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In a message dated 3/30/2006 10:24:55 A.M. Eastern Standard Time,

jdarmo@... writes:

I have not really

given up the bad foods. Now I just have a " taste " . This works for me.

Hi Joe,

This is the same thing I do. A bite of a piece of pie, cake or candy bar

taste so much better than when I would eat too much of it. I was just eating,

not really enjoying what I was eating. Now, I enjoy food so much more since

I'm not stuffing myself.

hugs

Eunice

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  • 2 years later...

HAPPY HALLOWEEN

Hi, not sure where to start with me. But i can tell you it is great

to finally find someone to listen to and knows what you are feeling.

I have read some of the messages. I am 56, finally diagnosed with

IPF, 2006, possibly secondary to Scleroderma, have raynauds and

being treated for pulm. hypertension. Refuse to stop

working;exhausted needless to say and some days just too difficult

to play the game that nothing is wrong. Have been using oxygen since

diagnosed. 10L for sleep prior. I use 6L walking with conserving

device going through 1 small tank in an hour. Frustrating, whoever

said white noise is good. Peace and quiet would be the best. I am on

the transplant list, but too healthy yet. ha ha.. Doing my yearly

testing next week and the following. I have been told that they will

try and prolong the transplant as long as possible. I am so sorry,

all are dealing with this but i think it is great you can share with

each other. I have been rebelling not using oxygen: pride, exhausted

carrying in/out. Become very absent-minded when i am not using it.

And, as someone mentioned the docs don't necessarily know what the

need is. The lightheadedness, leg fatigue, decrease in clarity.

Sorry, to be so wordy. I am a fighter, and on top of that as i tell

my docs..a stubborn, dumb pollock. And with the LORD's strength.

patti

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