Re: Transplant evaluation.

[Guest guest]

Z, I do remember the day I met with the transplant coordinator and the team.. NOT to excited about it.If I were 15 years younger I would probably go for it. But I am just sick and tired if being sick and tired. It is a lot to think about. Can be scary but you'll make the right decision for you.I am glad for you that things are moving right along. You know you will be in my prayers every stepof the way. Try to rest as much as possible.  Love & Prayers, PeggyFlorida,  IPF/UIP 2004"I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly."  I've been back to see the transplant team today.My head is spinning as we've been talking about the more unpleasant facts, figures and statistics, but all things that I need to know to be able to make an informed decision in the end.As I have made headway with my weight they have decided to go ahead and book me in for the transplant admission, probably for january next year.  It's a case of going in on the monday, having a load more tests until wednesday night, then all my details going to the transplant board on thursday morning, when they will tell me whether or not I can be listed.  At that point it is my decision whether to BE listed or not.  He is disappointed that I didn't get to see the dietician sooner, and therefore haven't lost more weight, and also that I still haven't been started on any treatment for the PH.  This has got worse.  I thought it had as I have been feeling more breathless, but my pft's have remained fairly stable.   However I have received a call from that particular hospital today, from the admissions, (I have been told that they want me in for a couple of days to put me on the meds and make sure that they don't give me any unwanted side effects) so perhaps that's sorted now.I'm feeling quite ambivalent about things at the moment as it's too big to think of right now.  I know they have a responsibility to tell me the down side, but today, I've just heard too many of them.Love Ze xx

[Guest guest]

Zena,

Transplant is such a huge decision to make without all the negative comments. Your head must be reeling. They say it takes 7 positives to counteract the negatives so I've made a to do list for you:

Eat Chocolate

Get a massage

Get a pedicure

See a great movie

Buy something frivolous

Kiss Lily

Exercise with Rob

Eat more chocolate

Seriously though, I am keeping you in my prayers and ask that everything goes smooth for you, you get the meds you need AND when it comes time for the decision you have a clear sense of peace. Take care Z-

R. (52) Sarcoid/PF 3/2006 Carlsbad, California

Subject: Transplant evaluation.To: Breathe-Support Date: Wednesday, October 15, 2008, 2:11 PM

I've been back to see the transplant team today.

My head is spinning as we've been talking about the more unpleasant facts, figures and statistics, but all things that I need to know to be able to make an informed decision in the end.

As I have made headway with my weight they have decided to go ahead and book me in for the transplant admission, probably for january next year. It's a case of going in on the monday, having a load more tests until wednesday night, then all my details going to the transplant board on thursday morning, when they will tell me whether or not I can be listed. At that point it is my decision whether to BE listed or not.

He is disappointed that I didn't get to see the dietician sooner, and therefore haven't lost more weight, and also that I still haven't been started on any treatment for the PH. This has got worse. I thought it had as I have been feeling more breathless, but my pft's have remained fairly stable. However I have received a call from that particular hospital today, from the admissions, (I have been told that they want me in for a couple of days to put me on the meds and make sure that they don't give me any unwanted side effects) so perhaps that's sorted now.

I'm feeling quite ambivalent about things at the moment as it's too big to think of right now. I know they have a responsibility to tell me the down side, but today, I've just heard too many of them.

Love Ze xx

[Guest guest]

Oh , This should be called "The Air Family Diet".. sounds puuuuurrrrfect !!!!!!! I'm in..Z this is surly a stress reducer...   Love & Prayers, PeggyFlorida,  IPF/UIP 2004"I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly."  Zena,  Transplant is such a huge decision to make without all the negative comments.  Your head  must be reeling.  They say it takes 7 positives to counteract the negatives so I've made a to do list for you: Eat ChocolateGet a massageGet a pedicureSee a great movieBuy something frivolousKiss LilyExercise with RobEat more chocolateSeriously though, I am keeping you in my prayers and ask that everything goes smooth for you, you get the meds you need AND when it comes time for the decision you have a clear sense of peace.  Take care Z- R. (52)  Sarcoid/PF  3/2006   Carlsbad, California--- On Wed, 10/15/08, Zena <zeasman (AT) btinternet (DOT) com> wrote:From: Zena <zeasman (AT) btinternet (DOT) com>Subject: Transplant evaluation.To: Breathe-Support Date: Wednesday, October 15, 2008, 2:11 PMI've been back to see the transplant team today.My head is spinning as we've been talking about the more unpleasant facts, figures and statistics, but all things that I need to know to be able to make an informed decision in the end.As I have made headway with my weight they have decided to go ahead and book me in for the transplant admission, probably for january next year.  It's a case of going in on the monday, having a load more tests until wednesday night, then all my details going to the transplant board on thursday morning, when they will tell me whether or not I can be listed.  At that point it is my decision whether to BE listed or not.  He is disappointed that I didn't get to see the dietician sooner, and therefore haven't lost more weight, and also that I still haven't been started on any treatment for the PH.  This has got worse.  I thought it had as I have been feeling more breathless, but my pft's have remained fairly stable.   However I have received a call from that particular hospital today, from the admissions, (I have been told that they want me in for a couple of days to put me on the meds and make sure that they don't give me any unwanted side effects) so perhaps that's sorted now.I'm feeling quite ambivalent about things at the moment as it's too big to think of right now.  I know they have a responsibility to tell me the down side, but today, I've just heard too many of them.Love Ze xx