Re: Geeta and All...........................................

[Guest guest]

Terri, Are you by chance lowering from prednisone? I lowered to much to quickly and had the worst pain I have ever had in my joints. My knees were the worst. I couldn't stand and just cried the whole day until my Doc was called and he had me to up my dosage and with in an hour the pain was gone.I had to reduce at 2 1/2mg every two weeks.   Could be.. Love & Prayers, PeggyFlorida,  IPF/UIP 2004"I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly."  >> Thank you for your concern and love.> > My pulmo called just a few min. ago and said "DO NOT RAISE YOUR OXYGEN > ANY HIGHER THAN #5 AT ANY TIME". I said what about when I walk outside, > he said ok, #6, but when you sit down, you must turn it right back to > 5. He doesn't want me to be any higher than that as a steady thing.> > He said if I want to, I can start taking 12 1/2mg of Prednisone > starting tomorrow instead of 15. See what happens with that.> > I mentioned the numbness in my feet, ankles and legs when I get into > bed at night and my legs aching so badly during the day, he said when > you see your GP on Wednesday, tell her about that stuff too. And the > cramping in my legs too.> > I LOVE YOU THIS DAY> MARY LOU - RICHMOND VA> IPF - 02>Hi! I'm brand-new to the group, but your post caught my attention. Iam also having pain level 10 cramps in my joints that usually lastabout 8 hours, if I'm lucky. My Pulmo-Doc said to see my Rheumo Doc,who said it was probably just a fibromyalgia flare from the stress ofthe lung biopsy and fatal diagnosis.My lower limb pain is usually in one knee joint at a time, although itattacked both of my ankles for two days last week.Nobody has ever related it to IPF, yet it is brand new to my body,starting at the same time as my coughing up rusty blood, which drovemy to the Doc for the diagnosis and and immediate 9 day stay with allthe tests.I do NOT have rheumatoid arthritis, just osteo for a 57 year oldnon-smoker. Has someone started a thread about this incredibly painful oddity? Iwas already suffering from co-morbidity, so I used the strongest painmeds you can get (orally), and they couldn't touch the joint aches.Perhaps this is a part of IPF, that has yet to be written up in theliterature.Terri

[Guest guest]

very interesting Peggy.

mlp

> >

> > Thank you for your concern and love.

> >

> > My pulmo called just a few min. ago and said " DO NOT RAISE YOUR

> OXYGEN

> > ANY HIGHER THAN #5 AT ANY TIME " . I said what about when I walk

> outside,

> > he said ok, #6, but when you sit down, you must turn it right

back to

> > 5. He doesn't want me to be any higher than that as a steady

thing.

> >

> > He said if I want to, I can start taking 12 1/2mg of Prednisone

> > starting tomorrow instead of 15. See what happens with that.

> >

> > I mentioned the numbness in my feet, ankles and legs when I get

into

> > bed at night and my legs aching so badly during the day, he said

when

> > you see your GP on Wednesday, tell her about that stuff too. And

the

> > cramping in my legs too.

> >

> > I LOVE YOU THIS DAY

> > MARY LOU - RICHMOND VA

> > IPF - 02

> >

> Hi! I'm brand-new to the group, but your post caught my attention. I

> am also having pain level 10 cramps in my joints that usually last

> about 8 hours, if I'm lucky. My Pulmo-Doc said to see my Rheumo Doc,

> who said it was probably just a fibromyalgia flare from the stress

of

> the lung biopsy and fatal diagnosis.

>

> My lower limb pain is usually in one knee joint at a time, although

it

> attacked both of my ankles for two days last week.

>

> Nobody has ever related it to IPF, yet it is brand new to my body,

> starting at the same time as my coughing up rusty blood, which drove

> my to the Doc for the diagnosis and and immediate 9 day stay with

all

> the tests.

>

> I do NOT have rheumatoid arthritis, just osteo for a 57 year old

> non-smoker.

>

> Has someone started a thread about this incredibly painful oddity? I

> was already suffering from co-morbidity, so I used the strongest

pain

> meds you can get (orally), and they couldn't touch the joint aches.

>

> Perhaps this is a part of IPF, that has yet to be written up in the

> literature.

>

> Terri

>