Re: Recent Diagnosis/How Much Time?

[Guest guest]

Welcome to the forum!

Sorry to hear of your diagnosis but you found a great place for

information and support. PSC is very unpredictable. It affects

everyone differently and there is no way to know what affect it will

have on you. We have people on this forum who have had PSC for many

years without major complications. We have many who have had liver

transplants and sadly, some who have lost the battle. I am in the

second catagory. I was diagnosed in 1989 with PSC. In 1997 I recieved

a liver transplant. Unfortunatly my PSC recurred and I recieved

another transplant in 2004. Right now I am doing great and have a

normal life. There are many people here who went through what you're

going through right now and we all will help with any question that you

may have. My advice to you is to stay positive, this isn't the end of

the road, just a bump.

>

I just want to have an idea of what to

> expect next.

>

[Guest guest]

Hello,

First off, don't panic, yes it sounds very scary and it is. I can

remember back in 1998 when my wife Tina was diagnosed with PSC & UC. We

did the same thing you are doing and went out and told our close family

members and shed many tear's with them. At that time the info we had

and found made us think she wouldn't be with us long and it felt like

the bottom had just dropped out of our life.

However, since then my wife has finished Dental School in 2006 (6

years of very tuff scholling) is now Dr. Tina, and, is now buying a

Dental office. Also during her last year of Dental school she had our

second doughter. Call her crazy, because that is what i thought when

she told me what she was going to try and do. My point is your life

doesn't need to be put on total hold.

PSC is slow progressing, however, it is different for every

person. Many people can live for years with no problems at all, and

some have many problems throughout. Do you have any idea what stage you

are in, if the Dr. has been able to tell you that yet? What symptoms if

any do you have?

You have found a great place for info and support, many people

here have a lot to offer you in terms of answering questions. You have

a road filled with many questions ahead of you like all of us, we just

take them one day at a time.

Jeff.

>

> Hi,

>

> I was diagnosed with PSC last week, and have been busy tracking down

> my family members and telling them in person one by one. I'm handling

> it well, and so are they. But, does anyone know how fast PSC can

> progress? There's limited information out there, at least that I have

> found. But, what can one expect in terms of life expectancy? I hate

to

> sound morbid, really, but I just need to know that there are some of

> you who've had many great years even after diagnosis. I am taking

Urso

> now, I don't know anything about any of the other meds that are

> mentioned in the other posts. I just want to have an idea of what to

> expect next.

>