 07

pf dx september 08

[Guest guest]

Glad you had just a good nurse. That makes a world of difference. The

anti-anxiety was smart too as who wouldn't be anxious over their first

chemo. But, being talked to, told what to expect, what to do if certain

things happened, so valuable, and sometimes so missing. It has to give

you a greater sense of comfort and control just through knowledge of

what to expect.

I thought Spacey was a permanent quite endearing Aussie quality. lol.

Wish you the best in dealing with the chemo.

>

> hi guys!

> just wanted to say i had my first lot of chemo today at the hospital

> via iv, which took about 2and a half hours all up. they loaded me up

> with anti nausea drugs first and then saline solution. and gave me

> loads and loads of info, by the male nurse just continually talking to

> me the whole time about what i should know, do, and not do, and look

> out for with my temperature etc, they are so nice there.

>

> so far so good.

> am feeling spacey, as they also gave me an anti anxiety sedative, but

> not crazy.... well,, maybe my hubby might add im crazy!!!!

>

> speak soon,

> monique

> age 33

> polymyositis dx jan 07

> pf dx september 08

>

[Guest guest]

... I'm sorry it's necessary for you to go through chemo...I'm hoping you will be one who handles it ok.

So much on your plate.

Love,

MamaSher, age 70. IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

first treatment went well!

hi guys!just wanted to say i had my first lot of chemo today at the hospital via iv, which took about 2and a half hours all up. they loaded me up with anti nausea drugs first and then saline solution. and gave me loads and loads of info, by the male nurse just continually talking to me the whole time about what i should know, do, and not do, and look out for with my temperature etc, they are so nice there.so far so good.am feeling spacey, as they also gave me an anti anxiety sedative, but not crazy.... well,, maybe my hubby might add im crazy!!!!speak soon, moniqueage 33polymyositis dx jan 07pf dx september 08

[Guest guest]

thankyou mama sher.xxx

[Guest guest]

your funny bruce!

i had to read that last part twice, to understand it properly, then

fully laughed....so.................hmmmm..............you could be

very correct!!!

i have always wondered how australians are percieved in america from

the iconic " Croc hunter " , " paul hogan " , bush buddies talking with such

an occa and slang terminology!!!!

monique.x

[Guest guest]

Im sorry ,I missed why you are having chemo?Im going through that myself right now how are you coping Brett Bowser 40 MI.familial UIP/IPF 11/07 stage 4 lung cancer 7/08your funny bruce!i had to read that last part twice, to understand it properly, then fully laughed....so.................hmmmm..............you could be very correct!!!i have always wondered how australians are percieved in america from the iconic "Croc hunter", "paul hogan", bush buddies talking with such an occa and slang terminology!!!!monique.x

[Guest guest]

hiya brett!

im 33 and have had myositis since jan 07, a rare muscle disease!

becuase i am positive to another certain antibody in my system (lucky

hay)..... i was on a higher risk of developing interstitual lung

disease. this all came to pass with me noticing significant

differences in my energy and breathing this jan if not before!

through all the xrays,cts, a bronchoscopy and just last month the

lung biopsy,(you know all the guff!) i have been diagnosed with pf...

lots of disease there!

i didnt know it was that serious!

when they just knew i had the myositis, they added methotrexate to

try to lower my pred dosage as it wasnt controlling the disease very

well, but was only on for two months and last month when my dx came

through they needed to try something way stronger. so i started chemo

yesterday, but prob no where near as intense as what you would be

having!

prob way less i imagine,

so they will do this regulary for the next month then scale down to

once and month up to three to six months, and then another ct and

lung function test to see what has happened.

still on the same dosage of pred 25mg a day and antidepressants

too.... lots of downs.....

and my anti nausea stuff....

love to hear more from you brett.xx