Guest guest Posted October 9, 2008 Report Share Posted October 9, 2008 Bruce and Gwynne, I would love to meet you both anytime! I have gone eight weeks without having one sick day. I would even take a day off to meet two of the air family's finest. I am very stable at the moment and enjoying life. I did end up getting a flu shot today. I had some hesitancy after reading that article about it, but rheumatologist recommended it strongly. I see the dr. at UTSW on election day for CT scan and PFTs. Let's start thinking about a breakfast, lunch, or dinner location. Bruce, I would love to go to the Kimball with you, or any other museum. I am a Fort Worth native and could give you the grand tour! As we know, life is too darn short to waste any time. I'm ready when you are. Gwynne, I intended to respond to your long, thoughtful letter, but somehow deleted it in the hundreds of letters I see a day. I appreciated all your words and your keen intellect. In that letter you named a FW pulmonologist whose name I've forgotten. Could you please give me his name again? Subject: Re: GwynneTo: Breathe-Support Date: Thursday, October 9, 2008, 2:36 PM GwynneI figured, as post transplant, your list of meds and doctors would belong.I did not make it to Kimbell but figured I'd come back for it, for theZoo, for the Museum of Science and History. Plenty of excuses to comeback to Fort Worth.We need to work on plans to meet Elisa. My schedule is most flexible andI can probably do anything that fits for the two of you.Hard to believe its been six months. Hard to believe it all period. Justthink in another six months you'll be a year old. Amazing how ourattitudes toward birthdays change or at least mine has. I use to hatethem, try to ignore them, not want to even admit to another year older.Now, they are each so precious. I can't imagine how your next one willfeel.>> I'm so sorry to hear the sad news about . She> was so good to keep us posted even during some of> her worst times. She was an inspiration to many of us,> certainly to me. She seemed to strike a balance between> fighting her disease and accepting her condition, all the> while caring about us. I admired that she always kept it real,> and there was a sweetness about her that made it> impossible not to love her. I knew this was coming, but> I'm really sorry to lose her. God bless our newest angel.>> Brett,> Hang in there. You are amazing and have a terrific attitude.> That goes a LONG way. You're in my thoughts and prayers.>> ,> How is the HIPS program working out? Oh, I forgot - seems> like you might already be gone off to your island retreat,> which sounds heavenly. Just yesterday I saw the photos from> my daughter and son-in-law's honeymoon to Fiji. It's really> a long trip to get from here to there, but MAN is it gorgeous!!> They met quite a lot of folks from Australia at their resort,> and were even in the wedding of one couple they met - fun!> They thought the genuine kindness and gentleness of the> Fijian people was very touching.>> Shelia,> I was just thinking of you and hoping you're having a good> day. Hopefully every day gets better over time. Grieving is> so exhausting!>> To Kathy, Kerry, and all our brave ones waiting for the call,> I pray it happens soon and that you have peace.>> Tina,> I miss your posts. I'm sorry your current situation, not very> surprisingly, is so difficult, but hopefully it will improve soon.> It's so unfair to have to deal with all that mess and your> illness too. I'm sending prayers for strength and courage.>> Judy,> I'm hoping you're doing much better. How have the treatments> been going and are you any stronger? How about the leg pain?> I hope you're home. You're in my thoughts a lot.>> Bruce,> I got on board too late to be included, but FYI, I'm on 16> prescription medications and 4 OTCs. Some of those meds> are taken in multiples several times a day, so it all adds up.> In addition to my one bad lung with IPF, I have GERD,> osteoporosis. chronic ear trouble for which I have tubes> in both ears, a bum hand from a bad break several years ago,> and year-round allergies. There are other lesser issues, but> mostly stuff I can deal with. Post lung transplant patients are> more susceptible to lymphoma and skin cancer, so I am> religious about sunscreen. I have basically 9 main doctors,> but the one I see by far the most often is my transplant> pulmonologist. Some of the rest of them are once-a-year> or only-in-emergency specialists. I have weekly labs now> that I'm on Coumadin, and monthly transplant clinic visits> at which they draw blood, do a chest x-ray, spirometry,> and doctor follow-up.> Did you ever get to the Kimbell or the zoo? If not, you'll> just have to come back. Call me when you do!> Can you believe it's been 6 months since my transplant?>> ,> It's good to see you back and great news that you had such> a good time. I figured you would!!>> Jane,> I got rid of my treadmill when I got too sick for mine. But> now I need to get another one, so I'll be shopping for that> soon. I see a lot of folks at pulmonary rehab using the> "arm cycles". I'm following closely your updates on your> trial. Hope you're having a good day.>> Sher and Peggy,> Just thinking of both of you and hoping you're doing well.> Sher, how's the pain? Peggy, you're completely rid of all> sniffles, I trust. We're actually having porch weather here> right now. Evenings are around 56 degrees and the daily> highs are around 82 - really lovely. We need MORE of this> in Texas, God bless our poor, hot little selves who get two> weeks of winter as a rule.>> Hugs and blessings,> Gwynne 57 Single-lung transplant for IPF on 4-3-08> at UTHSC San Fort Worth, TX> Quote Link to comment Share on other sites More sharing options...
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