Guest guest Posted October 9, 2008 Report Share Posted October 9, 2008 Hi All!! wanted to report I adopted a set of new lings on sept 24th. released from hospital on oct 8th. and am back in rehab along with a host of other tests, keeping me quite busy. stay the course and keep the faith. mo. transplanted sept 08 L. I'm so sorry to hear the sad news about . Shewas so good to keep us posted even during some ofher worst times. She was an inspiration to many of us,certainly to me. She seemed to strike a balance betweenfighting her disease and accepting her condition, all thewhile caring about us. I admired that she always kept it real,and there was a sweetness about her that made itimpossible not to love her. I knew this was coming, butI'm really sorry to lose her. God bless our newest angel.Brett,Hang in there. You are amazing and have a terrific attitude.That goes a LONG way. You're in my thoughts and prayers.,How is the HIPS program working out? Oh, I forgot - seemslike you might already be gone off to your island retreat,which sounds heavenly. Just yesterday I saw the photos frommy daughter and son-in-law's honeymoon to Fiji. It's reallya long trip to get from here to there, but MAN is it gorgeous!!They met quite a lot of folks from Australia at their resort,and were even in the wedding of one couple they met - fun!They thought the genuine kindness and gentleness of theFijian people was very touching.Shelia,I was just thinking of you and hoping you're having a goodday. Hopefully every day gets better over time. Grieving isso exhausting!To Kathy, Kerry, and all our brave ones waiting for the call,I pray it happens soon and that you have peace.Tina,I miss your posts. I'm sorry your current situation, not verysurprisingly, is so difficult, but hopefully it will improve soon.It's so unfair to have to deal with all that mess and yourillness too. I'm sending prayers for strength and courage.Judy,I'm hoping you're doing much better. How have the treatmentsbeen going and are you any stronger? How about the leg pain?I hope you're home. You're in my thoughts a lot.Bruce,I got on board too late to be included, but FYI, I'm on 16prescription medications and 4 OTCs. Some of those medsare taken in multiples several times a day, so it all adds up.In addition to my one bad lung with IPF, I have GERD,osteoporosis. chronic ear trouble for which I have tubesin both ears, a bum hand from a bad break several years ago,and year-round allergies. There are other lesser issues, butmostly stuff I can deal with. Post lung transplant patients aremore susceptible to lymphoma and skin cancer, so I amreligious about sunscreen. I have basically 9 main doctors,but the one I see by far the most often is my transplantpulmonologist. Some of the rest of them are once-a-yearor only-in-emergency specialists. I have weekly labs nowthat I'm on Coumadin, and monthly transplant clinic visitsat which they draw blood, do a chest x-ray, spirometry,and doctor follow-up.Did you ever get to the Kimbell or the zoo? If not, you'lljust have to come back. Call me when you do!Can you believe it's been 6 months since my transplant?,It's good to see you back and great news that you had sucha good time. I figured you would!!Jane,I got rid of my treadmill when I got too sick for mine. Butnow I need to get another one, so I'll be shopping for thatsoon. I see a lot of folks at pulmonary rehab using the"arm cycles". I'm following closely your updates on yourtrial. Hope you're having a good day.Sher and Peggy,Just thinking of both of you and hoping you're doing well.Sher, how's the pain? Peggy, you're completely rid of allsniffles, I trust. We're actually having porch weather hereright now. Evenings are around 56 degrees and the dailyhighs are around 82 - really lovely. We need MORE of thisin Texas, God bless our poor, hot little selves who get twoweeks of winter as a rule.Hugs and blessings,Gwynne 57 Single-lung transplant for IPF on 4-3-08at UTHSC San Fort Worth, TX Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2008 Report Share Posted October 9, 2008 Thats tremendous. Did you get a double transplant? Welcome to your new life. > > Hi All!! wanted to report I adopted a set of new lings on sept 24th. released from hospital on oct 8th. and am back in rehab along with a host of other tests, keeping me quite busy. stay the course and keep the faith. mo. transplanted sept 08 > > > > L. > > > I'm so sorry to hear the sad news about . She > was so good to keep us posted even during some of > her worst times. She was an inspiration to many of us, > certainly to me. She seemed to strike a balance between > fighting her disease and accepting her condition, all the > while caring about us. I admired that she always kept it real, > and there was a sweetness about her that made it > impossible not to love her. I knew this was coming, but > I'm really sorry to lose her. God bless our newest angel. > > Brett, > Hang in there. You are amazing and have a terrific attitude. > That goes a LONG way. You're in my thoughts and prayers. > > , > How is the HIPS program working out? Oh, I forgot - seems > like you might already be gone off to your island retreat, > which sounds heavenly. Just yesterday I saw the photos from > my daughter and son-in-law's honeymoon to Fiji. It's really > a long trip to get from here to there, but MAN is it gorgeous!! > They met quite a lot of folks from Australia at their resort, > and were even in the wedding of one couple they met - fun! > They thought the genuine kindness and gentleness of the > Fijian people was very touching. > > Shelia, > I was just thinking of you and hoping you're having a good > day. Hopefully every day gets better over time. Grieving is > so exhausting! > > To Kathy, Kerry, and all our brave ones waiting for the call, > I pray it happens soon and that you have peace. > > Tina, > I miss your posts. I'm sorry your current situation, not very > surprisingly, is so difficult, but hopefully it will improve soon. > It's so unfair to have to deal with all that mess and your > illness too.. I'm sending prayers for strength and courage. > > Judy, > I'm hoping you're doing much better. How have the treatments > been going and are you any stronger? How about the leg pain? > I hope you're home. You're in my thoughts a lot. > > Bruce, > I got on board too late to be included, but FYI, I'm on 16 > prescription medications and 4 OTCs. Some of those meds > are taken in multiples several times a day, so it all adds up. > In addition to my one bad lung with IPF, I have GERD, > osteoporosis. chronic ear trouble for which I have tubes > in both ears, a bum hand from a bad break several years ago, > and year-round allergies. There are other lesser issues, but > mostly stuff I can deal with. Post lung transplant patients are > more susceptible to lymphoma and skin cancer, so I am > religious about sunscreen. I have basically 9 main doctors, > but the one I see by far the most often is my transplant > pulmonologist. Some of the rest of them are once-a-year > or only-in-emergency specialists. I have weekly labs now > that I'm on Coumadin, and monthly transplant clinic visits > at which they draw blood, do a chest x-ray, spirometry, > and doctor follow-up. > Did you ever get to the Kimbell or the zoo? If not, you'll > just have to come back. Call me when you do! > Can you believe it's been 6 months since my transplant? > > , > It's good to see you back and great news that you had such > a good time. I figured you would!! > > Jane, > I got rid of my treadmill when I got too sick for mine. But > now I need to get another one, so I'll be shopping for that > soon. I see a lot of folks at pulmonary rehab using the > " arm cycles " . I'm following closely your updates on your > trial. Hope you're having a good day. > > Sher and Peggy, > Just thinking of both of you and hoping you're doing well. > Sher, how's the pain? Peggy, you're completely rid of all > sniffles, I trust. We're actually having porch weather here > right now. Evenings are around 56 degrees and the daily > highs are around 82 - really lovely. We need MORE of this > in Texas, God bless our poor, hot little selves who get two > weeks of winter as a rule. > > Hugs and blessings, > Gwynne 57 Single-lung transplant for IPF on 4-3-08 > at UTHSC San Fort Worth, TX > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2008 Report Share Posted October 9, 2008 OMGosh ! All over and done with. I do hope it wasn't too bad for you. Already in rehab! Keep on keepin' on friend, my prayers stay with you for a speedy recovery. MamaSher, age 70. IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! L. I'm so sorry to hear the sad news about . Shewas so good to keep us posted even during some ofher worst times. She was an inspiration to many of us,certainly to me. She seemed to strike a balance betweenfighting her disease and accepting her condition, all thewhile caring about us. I admired that she always kept it real,and there was a sweetness about her that made itimpossible not to love her. I knew this was coming, butI'm really sorry to lose her. God bless our newest angel.Brett,Hang in there. You are amazing and have a terrific attitude.That goes a LONG way. You're in my thoughts and prayers.,How is the HIPS program working out? Oh, I forgot - seemslike you might already be gone off to your island retreat,which sounds heavenly. Just yesterday I saw the photos frommy daughter and son-in-law's honeymoon to Fiji. It's reallya long trip to get from here to there, but MAN is it gorgeous!!They met quite a lot of folks from Australia at their resort,and were even in the wedding of one couple they met - fun!They thought the genuine kindness and gentleness of theFijian people was very touching.Shelia,I was just thinking of you and hoping you're having a goodday. Hopefully every day gets better over time. Grieving isso exhausting!To Kathy, Kerry, and all our brave ones waiting for the call,I pray it happens soon and that you have peace.Tina,I miss your posts. I'm sorry your current situation, not verysurprisingly, is so difficult, but hopefully it will improve soon.It's so unfair to have to deal with all that mess and yourillness too. I'm sending prayers for strength and courage.Judy,I'm hoping you're doing much better. How have the treatmentsbeen going and are you any stronger? How about the leg pain?I hope you're home. You're in my thoughts a lot.Bruce,I got on board too late to be included, but FYI, I'm on 16prescription medications and 4 OTCs. Some of those medsare taken in multiples several times a day, so it all adds up.In addition to my one bad lung with IPF, I have GERD,osteoporosis. chronic ear trouble for which I have tubesin both ears, a bum hand from a bad break several years ago,and year-round allergies. There are other lesser issues, butmostly stuff I can deal with. Post lung transplant patients aremore susceptible to lymphoma and skin cancer, so I amreligious about sunscreen. I have basically 9 main doctors,but the one I see by far the most often is my transplantpulmonologist. Some of the rest of them are once-a-yearor only-in-emergency specialists. I have weekly labs nowthat I'm on Coumadin, and monthly transplant clinic visitsat which they draw blood, do a chest x-ray, spirometry,and doctor follow-up.Did you ever get to the Kimbell or the zoo? If not, you'lljust have to come back. Call me when you do!Can you believe it's been 6 months since my transplant?,It's good to see you back and great news that you had sucha good time. I figured you would!!Jane,I got rid of my treadmill when I got too sick for mine. Butnow I need to get another one, so I'll be shopping for thatsoon. I see a lot of folks at pulmonary rehab using the"arm cycles". I'm following closely your updates on yourtrial. Hope you're having a good day.Sher and Peggy,Just thinking of both of you and hoping you're doing well.Sher, how's the pain? Peggy, you're completely rid of allsniffles, I trust. We're actually having porch weather hereright now. Evenings are around 56 degrees and the dailyhighs are around 82 - really lovely. We need MORE of thisin Texas, God bless our poor, hot little selves who get twoweeks of winter as a rule.Hugs and blessings,Gwynne 57 Single-lung transplant for IPF on 4-3-08at UTHSC San Fort Worth, TX Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2008 Report Share Posted October 9, 2008 GREAT NEW'S GEORGETAKE CARE OF THEMHi All!! wanted to report I adopted a set of new lings on sept 24th. released from hospital on oct 8th. and am back in rehab along with a host of other tests, keeping me quite busy. stay the course and keep the faith. mo. transplanted sept 08 L.I'm so sorry to hear the sad news about . Shewas so good to keep us posted even during some ofher worst times. She was an inspiration to many of us,certainly to me. She seemed to strike a balance betweenfighting her disease and accepting her condition, all thewhile caring about us. I admired that she always kept it real,and there was a sweetness about her that made itimpossible not to love her. I knew this was coming, butI'm really sorry to lose her. God bless our newest angel.Brett,Hang in there. You are amazing and have a terrific attitude.That goes a LONG way. You're in my thoughts and prayers.,How is the HIPS program working out? Oh, I forgot - seemslike you might already be gone off to your island retreat,which sounds heavenly. Just yesterday I saw the photos frommy daughter and son-in-law's honeymoon to Fiji. It's reallya long trip to get from here to there, but MAN is it gorgeous!!They met quite a lot of folks from Australia at their resort,and were even in the wedding of one couple they met - fun!They thought the genuine kindness and gentleness of theFijian people was very touching.Shelia,I was just thinking of you and hoping you're having a goodday. Hopefully every day gets better over time. Grieving isso exhausting!To Kathy, Kerry, and all our brave ones waiting for the call,I pray it happens soon and that you have peace.Tina,I miss your posts. I'm sorry your current situation, not verysurprisingly, is so difficult, but hopefully it will improve soon.It's so unfair to have to deal with all that mess and yourillness too. I'm sending prayers for strength and courage.Judy,I'm hoping you're doing much better. How have the treatmentsbeen going and are you any stronger? How about the leg pain?I hope you're home. You're in my thoughts a lot.Bruce,I got on board too late to be included, but FYI, I'm on 16prescription medications and 4 OTCs. Some of those medsare taken in multiples several times a day, so it all adds up.In addition to my one bad lung with IPF, I have GERD,osteoporosis. chronic ear trouble for which I have tubesin both ears, a bum hand from a bad break several years ago,and year-round allergies. There are other lesser issues, butmostly stuff I can deal with. Post lung transplant patients aremore susceptible to lymphoma and skin cancer, so I amreligious about sunscreen. I have basically 9 main doctors,but the one I see by far the most often is my transplantpulmonologist. Some of the rest of them are once-a-yearor only-in-emergency specialists. I have weekly labs nowthat I'm on Coumadin, and monthly transplant clinic visitsat which they draw blood, do a chest x-ray, spirometry,and doctor follow-up.Did you ever get to the Kimbell or the zoo? If not, you'lljust have to come back. Call me when you do!Can you believe it's been 6 months since my transplant?,It's good to see you back and great news that you had sucha good time. I figured you would!!Jane,I got rid of my treadmill when I got too sick for mine. Butnow I need to get another one, so I'll be shopping for thatsoon. I see a lot of folks at pulmonary rehab using the"arm cycles". I'm following closely your updates on yourtrial. Hope you're having a good day.Sher and Peggy,Just thinking of both of you and hoping you're doing well.Sher, how's the pain? Peggy, you're completely rid of allsniffles, I trust. We're actually having porch weather hereright now. Evenings are around 56 degrees and the dailyhighs are around 82 - really lovely. We need MORE of thisin Texas, God bless our poor, hot little selves who get twoweeks of winter as a rule.Hugs and blessings,Gwynne 57 Single-lung transplant for IPF on 4-3-08at UTHSC San Fort Worth, TX Brett Bowserbrett@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2008 Report Share Posted October 9, 2008 HIP HIP HURRAY! CONGRATULATUIONS GEORGE! God Bless you and speed you to complete recovery. No more hose- I can't even begin to imagine the freedom and elation you must be feeling. Keeping you in my prayers and having a big piece of cake to clebrate your "birthday" R. (52) Sarcoid/PF 3/2006 Carlsbad, California Subject: update from st. louisTo: Breathe-Support Date: Thursday, October 9, 2008, 12:24 PM Hi All!! wanted to report I adopted a set of new lings on sept 24th. released from hospital on oct 8th. and am back in rehab along with a host of other tests, keeping me quite busy. stay the course and keep the faith. mo. transplanted sept 08 L. I'm so sorry to hear the sad news about . Shewas so good to keep us posted even during some ofher worst times. She was an inspiration to many of us,certainly to me. She seemed to strike a balance betweenfighting her disease and accepting her condition, all thewhile caring about us. I admired that she always kept it real,and there was a sweetness about her that made itimpossible not to love her. I knew this was coming, butI'm really sorry to lose her. God bless our newest angel.Brett,Hang in there. You are amazing and have a terrific attitude.That goes a LONG way. You're in my thoughts and prayers.,How is the HIPS program working out? Oh, I forgot - seemslike you might already be gone off to your island retreat,which sounds heavenly. Just yesterday I saw the photos frommy daughter and son-in-law's honeymoon to Fiji. It's reallya long trip to get from here to there, but MAN is it gorgeous!!They met quite a lot of folks from Australia at their resort,and were even in the wedding of one couple they met - fun!They thought the genuine kindness and gentleness of theFijian people was very touching.Shelia,I was just thinking of you and hoping you're having a goodday. Hopefully every day gets better over time. Grieving isso exhausting!To Kathy, Kerry, and all our brave ones waiting for the call,I pray it happens soon and that you have peace.Tina,I miss your posts. I'm sorry your current situation, not verysurprisingly, is so difficult, but hopefully it will improve soon.It's so unfair to have to deal with all that mess and yourillness too. I'm sending prayers for strength and courage.Judy,I'm hoping you're doing much better. How have the treatmentsbeen going and are you any stronger? How about the leg pain?I hope you're home. You're in my thoughts a lot.Bruce,I got on board too late to be included, but FYI, I'm on 16prescription medications and 4 OTCs. Some of those medsare taken in multiples several times a day, so it all adds up.In addition to my one bad lung with IPF, I have GERD,osteoporosis. chronic ear trouble for which I have tubesin both ears, a bum hand from a bad break several years ago,and year-round allergies. There are other lesser issues, butmostly stuff I can deal with. Post lung transplant patients aremore susceptible to lymphoma and skin cancer, so I amreligious about sunscreen. I have basically 9 main doctors,but the one I see by far the most often is my transplantpulmonologist. Some of the rest of them are once-a-yearor only-in-emergency specialists. I have weekly labs nowthat I'm on Coumadin, and monthly transplant clinic visitsat which they draw blood, do a chest x-ray, spirometry,and doctor follow-up.Did you ever get to the Kimbell or the zoo? If not, you'lljust have to come back. Call me when you do!Can you believe it's been 6 months since my transplant?,It's good to see you back and great news that you had sucha good time. I figured you would!!Jane,I got rid of my treadmill when I got too sick for mine. Butnow I need to get another one, so I'll be shopping for thatsoon. I see a lot of folks at pulmonary rehab using the"arm cycles". I'm following closely your updates on yourtrial. Hope you're having a good day.Sher and Peggy,Just thinking of both of you and hoping you're doing well.Sher, how's the pain? Peggy, you're completely rid of allsniffles, I trust. We're actually having porch weather hereright now. Evenings are around 56 degrees and the dailyhighs are around 82 - really lovely. We need MORE of thisin Texas, God bless our poor, hot little selves who get twoweeks of winter as a rule.Hugs and blessings,Gwynne 57 Single-lung transplant for IPF on 4-3-08at UTHSC San Fort Worth, TX Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2008 Report Share Posted October 9, 2008 Congratulations !!! I'm so excited about those gorgeous pink unscarred lungs you're breathing with now!! Take good care of yourself and do what the doctors say! I wish you many many years of easy breathing! Beth-Moderator Fibrotic NSIP 06/06 UCTD 06/08 L. I'm so sorry to hear the sad news about . Shewas so good to keep us posted even during some ofher worst times. She was an inspiration to many of us,certainly to me. She seemed to strike a balance betweenfighting her disease and accepting her condition, all thewhile caring about us. I admired that she always kept it real,and there was a sweetness about her that made itimpossible not to love her. I knew this was coming, butI'm really sorry to lose her. God bless our newest angel.Brett,Hang in there. You are amazing and have a terrific attitude.That goes a LONG way. You're in my thoughts and prayers.,How is the HIPS program working out? Oh, I forgot - seemslike you might already be gone off to your island retreat,which sounds heavenly. Just yesterday I saw the photos frommy daughter and son-in-law's honeymoon to Fiji. It's reallya long trip to get from here to there, but MAN is it gorgeous!!They met quite a lot of folks from Australia at their resort,and were even in the wedding of one couple they met - fun!They thought the genuine kindness and gentleness of theFijian people was very touching.Shelia,I was just thinking of you and hoping you're having a goodday. Hopefully every day gets better over time. Grieving isso exhausting!To Kathy, Kerry, and all our brave ones waiting for the call,I pray it happens soon and that you have peace.Tina,I miss your posts. I'm sorry your current situation, not verysurprisingly, is so difficult, but hopefully it will improve soon.It's so unfair to have to deal with all that mess and yourillness too. I'm sending prayers for strength and courage.Judy,I'm hoping you're doing much better. How have the treatmentsbeen going and are you any stronger? How about the leg pain?I hope you're home. You're in my thoughts a lot.Bruce,I got on board too late to be included, but FYI, I'm on 16prescription medications and 4 OTCs. Some of those medsare taken in multiples several times a day, so it all adds up.In addition to my one bad lung with IPF, I have GERD,osteoporosis. chronic ear trouble for which I have tubesin both ears, a bum hand from a bad break several years ago,and year-round allergies. There are other lesser issues, butmostly stuff I can deal with. Post lung transplant patients aremore susceptible to lymphoma and skin cancer, so I amreligious about sunscreen. I have basically 9 main doctors,but the one I see by far the most often is my transplantpulmonologist. Some of the rest of them are once-a-yearor only-in-emergency specialists. I have weekly labs nowthat I'm on Coumadin, and monthly transplant clinic visitsat which they draw blood, do a chest x-ray, spirometry,and doctor follow-up.Did you ever get to the Kimbell or the zoo? If not, you'lljust have to come back. Call me when you do!Can you believe it's been 6 months since my transplant?,It's good to see you back and great news that you had sucha good time. I figured you would!!Jane,I got rid of my treadmill when I got too sick for mine. Butnow I need to get another one, so I'll be shopping for thatsoon. I see a lot of folks at pulmonary rehab using the"arm cycles". I'm following closely your updates on yourtrial. Hope you're having a good day.Sher and Peggy,Just thinking of both of you and hoping you're doing well.Sher, how's the pain? Peggy, you're completely rid of allsniffles, I trust. We're actually having porch weather hereright now. Evenings are around 56 degrees and the dailyhighs are around 82 - really lovely. We need MORE of thisin Texas, God bless our poor, hot little selves who get twoweeks of winter as a rule.Hugs and blessings,Gwynne 57 Single-lung transplant for IPF on 4-3-08at UTHSC San Fort Worth, TX Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2008 Report Share Posted October 10, 2008 , Way to Go!!!!!Congratulatons and a speedy recovery to you and your new parts. Z fibriotic NSIP/05 Z 64, fibriotic NSIP/o5/PA And “mild” PH/10/07 and Reynaud’s too! No, NSIP was not self-inflicted…I never smoked! Potter, reader,carousel lover and MomMom to Darah and Sara “I’m gonna be iron like a lion in Zion” Bob Marley Vinca Minor-periwinkle is my flower george mathews wrote: Hi All!! wanted to report I adopted a set of new lings on sept 24th. released from hospital on oct 8th. and am back in rehab along with a host of other tests, keeping me quite busy. stay the course and keep the faith. mo. transplanted sept 08 ----- Original Message ---- From: Gwynne Keyland <gwynnek (AT) sbcglobal (DOT) net> To: BREATHE-SUPPORT Information <Breathe-Support > Sent: Thursday, October 9, 2008 2:32:50 PM Subject: L. I'm so sorry to hear the sad news about . She was so good to keep us posted even during some of her worst times. She was an inspiration to many of us, certainly to me. She seemed to strike a balance between fighting her disease and accepting her condition, all the while caring about us. I admired that she always kept it real, and there was a sweetness about her that made it impossible not to love her. I knew this was coming, but I'm really sorry to lose her. God bless our newest angel. Brett, Hang in there. You are amazing and have a terrific attitude. That goes a LONG way. You're in my thoughts and prayers. , How is the HIPS program working out? Oh, I forgot - seems like you might already be gone off to your island retreat, which sounds heavenly. Just yesterday I saw the photos from my daughter and son-in-law's honeymoon to Fiji. It's really a long trip to get from here to there, but MAN is it gorgeous!! They met quite a lot of folks from Australia at their resort, and were even in the wedding of one couple they met - fun! They thought the genuine kindness and gentleness of the Fijian people was very touching. Shelia, I was just thinking of you and hoping you're having a good day. Hopefully every day gets better over time. Grieving is so exhausting! To Kathy, Kerry, and all our brave ones waiting for the call, I pray it happens soon and that you have peace. Tina, I miss your posts. I'm sorry your current situation, not very surprisingly, is so difficult, but hopefully it will improve soon. It's so unfair to have to deal with all that mess and your illness too. I'm sending prayers for strength and courage. Judy, I'm hoping you're doing much better. How have the treatments been going and are you any stronger? How about the leg pain? I hope you're home. You're in my thoughts a lot. Bruce, I got on board too late to be included, but FYI, I'm on 16 prescription medications and 4 OTCs. Some of those meds are taken in multiples several times a day, so it all adds up. In addition to my one bad lung with IPF, I have GERD, osteoporosis. chronic ear trouble for which I have tubes in both ears, a bum hand from a bad break several years ago, and year-round allergies. There are other lesser issues, but mostly stuff I can deal with. Post lung transplant patients are more susceptible to lymphoma and skin cancer, so I am religious about sunscreen. I have basically 9 main doctors, but the one I see by far the most often is my transplant pulmonologist. Some of the rest of them are once-a-year or only-in-emergency specialists. I have weekly labs now that I'm on Coumadin, and monthly transplant clinic visits at which they draw blood, do a chest x-ray, spirometry, and doctor follow-up. Did you ever get to the Kimbell or the zoo? If not, you'll just have to come back. Call me when you do! Can you believe it's been 6 months since my transplant? , It's good to see you back and great news that you had such a good time. I figured you would!! Jane, I got rid of my treadmill when I got too sick for mine. But now I need to get another one, so I'll be shopping for that soon. I see a lot of folks at pulmonary rehab using the "arm cycles". I'm following closely your updates on your trial. Hope you're having a good day. Sher and Peggy, Just thinking of both of you and hoping you're doing well. Sher, how's the pain? Peggy, you're completely rid of all sniffles, I trust. We're actually having porch weather here right now. Evenings are around 56 degrees and the daily highs are around 82 - really lovely. We need MORE of this in Texas, God bless our poor, hot little selves who get two weeks of winter as a rule. Hugs and blessings, Gwynne 57 Single-lung transplant for IPF on 4-3-08 at UTHSC San Fort Worth, TX No virus found in this incoming message. Checked by AVG - http://www.avg.com Version: 8.0.173 / Virus Database: 270.7.6/1715 - Release Date: 10/8/2008 7:19 PM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2008 Report Share Posted October 11, 2008 Beth thank you all the support, my hope is everyone who neeeds the same gift I've received, get new lungs soon. george mo transplanted 9-8 L. I'm so sorry to hear the sad news about . Shewas so good to keep us posted even during some ofher worst times. She was an inspiration to many of us,certainly to me. She seemed to strike a balance betweenfighting her disease and accepting her condition, all thewhile caring about us. I admired that she always kept it real,and there was a sweetness about her that made itimpossible not to love her. I knew this was coming, butI'm really sorry to lose her. God bless our newest angel.Brett,Hang in there. You are amazing and have a terrific attitude.That goes a LONG way. You're in my thoughts and prayers.,How is the HIPS program working out? Oh, I forgot - seemslike you might already be gone off to your island retreat,which sounds heavenly. Just yesterday I saw the photos frommy daughter and son-in-law's honeymoon to Fiji. It's reallya long trip to get from here to there, but MAN is it gorgeous!!They met quite a lot of folks from Australia at their resort,and were even in the wedding of one couple they met - fun!They thought the genuine kindness and gentleness of theFijian people was very touching.Shelia,I was just thinking of you and hoping you're having a goodday. Hopefully every day gets better over time. Grieving isso exhausting!To Kathy, Kerry, and all our brave ones waiting for the call,I pray it happens soon and that you have peace.Tina,I miss your posts. I'm sorry your current situation, not verysurprisingly, is so difficult, but hopefully it will improve soon.It's so unfair to have to deal with all that mess and yourillness too. I'm sending prayers for strength and courage.Judy,I'm hoping you're doing much better. How have the treatmentsbeen going and are you any stronger? How about the leg pain?I hope you're home. You're in my thoughts a lot.Bruce,I got on board too late to be included, but FYI, I'm on 16prescription medications and 4 OTCs. Some of those medsare taken in multiples several times a day, so it all adds up.In addition to my one bad lung with IPF, I have GERD,osteoporosis. chronic ear trouble for which I have tubesin both ears, a bum hand from a bad break several years ago,and year-round allergies. There are other lesser issues, butmostly stuff I can deal with. Post lung transplant patients aremore susceptible to lymphoma and skin cancer, so I amreligious about sunscreen. I have basically 9 main doctors,but the one I see by far the most often is my transplantpulmonologist. Some of the rest of them are once-a-yearor only-in-emergency specialists. I have weekly labs nowthat I'm on Coumadin, and monthly transplant clinic visitsat which they draw blood, do a chest x-ray, spirometry,and doctor follow-up.Did you ever get to the Kimbell or the zoo? If not, you'lljust have to come back. Call me when you do!Can you believe it's been 6 months since my transplant?,It's good to see you back and great news that you had sucha good time. I figured you would!!Jane,I got rid of my treadmill when I got too sick for mine. Butnow I need to get another one, so I'll be shopping for thatsoon. I see a lot of folks at pulmonary rehab using the"arm cycles". I'm following closely your updates on yourtrial. Hope you're having a good day.Sher and Peggy,Just thinking of both of you and hoping you're doing well.Sher, how's the pain? Peggy, you're completely rid of allsniffles, I trust. We're actually having porch weather hereright now. Evenings are around 56 degrees and the dailyhighs are around 82 - really lovely. We need MORE of thisin Texas, God bless our poor, hot little selves who get twoweeks of winter as a rule.Hugs and blessings,Gwynne 57 Single-lung transplant for IPF on 4-3-08at UTHSC San Fort Worth, TX Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2008 Report Share Posted October 11, 2008 thanks so much. It s Gods blessing and the feeling is almost imposssilbe to tell about!!! george mo transplanted 9-8 L. I'm so sorry to hear the sad news about . Shewas so good to keep us posted even during some ofher worst times. She was an inspiration to many of us,certainly to me. She seemed to strike a balance betweenfighting her disease and accepting her condition, all thewhile caring about us. I admired that she always kept it real,and there was a sweetness about her that made itimpossible not to love her. I knew this was coming, butI'm really sorry to lose her. God bless our newest angel.Brett,Hang in there. You are amazing and have a terrific attitude.That goes a LONG way. You're in my thoughts and prayers.,How is the HIPS program working out? Oh, I forgot - seemslike you might already be gone off to your island retreat,which sounds heavenly. Just yesterday I saw the photos frommy daughter and son-in-law's honeymoon to Fiji. It's reallya long trip to get from here to there, but MAN is it gorgeous!!They met quite a lot of folks from Australia at their resort,and were even in the wedding of one couple they met - fun!They thought the genuine kindness and gentleness of theFijian people was very touching.Shelia,I was just thinking of you and hoping you're having a goodday. Hopefully every day gets better over time. Grieving isso exhausting!To Kathy, Kerry, and all our brave ones waiting for the call,I pray it happens soon and that you have peace.Tina,I miss your posts. I'm sorry your current situation, not verysurprisingly, is so difficult, but hopefully it will improve soon.It's so unfair to have to deal with all that mess and yourillness too. I'm sending prayers for strength and courage.Judy,I'm hoping you're doing much better. How have the treatmentsbeen going and are you any stronger? How about the leg pain?I hope you're home. You're in my thoughts a lot.Bruce,I got on board too late to be included, but FYI, I'm on 16prescription medications and 4 OTCs. Some of those medsare taken in multiples several times a day, so it all adds up.In addition to my one bad lung with IPF, I have GERD,osteoporosis. chronic ear trouble for which I have tubesin both ears, a bum hand from a bad break several years ago,and year-round allergies. There are other lesser issues, butmostly stuff I can deal with. Post lung transplant patients aremore susceptible to lymphoma and skin cancer, so I amreligious about sunscreen. I have basically 9 main doctors,but the one I see by far the most often is my transplantpulmonologist. Some of the rest of them are once-a-yearor only-in-emergency specialists. I have weekly labs nowthat I'm on Coumadin, and monthly transplant clinic visitsat which they draw blood, do a chest x-ray, spirometry,and doctor follow-up.Did you ever get to the Kimbell or the zoo? If not, you'lljust have to come back. Call me when you do!Can you believe it's been 6 months since my transplant?,It's good to see you back and great news that you had sucha good time. I figured you would!!Jane,I got rid of my treadmill when I got too sick for mine. Butnow I need to get another one, so I'll be shopping for thatsoon. I see a lot of folks at pulmonary rehab using the"arm cycles". I'm following closely your updates on yourtrial. Hope you're having a good day.Sher and Peggy,Just thinking of both of you and hoping you're doing well.Sher, how's the pain? Peggy, you're completely rid of allsniffles, I trust. We're actually having porch weather hereright now. Evenings are around 56 degrees and the dailyhighs are around 82 - really lovely. We need MORE of thisin Texas, God bless our poor, hot little selves who get twoweeks of winter as a rule.Hugs and blessings,Gwynne 57 Single-lung transplant for IPF on 4-3-08at UTHSC San Fort Worth, TX Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2008 Report Share Posted October 11, 2008 Sher thanks so much!! I hope all is well with you! george transpllanted 9-8 L. I'm so sorry to hear the sad news about . Shewas so good to keep us posted even during some ofher worst times. She was an inspiration to many of us,certainly to me. She seemed to strike a balance betweenfighting her disease and accepting her condition, all thewhile caring about us. I admired that she always kept it real,and there was a sweetness about her that made itimpossible not to love her. I knew this was coming, butI'm really sorry to lose her. God bless our newest angel.Brett,Hang in there. You are amazing and have a terrific attitude.That goes a LONG way. You're in my thoughts and prayers.,How is the HIPS program working out? Oh, I forgot - seemslike you might already be gone off to your island retreat,which sounds heavenly. Just yesterday I saw the photos frommy daughter and son-in-law's honeymoon to Fiji. It's reallya long trip to get from here to there, but MAN is it gorgeous!!They met quite a lot of folks from Australia at their resort,and were even in the wedding of one couple they met - fun!They thought the genuine kindness and gentleness of theFijian people was very touching.Shelia,I was just thinking of you and hoping you're having a goodday. Hopefully every day gets better over time. Grieving isso exhausting!To Kathy, Kerry, and all our brave ones waiting for the call,I pray it happens soon and that you have peace.Tina,I miss your posts. I'm sorry your current situation, not verysurprisingly, is so difficult, but hopefully it will improve soon.It's so unfair to have to deal with all that mess and yourillness too. I'm sending prayers for strength and courage.Judy,I'm hoping you're doing much better. How have the treatmentsbeen going and are you any stronger? How about the leg pain?I hope you're home. You're in my thoughts a lot.Bruce,I got on board too late to be included, but FYI, I'm on 16prescription medications and 4 OTCs. Some of those medsare taken in multiples several times a day, so it all adds up.In addition to my one bad lung with IPF, I have GERD,osteoporosis. chronic ear trouble for which I have tubesin both ears, a bum hand from a bad break several years ago,and year-round allergies. There are other lesser issues, butmostly stuff I can deal with. Post lung transplant patients aremore susceptible to lymphoma and skin cancer, so I amreligious about sunscreen. I have basically 9 main doctors,but the one I see by far the most often is my transplantpulmonologist. Some of the rest of them are once-a-yearor only-in-emergency specialists. I have weekly labs nowthat I'm on Coumadin, and monthly transplant clinic visitsat which they draw blood, do a chest x-ray, spirometry,and doctor follow-up.Did you ever get to the Kimbell or the zoo? If not, you'lljust have to come back. Call me when you do!Can you believe it's been 6 months since my transplant?,It's good to see you back and great news that you had sucha good time. I figured you would!!Jane,I got rid of my treadmill when I got too sick for mine. Butnow I need to get another one, so I'll be shopping for thatsoon. I see a lot of folks at pulmonary rehab using the"arm cycles". I'm following closely your updates on yourtrial. Hope you're having a good day.Sher and Peggy,Just thinking of both of you and hoping you're doing well.Sher, how's the pain? Peggy, you're completely rid of allsniffles, I trust. We're actually having porch weather hereright now. Evenings are around 56 degrees and the dailyhighs are around 82 - really lovely. We need MORE of thisin Texas, God bless our poor, hot little selves who get twoweeks of winter as a rule.Hugs and blessings,Gwynne 57 Single-lung transplant for IPF on 4-3-08at UTHSC San Fort Worth, TX Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2008 Report Share Posted October 11, 2008 Bruce yes both lungs,, Gods blessing!! take care! george mo transplanted 9-8 L.>>> I'm so sorry to hear the sad news about . She> was so good to keep us posted even during some of> her worst times. She was an inspiration to many of us,> certainly to me. She seemed to strike a balance between> fighting her disease and accepting her condition, all the> while caring about us. I admired that she always kept it real,> and there was a sweetness about her that made it> impossible not to love her. I knew this was coming, but> I'm really sorry to lose her. God bless our newest angel.>> Brett,> Hang in there. You are amazing and have a terrific attitude.> That goes a LONG way. You're in my thoughts and prayers.>> ,> How is the HIPS program working out? Oh, I forgot - seems> like you might already be gone off to your island retreat,> which sounds heavenly. Just yesterday I saw the photos from> my daughter and son-in-law's honeymoon to Fiji. It's really> a long trip to get from here to there, but MAN is it gorgeous!!> They met quite a lot of folks from Australia at their resort,> and were even in the wedding of one couple they met - fun!> They thought the genuine kindness and gentleness of the> Fijian people was very touching.>> Shelia,> I was just thinking of you and hoping you're having a good> day. Hopefully every day gets better over time. Grieving is> so exhausting!>> To Kathy, Kerry, and all our brave ones waiting for the call,> I pray it happens soon and that you have peace.>> Tina,> I miss your posts. I'm sorry your current situation, not very> surprisingly, is so difficult, but hopefully it will improve soon.> It's so unfair to have to deal with all that mess and your> illness too.. I'm sending prayers for strength and courage.>> Judy,> I'm hoping you're doing much better. How have the treatments> been going and are you any stronger? How about the leg pain?> I hope you're home. You're in my thoughts a lot.>> Bruce,> I got on board too late to be included, but FYI, I'm on 16> prescription medications and 4 OTCs. Some of those meds> are taken in multiples several times a day, so it all adds up.> In addition to my one bad lung with IPF, I have GERD,> osteoporosis. chronic ear trouble for which I have tubes> in both ears, a bum hand from a bad break several years ago,> and year-round allergies. There are other lesser issues, but> mostly stuff I can deal with. Post lung transplant patients are> more susceptible to lymphoma and skin cancer, so I am> religious about sunscreen. I have basically 9 main doctors,> but the one I see by far the most often is my transplant> pulmonologist. Some of the rest of them are once-a-year> or only-in-emergency specialists. I have weekly labs now> that I'm on Coumadin, and monthly transplant clinic visits> at which they draw blood, do a chest x-ray, spirometry,> and doctor follow-up.> Did you ever get to the Kimbell or the zoo? If not, you'll> just have to come back. Call me when you do!> Can you believe it's been 6 months since my transplant?>> ,> It's good to see you back and great news that you had such> a good time. I figured you would!!>> Jane,> I got rid of my treadmill when I got too sick for mine. But> now I need to get another one, so I'll be shopping for that> soon. I see a lot of folks at pulmonary rehab using the> "arm cycles". I'm following closely your updates on your> trial. Hope you're having a good day.>> Sher and Peggy,> Just thinking of both of you and hoping you're doing well.> Sher, how's the pain? Peggy, you're completely rid of all> sniffles, I trust. We're actually having porch weather here> right now. Evenings are around 56 degrees and the daily> highs are around 82 - really lovely. We need MORE of this> in Texas, God bless our poor, hot little selves who get two> weeks of winter as a rule.>> Hugs and blessings,> Gwynne 57 Single-lung transplant for IPF on 4-3-08> at UTHSC San Fort Worth, TX> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2008 Report Share Posted October 12, 2008 To , Congratulations on the new lungs. I am impressed that you are already in rehab. I was in physical therapy a number of times since my transplant but after the doctor put me back on Valcyte this past May I started getting lots of bruises and cuts on my arms just barely touching something. The last that I went to therapy was in July because of the open wounds on my skin and the fact that I felt so weak in July and Aug. On Aug. 28th the doctor had me come back to Indy for another broncho and discovered I had Grade 2 lung rejection so he wanted me in the hsopital on Sept. 2 for 7 days. I ended up being there for 10 days because the treatment lowereed my WBC so low they had to cut the dosage of the Thymoglobulin in 1/2 the last 5 days. Fortunately this time they gave me a medication along with the Tymo that made me sleep for 2 or 3 hours in the afternoon when the IV was first started; and even though they would come in during the night to check my blood pressure I would go right back to sleep at night and so I actually got 8 hours of sleep each day while in the hospital, which It hought itself was a miracle. The med they gave me with the Thymo was to prevent the severe headache side effect that I had gotten when I was treated in Nov. and it worked thank goodness. My recent blood tests were good so they finally lowered my Prograf done to 3 mg twice a day which made me very happy as I believe it was the cause of the many tremors I had for so long. Also, on my own I chose to stop taking Lunesta and Zanaflex as I was tired of being fuzzy brained and drowsy every day. Then when I was doing more research about my med side effects I discovered that Klonopin along with Valcyte and Prednisone can cause the bruising and bleeding so I stopped taking the Klonopin. I recently also tried to reduce the number of Oxycodine (which was prescribed by a paint clinic for my back problems) and my Xanax; but my back has really bothered me this week whenever I was on my feet so I have gone back to the prescription dosage of taking the Oxi every 4 hours. My skin has healed finally; and I believe the moisturizer cream CarVe, which I was recommended to use by my dermatologist is actually strenghtening and protecting my skin. I use it twice a day on my arms and legs and bought it at Walgreens for those of you who have easy brusing you might try it. , What post transplant meds does your doctor have you on and where did you have your transplant? Love and Aloha, Judy (Ohio) IPF 11/06 Transplant 8/07 > > Beth thank you all the support, my hope is everyone who neeeds the same gift I've received, get new lungs soon. george mo transplanted 9-8 > > > > L. > > > I'm so sorry to hear the sad news about . She > was so good to keep us posted even during some of > her worst times. She was an inspiration to many of us, > certainly to me. She seemed to strike a balance between > fighting her disease and accepting her condition, all the > while caring about us. I admired that she always kept it real, > and there was a sweetness about her that made it > impossible not to love her. I knew this was coming, but > I'm really sorry to lose her. God bless our newest angel. > > Brett, > Hang in there. You are amazing and have a terrific attitude. > That goes a LONG way. You're in my thoughts and prayers. > > , > How is the HIPS program working out? Oh, I forgot - seems > like you might already be gone off to your island retreat, > which sounds heavenly. Just yesterday I saw the photos from > my daughter and son-in-law's honeymoon to Fiji. It's really > a long trip to get from here to there, but MAN is it gorgeous!! > They met quite a lot of folks from Australia at their resort, > and were even in the wedding of one couple they met - fun! > They thought the genuine kindness and gentleness of the > Fijian people was very touching. > > Shelia, > I was just thinking of you and hoping you're having a good > day. Hopefully every day gets better over time. Grieving is > so exhausting! > > To Kathy, Kerry, and all our brave ones waiting for the call, > I pray it happens soon and that you have peace. > > Tina, > I miss your posts. I'm sorry your current situation, not very > surprisingly, is so difficult, but hopefully it will improve soon. > It's so unfair to have to deal with all that mess and your > illness too. I'm sending prayers for strength and courage. > > Judy, > I'm hoping you're doing much better. How have the treatments > been going and are you any stronger? How about the leg pain? > I hope you're home. You're in my thoughts a lot. > > Bruce, > I got on board too late to be included, but FYI, I'm on 16 > prescription medications and 4 OTCs. Some of those meds > are taken in multiples several times a day, so it all adds up. > In addition to my one bad lung with IPF, I have GERD, > osteoporosis. chronic ear trouble for which I have tubes > in both ears, a bum hand from a bad break several years ago, > and year-round allergies. There are other lesser issues, but > mostly stuff I can deal with. Post lung transplant patients are > more susceptible to lymphoma and skin cancer, so I am > religious about sunscreen. I have basically 9 main doctors, > but the one I see by far the most often is my transplant > pulmonologist.. Some of the rest of them are once-a-year > or only-in-emergency specialists. I have weekly labs now > that I'm on Coumadin, and monthly transplant clinic visits > at which they draw blood, do a chest x-ray, spirometry, > and doctor follow-up. > Did you ever get to the Kimbell or the zoo? If not, you'll > just have to come back. Call me when you do! > Can you believe it's been 6 months since my transplant? > > , > It's good to see you back and great news that you had such > a good time. I figured you would!! > > Jane, > I got rid of my treadmill when I got too sick for mine. But > now I need to get another one, so I'll be shopping for that > soon. I see a lot of folks at pulmonary rehab using the > " arm cycles " . I'm following closely your updates on your > trial. Hope you're having a good day. > > Sher and Peggy, > Just thinking of both of you and hoping you're doing well. > Sher, how's the pain? Peggy, you're completely rid of all > sniffles, I trust. We're actually having porch weather here > right now. Evenings are around 56 degrees and the daily > highs are around 82 - really lovely. We need MORE of this > in Texas, God bless our poor, hot little selves who get two > weeks of winter as a rule. > > Hugs and blessings, > Gwynne 57 Single-lung transplant for IPF on 4-3-08 > at UTHSC San Fort Worth, TX > Quote Link to comment Share on other sites More sharing options...
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