Fatigue and PSC progression?

[Guest guest]

Hello fellow PSC Groupies:

Am keepiug up with the posts, but have to admit that when things are

going well with Fred's PSC, we try to pretty much forget about it, thus

my non-involvement on the board.

I have to say Fred's done very well since his March 04 diagnosis. His

only PSC symptom has been mild fatigue until recently.(Thank God for

retirement!)

The mild fatigue has become excessive. I'm wondering if the excessive

fatigue is a sign of disease progression? Or could mean nothing? He sees

his hepatologist in July. He's agreed to take SAM-e, but I don't know

that that will help his energy. He does take fish oil, a multi-vitamin,

Asacol for the UC, and of course Actigall for the PSC.

He also has an excellent diet, does not drink or smoke, is not

overweight, and hikes or walks about 4 times a week, although he's

requiring a lot more motivation to exercise!

I'll also check the PSC literature to see what I can find out about the

relationship between fatigue level and disease progression.

Thanks for all that everyone does in this group to support each and

find/fund a cure!

Wife of Fred

PSC, 03/04, UC 03/06 PP (Pretty Pooped) 05/07