Re: On CCFA.org - good job !

[Guest guest]

Thanks for pointing this out Arne. I'm delighted that CCFA has

recognized PSC in this way. The PSC literature site has pretty good

coverage of IBD (Crohn's and UC) and also a lot of

the 'extraintestinal' manifestations of IBD. It has taken over 4 years

to compile and is still a huge amount of work to maintain and keep

updated. I seem to be spending more of my time on this ... and

consequently less time on the support group (sorry). I feel a bit

dismayed that I havn't completed the next newsletters and the CD of the

2007 conference. But hopefully these will get done soon. I'd like to

apologize for the delays.

I do hope that athan, Tim and Ken continue to improve after their

transplants, and that gets a liver soon. I send my prayers and

best wishes to athan, Tim, Ken, Barb and .

Best regards,

Dave R.

[Guest guest]

All good things are worth waiting for Dave !!We appreciate all your efforts and they should be on your own time frame.In the meantime, I am trying to keep traffic on the Road to ville !LeeThanks for pointing this out Arne. I'm delighted that CCFA has recognized PSC in this way. The PSC literature site has pretty good coverage of IBD (Crohn's and UC) and also a lot of the 'extraintestinal' manifestations of IBD. It has taken over 4 years to compile and is still a huge amount of work to maintain and keep updated. I seem to be spending more of my time on this ... and consequently less time on the support group (sorry). I feel a bit dismayed that I havn't completed the next newsletters and the CD of the 2007 conference. But hopefully these will get done soon. I'd like to apologize for the delays. .