Re: Need some good news (SDGG76)

[Guest guest]

how true your email is .... You could die tomorrow in your car..but we still drive... I hope none of us do...yes we all have PSC here..and a positive attitude is a must, but there is nothing wrong with a pitty party. Then I call a friend and talk...Trust me guy STRESS is the worst thing you can do to your body with PSC U/C it makes me sick...tell your girlfriend and let her read up on PSC and some of the E-mails we all aren't sitting in a care center just wasting away.. Most of us dont even look sick...I'm 53 i was out this last weekend dancing for 3 hrs each nite And all my DR's know that and they say that is good for me... i will pay for the dancing this week by sleeping....Plus I'm trying to find a man to date and i tell them right off i have PSC none of them have ran away yet and if

they do owell life goes on..... Jeanne 2/2002 stage 4 Wilkinson wrote: I think the girl has the right to decide if she wants to be with you or not. It doesn't seem fair that you make that decision for her. You could live many, many years. You could die of old age before PSC even thinks about becoming a problem. Don't live your life expecting the worse. I believe a positive attitude goes a very long way with your

health.I have someone in my life and I do have those down moments when I think that he would be better off with someone else. Now my health is really great but I worry about when that time comes when it isn't. I do have those rare times when I'm just too tired to keep up but he understands and it's ok. He told me that this is where he wants to be. I was told once not to live life like I was dying. I should die while I was living life. I don't know if that makes any sense to anybody else but it made tons of sense to me.Good Luck! PSC '01>>> "sdggn76" <sdggn76 (AT) yahoo (DOT) com> 6/22/2007 7:40 PM >>>24yr old male diagnosed with stage 2-3 PSC about a year ago at theMayo Clinic in MN. My only symptom was elevated liver enzymes. Ihave since started taking Urso250 and my enzymes are back to normal. Now my doc in Chicago wants me to go back to Mayo to get anotherbiopsy

to see where things are. I started dating a girl recently and have yet to tell her that I havePSC, especially since I still feel like I don't know much aboutit...but I wonder...I started thinking from a girl's point ofview...would I want to date a guy who will most likely take a turn forthe worse sometime in the next 10 or so years??...right when we mighthave kids running around? In looking out for her, shouldn't I justbreak things off before she/I get super attached? I just can'tjustify starting a new relationship when the statistics are not on myside...but then again I stilll don't know much about the disease.Where would you all go for the most up to date information on thedisease? I know I must sound very pessimistic about the girl but..I alreadyknow she wants to have lots of kids and all this...as a guy who has adisease which carries with it a median life expectancy of 9-12 yearsafter dianosis I

just can't see how it would work...with her or anygirl......but I need to learn much more about the disease...I coulduse some uplifting stories/examples because thus far I've only founddepressing info/stories...isnt there anyone out there that lived along/healthy life post diagnosis??===========================================================This message is confidential, intended onlyfor the named recipient(s) and may containinformation that is privileged or exempt fromdisclosure under applicable law. If you arenot the intended recipient(s), you are notifiedthat the dissemination, distribution or copyingof this message is strictly prohibited. If youreceived this message in error, or are not thenamed recipient(s), please notify the senderand delete this e-mail from your computer.ETMC has implemented secure messaging forcertain types of messages. For more

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[Guest guest]

I use to get angry with my best friend because she would say that (about getting

hit by a car). I told her that I felt like I was standing in the middle of the

road in a bucket of cement watching as the car speeded toward me. Luckily, I

have gotten pass that.

I usually have a pity party when I end up in the Hospital because of Crohn's.

Once I get home and get my strength back, I'm fine.

I had to go and see a urologist recently about a problem with my kidney. He

made the statement that he would not pick me out of a crowd as being sick. I

thanked him and thought about how hard I work not to look sick but how

frustrating it is not to always be taken seriously because I don't look sick.

As for the dancing, I'm 44 and I pretty certain that I could not I dance for 3

hours. Not to mention the fact that I can't dance to begin with. This has

nothing to do with PSC but more with the fact that I have 2 left feet! lol

PSC '01

>>> " jeanne " 6/25/2007 11:05 AM >>>

how true your email is .... You could die tomorrow in your car..but we

still drive...

I hope none of us do...yes we all have PSC here..and a positive attitude

is a must, but there is nothing wrong with a pitty party. Then I call a

friend

and talk...Trust me guy STRESS is the worst thing you can do to your body

with PSC U/C it makes me sick...tell your girlfriend and let her read up on

PSC

and some of the E-mails we all aren't sitting in a care center just wasting

away..

Most of us dont even look sick...I'm 53 i was out this last weekend dancing

for 3

hrs each nite And all my DR's know that and they say that is good for me...

i will pay for the dancing this week by sleeping....Plus I'm trying to find a

man

to date and i tell them right off i have PSC none of them have ran away yet

and if they do owell life goes on.....

Jeanne

2/2002

stage 4

Wilkinson wrote:

>>> " sdggn76 " 6/22/2007 7:40 PM >>>

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