Re: THANKS, everyone for your thoughts and posts....

[Guest guest]

ML ... God Bless you and hold you close. There are times when we just want to "let go". We don't give up we just give out...

I'm praying for God to strengthen you and give you additional endurance.

I'll be watching for your Dr. input. Do call ASAP.

Love ya ML..

MamaSher, age 70. IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

THANKS, everyone for your thoughts and posts....

I feel terrible tonight. Went to daughters for the day. Yesterday I made some pumpkin pie, (splenda) fantastic tasting pie, (no crust), and each day now am feeling worse. I am calling pulmo in a.m. to talk again. I am down to 12 1/2 mg pred. for 2 days now. My weight is still going up, and I am not breathing well at all. Hard to get my breath, am never any lower than #5 sitting. My sat go down fast if it is not set right for Me.I don't know how long I will be here, but I am not expecting much anymore, am not depressed, just am tired of fighting for a good breath. Seems I just can't walk and breath at the same time.I LOVE YOU THIS DAYMARY LOU - RICHMOND VAIPF - 02 (AND HOLDING I THINK)

[Guest guest]

Oh NO ML...that's not good at all...how distressing for you! >> I feel terrible tonight. Went to daughters for the day. Yesterday I > made some pumpkin pie, (splenda) fantastic tasting pie, (no crust), and > each day now am feeling worse. I am calling pulmo in a.m. to talk > again. I am down to 12 1/2 mg pred. for 2 days now. My weight is > still going up, and I am not breathing well at all. Hard to get my > breath, am never any lower than #5 sitting. My sat go down fast if it > is not set right for Me.> > I don't know how long I will be here, but I am not expecting much > anymore, am not depressed, just am tired of fighting for a good > breath. Seems I just can't walk and breath at the same time.> > I LOVE YOU THIS DAY> MARY LOU - RICHMOND VA> IPF - 02 (AND HOLDING I THINK)>

[Guest guest]

ML

With all the oxygen talk we sort of overlooked one thing. You said down

to 12.5 mg prednisone for just two days. Some of your reactions could

well be to the prednisone drop. How long were you at 15 mg before this

drop? The pace at which people can come down and the impact the drop has

on them varies widely.

> >

> > I feel terrible tonight. Went to daughters for the day. Yesterday I

> > made some pumpkin pie, (splenda) fantastic tasting pie, (no crust),

> and

> > each day now am feeling worse. I am calling pulmo in a.m. to talk

> > again. I am down to 12 1/2 mg pred. for 2 days now. My weight is

> > still going up, and I am not breathing well at all. Hard to get my

> > breath, am never any lower than #5 sitting. My sat go down fast if

it

> > is not set right for Me.

> >

> > I don't know how long I will be here, but I am not expecting much

> > anymore, am not depressed, just am tired of fighting for a good

> > breath. Seems I just can't walk and breath at the same time.

> >

> > I LOVE YOU THIS DAY

> > MARY LOU - RICHMOND VA

> > IPF - 02 (AND HOLDING I THINK)

> >

>

[Guest guest]

Lou so sorry you are having a rough time right now. In my

prayers, Patti Friend, newbie

>

> I feel terrible tonight. Went to daughters for the day.

Yesterday I

> made some pumpkin pie, (splenda) fantastic tasting pie, (no

crust), and

> each day now am feeling worse. I am calling pulmo in a.m. to talk

> again. I am down to 12 1/2 mg pred. for 2 days now. My weight is

> still going up, and I am not breathing well at all. Hard to get

my

> breath, am never any lower than #5 sitting. My sat go down fast

if it

> is not set right for Me.

>

> I don't know how long I will be here, but I am not expecting much

> anymore, am not depressed, just am tired of fighting for a good

> breath. Seems I just can't walk and breath at the same time.

>

> I LOVE YOU THIS DAY

> MARY LOU - RICHMOND VA

> IPF - 02 (AND HOLDING I THINK)

>