Bronchoscopy results are back

[Guest guest]

The doc called with my bronch. results Monday. They found 2 types of

bacteria (I can't remember the names) that don't respond to Zythromax

or Levaquin which are the ones I've been on for the past few months.

I'm now on Bactrim DS (160mg 2x/day) Florastor (250mg 2x/day) and

clindamyacin (300mg 4x/day)for two weeks.

I still have the same symptoms but I feel like my body is finally

fighting the infection. I haven't visited the message board much

lately as I have been very tired and have been sleeping alot. I look

forward to a much needed energy boost!

Maybe next week I'll even join the chat.

Wishing you all the best,

/FL

IPF/ILD

>

> Hi to all. I have been a member for several weeks now reading post

> after post. By reading everyone else's posts it has belped me

greatly

> with my own struggles. I felt like I should introduce myself as you

> have all been such a positive part of my life in the recent weeks.

>

> My name is . I'm a 33 yr old female in FL with IPF/ILD.

> Officially diagnosed Jan. 2006. I have lived with symptoms of the

> disease for as long as I remember and was mis-diagnosed with

exercise

> induced asthma at age 9. I didn't find out I had a restricve lung

> disease until I was 21 yrs old and 5 months pregnant. After many

years,

> many doctors and a move from GA to FL we were blessed to find the

right

> doctor and a definite diagnosis.

>

> Although I had a few years of my IPF staying stable, it has taken a

> turn for the worse over the past 3 years. I now have 43% Vital Lung

> Capacity and my difussion capacity has wiggled between 16% and 48%

> recently. We have tried Prednison and Cellcept unsuccesfully as I

> experienced progression of scarring, a drop in diffusion, and

excessive

> weight gain. Both drugs were completely ceased in April this year.

I

> have managed to lose 30 lbs and have 15 more to go before I can

start

> the work up in hopes to be placed on the transplant list at

Mayo/Jax.

>

> Since July I've had 3 bouts of bronchitis & antibiotics. Last

Wednesday

> I had another brochoscopy and am waiting for the results.

>

> Thank you all for the support you have already given. I look

forward to

> doing the same you.

>

> Many Thanks,

> /FL

> IPF/ILD 06

>

[Guest guest]

, Rest and Recoup is the name of your game for now. Hope your up and perky soon.  Love & Prayers, PeggyFlorida,  IPF/UIP 2004"I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly."  The doc called with my bronch. results Monday. They found 2 types of bacteria (I can't remember the names) that don't respond to Zythromax or Levaquin which are the ones I've been on for the past few months. I'm now on Bactrim DS (160mg 2x/day) Florastor (250mg 2x/day) and clindamyacin (300mg 4x/day)for two weeks. I still have the same symptoms but I feel like my body is finally fighting the infection. I haven't visited the message board much lately as I have been very tired and have been sleeping alot. I look forward to a much needed energy boost!Maybe next week I'll even join the chat. Wishing you all the best,/FLIPF/ILD>> Hi to all. I have been a member for several weeks now reading post > after post. By reading everyone else's posts it has belped me greatly > with my own struggles. I felt like I should introduce myself as you > have all been such a positive part of my life in the recent weeks.> > My name is . I'm a 33 yr old female in FL with IPF/ILD. > Officially diagnosed Jan. 2006. I have lived with symptoms of the > disease for as long as I remember and was mis-diagnosed with exercise > induced asthma at age 9. I didn't find out I had a restricve lung > disease until I was 21 yrs old and 5 months pregnant. After many years, > many doctors and a move from GA to FL we were blessed to find the right > doctor and a definite diagnosis. > > Although I had a few years of my IPF staying stable, it has taken a > turn for the worse over the past 3 years. I now have 43% Vital Lung > Capacity and my difussion capacity has wiggled between 16% and 48% > recently. We have tried Prednison and Cellcept unsuccesfully as I > experienced progression of scarring, a drop in diffusion, and excessive > weight gain. Both drugs were completely ceased in April this year. I > have managed to lose 30 lbs and have 15 more to go before I can start > the work up in hopes to be placed on the transplant list at Mayo/Jax. > > Since July I've had 3 bouts of bronchitis & antibiotics. Last Wednesday > I had another brochoscopy and am waiting for the results.> > Thank you all for the support you have already given. I look forward to > doing the same you. > > Many Thanks, > /FL> IPF/ILD 06>