Guest guest Posted November 8, 2008 Report Share Posted November 8, 2008 Bruce sounds simple enough;i have seen how they have progressed with the concentrators etc. now i can not resist.. while in the all those waiting rooms could you make sure you take your computer, some sketching paper and pencil and create a solar powered ... patti > > > > > > > > > > > > From: Beth mbmurtha (AT) yahoo (DOT) com> > > > > > > Subject: Re: THANKS, everyone for your > > > > thoughts and > > > > > posts.... > > > > > > To: Breathe-Support@ yahoogroups. com > > > > > > Date: Sunday, November 2, 2008, 5:15 PM > > > > > > > > > > > > > > > > > > Lou, > > > > > > I'm sorry that you are feeling so terrible. I'm glad that you > > > > are > > > > > talking to your doctor tomorrow. Please ask him to explain why > > > > you > > > > > cannot use more than 5 liters of O2. What does he want you to > > do > > > > if your > > > > > sats are below 90 with 5 liters? These are reasonable questions > > > > and you > > > > > need answers that you can understand. > > > > > > Please save a piece of that pie for me! You are in my prayers > > > > dear > > > > > lady! > > > > > > > > > > > > Beth-Moderator > > > > > > Fibrotic NSIP 06/06 UCTD 06/08 > > > > > > > > > > > > " Take chances, make mistakes and get messy! " > > > > > > Miss Frizzle > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > --------------------------------------------------------- - > > > > > > From: Lou mlpretired (AT) aol (DOT) com> > > > > > > To: Breathe-Support@ yahoogroups. com > > > > > > Sent: Sunday, November 2, 2008 5:00:58 PM > > > > > > Subject: THANKS, everyone for your thoughts > > > > and > > > > > posts.... > > > > > > > > > > > > > > > > > > I feel terrible tonight. Went to daughters for the day. > > > > Yesterday I > > > > > > made some pumpkin pie, (splenda) fantastic tasting pie, (no > > > > crust), > > > > > and > > > > > > each day now am feeling worse. I am calling pulmo in a.m. to > > > > talk > > > > > > again. I am down to 12 1/2 mg pred. for 2 days now. My weight > > > > is > > > > > > still going up, and I am not breathing well at all. Hard to > > > > get my > > > > > > breath, am never any lower than #5 sitting. My sat go down > > > > fast if it > > > > > > is not set right for Me. > > > > > > > > > > > > I don't know how long I will be here, but I am not expecting > > > > much > > > > > > anymore, am not depressed, just am tired of fighting for a > > good > > > > > > breath. Seems I just can't walk and breath at the same time. > > > > > > > > > > > > I LOVE YOU THIS DAY > > > > > > MARY LOU - RICHMOND VA > > > > > > IPF - 02 (AND HOLDING I THINK) > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2008 Report Share Posted November 8, 2008 Patti ... you put on a mask for your friends because..........? Maybe if you know why you do it you will be able to stop doing it. We are who we are and we have what we have. We need strength to conquer the important stuff! MamaSher, age 70. IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! THANKS, everyone for your > thoughts > > and> > > posts....> > > >> > > >> > > > I feel terrible tonight. Went to daughters for the day. > > Yesterday I> > > > made some pumpkin pie, (splenda) fantastic tasting pie, (no > > crust),> > > and> > > > each day now am feeling worse. I am calling pulmo in a.m. to > > talk> > > > again. I am down to 12 1/2 mg pred. for 2 days now. My > weight > > is> > > > still going up, and I am not breathing well at all. Hard to > > get my> > > > breath, am never any lower than #5 sitting. My sat go down > > fast if it> > > > is not set right for Me.> > > >> > > > I don't know how long I will be here, but I am not expecting > > much> > > > anymore, am not depressed, just am tired of fighting for a > good> > > > breath. Seems I just can't walk and breath at the same time.> > > >> > > > I LOVE YOU THIS DAY> > > > MARY LOU - RICHMOND VA> > > > IPF - 02 (AND HOLDING I THINK)> > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2008 Report Share Posted November 9, 2008 SHER always protecting and taking care of everyone else..Just starting to learn to take care of me. And learning that i need the strength for the important and fun things i want to do..patti > > > > > > > > > > From: Beth mbmurtha (AT) yahoo (DOT) com> > > > > > Subject: Re: THANKS, everyone for your > > > thoughts and > > > > posts.... > > > > > To: Breathe-Support@ yahoogroups. com > > > > > Date: Sunday, November 2, 2008, 5:15 PM > > > > > > > > > > > > > > > Lou, > > > > > I'm sorry that you are feeling so terrible. I'm glad that > > you > > > are > > > > talking to your doctor tomorrow. Please ask him to explain > why > > > you > > > > cannot use more than 5 liters of O2. What does he want you > to > > do > > > if your > > > > sats are below 90 with 5 liters? These are reasonable > > questions > > > and you > > > > need answers that you can understand. > > > > > Please save a piece of that pie for me! You are in my > > prayers > > > dear > > > > lady! > > > > > > > > > > Beth-Moderator > > > > > Fibrotic NSIP 06/06 UCTD 06/08 > > > > > > > > > > " Take chances, make mistakes and get messy! " > > > > > Miss Frizzle > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > --------------------------------------------------------- - > > > > > From: Lou mlpretired (AT) aol (DOT) com> > > > > > To: Breathe-Support@ yahoogroups. com > > > > > Sent: Sunday, November 2, 2008 5:00:58 PM > > > > > Subject: THANKS, everyone for your > > thoughts > > > and > > > > posts.... > > > > > > > > > > > > > > > I feel terrible tonight. Went to daughters for the day. > > > Yesterday I > > > > > made some pumpkin pie, (splenda) fantastic tasting pie, > (no > > > crust), > > > > and > > > > > each day now am feeling worse. I am calling pulmo in a.m. > to > > > talk > > > > > again. I am down to 12 1/2 mg pred. for 2 days now. My > > weight > > > is > > > > > still going up, and I am not breathing well at all. Hard > to > > > get my > > > > > breath, am never any lower than #5 sitting. My sat go down > > > fast if it > > > > > is not set right for Me. > > > > > > > > > > I don't know how long I will be here, but I am not > expecting > > > much > > > > > anymore, am not depressed, just am tired of fighting for a > > good > > > > > breath. Seems I just can't walk and breath at the same > time. > > > > > > > > > > I LOVE YOU THIS DAY > > > > > MARY LOU - RICHMOND VA > > > > > IPF - 02 (AND HOLDING I THINK) > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2008 Report Share Posted November 9, 2008 Patti ... sounds like you are on the right track...saving energy for YOU. It was hard for me too to stop being a caretaker...not careGIVER. Somehow I felt a sense of obligation to be there for everyone in my life. Usually my kids. Then I would be drained until the next 'thing' came up and I never was able to say NO! Sister, I can say no now. The kids are used to it. The hardest thing was to not baby-sit any more. Visits are one thing we love. But no more babysitting. Like 2-3 days at a time while the parents go play and we cope with school schedules, fussy eaters, and constant noise. WE simply outgrew it. I love it when the little ones visit or we go see them for a short time...then home. Ahhhh, quiet. lol. Do take good care of you. How much family support do you have? MamaSher, age 70. IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! THANKS, everyone for your > > thoughts > > > and> > > > posts....> > > > >> > > > >> > > > > I feel terrible tonight. Went to daughters for the day. > > > Yesterday I> > > > > made some pumpkin pie, (splenda) fantastic tasting pie, > (no > > > crust),> > > > and> > > > > each day now am feeling worse. I am calling pulmo in a.m. > to > > > talk> > > > > again. I am down to 12 1/2 mg pred. for 2 days now. My > > weight > > > is> > > > > still going up, and I am not breathing well at all. Hard > to > > > get my> > > > > breath, am never any lower than #5 sitting. My sat go down > > > fast if it> > > > > is not set right for Me.> > > > >> > > > > I don't know how long I will be here, but I am not > expecting > > > much> > > > > anymore, am not depressed, just am tired of fighting for a > > good> > > > > breath. Seems I just can't walk and breath at the same > time.> > > > >> > > > > I LOVE YOU THIS DAY> > > > > MARY LOU - RICHMOND VA> > > > > IPF - 02 (AND HOLDING I THINK)> > > > >> > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2008 Report Share Posted November 9, 2008 Patti ... sounds like you are on the right track...saving energy for YOU. It was hard for me too to stop being a caretaker...not careGIVER. Somehow I felt a sense of obligation to be there for everyone in my life. Usually my kids. Then I would be drained until the next 'thing' came up and I never was able to say NO! Sister, I can say no now. The kids are used to it. The hardest thing was to not baby-sit any more. Visits are one thing we love. But no more babysitting. Like 2-3 days at a time while the parents go play and we cope with school schedules, fussy eaters, and constant noise. WE simply outgrew it. I love it when the little ones visit or we go see them for a short time...then home. Ahhhh, quiet. lol. Do take good care of you. How much family support do you have? MamaSher, age 70. IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! THANKS, everyone for your > > thoughts > > > and> > > > posts....> > > > >> > > > >> > > > > I feel terrible tonight. Went to daughters for the day. > > > Yesterday I> > > > > made some pumpkin pie, (splenda) fantastic tasting pie, > (no > > > crust),> > > > and> > > > > each day now am feeling worse. I am calling pulmo in a.m. > to > > > talk> > > > > again. I am down to 12 1/2 mg pred. for 2 days now. My > > weight > > > is> > > > > still going up, and I am not breathing well at all. Hard > to > > > get my> > > > > breath, am never any lower than #5 sitting. My sat go down > > > fast if it> > > > > is not set right for Me.> > > > >> > > > > I don't know how long I will be here, but I am not > expecting > > > much> > > > > anymore, am not depressed, just am tired of fighting for a > > good> > > > > breath. Seems I just can't walk and breath at the same > time.> > > > >> > > > > I LOVE YOU THIS DAY> > > > > MARY LOU - RICHMOND VA> > > > > IPF - 02 (AND HOLDING I THINK)> > > > >> > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2008 Report Share Posted November 9, 2008 Patti: I am on anywhere from 5 to 6 lpm of O2 and cannot even get from one room to the other without loosing every bit of air I have. How do you do it? I have not read all the posts so be patient with me however on 6 liters you must be switching tank after tank. You mentioned some type of tank how big is it compared to an e tank and I just could not even imagine myself walking pulling a cart with all of those. WOW! I tried to walk outside yesterday and could not make it. I am impressed. Let me know how you do it etc. Thanks, Amy To: Breathe-Support Sent: Sunday, November 9, 2008 7:58:25 AMSubject: Re: Oxygen use SHERalways protecting and taking care of everyone else..Just starting to learn to take care of me. And learning that i need the strength for the important and fun things i want to do..patti> > > > >> > > > > From: Beth mbmurtha (AT) yahoo (DOT) com>> > > > > Subject: Re: THANKS, everyone for your > > > thoughts and> > > > posts....> > > > > To: Breathe-Support@ yahoogroups. com> > > > > Date: Sunday, November 2, 2008, 5:15 PM> > > > >> > > > >> > > > > Lou,> > > > > I'm sorry that you are feeling so terrible. I'm glad that > > you > > > are> > > > talking to your doctor tomorrow. Please ask him to explain > why > > > you> > > > cannot use more than 5 liters of O2. What does he want you > to > > do > > > if your> > > > sats are below 90 with 5 liters? These are reasonable > > questions > > > and you> > > > need answers that you can understand.> > > > > Please save a piece of that pie for me! You are in my > > prayers > > > dear> > > > lady!> > > > >> > > > > Beth-Moderator> > > > > Fibrotic NSIP 06/06 UCTD 06/08> > > > >> > > > > "Take chances, make mistakes and get messy!"> > > > > Miss Frizzle> > > > >> > > > >> > > > >> > > > >> > > > >> > > > > ------------ --------- --------- --------- --------- ----------> > > > > From: Lou mlpretired (AT) aol (DOT) com>> > > > > To: Breathe-Support@ yahoogroups. com> > > > > Sent: Sunday, November 2, 2008 5:00:58 PM> > > > > Subject: THANKS, everyone for your > > thoughts > > > and> > > > posts....> > > > >> > > > >> > > > > I feel terrible tonight. Went to daughters for the day. > > > Yesterday I> > > > > made some pumpkin pie, (splenda) fantastic tasting pie, > (no > > > crust),> > > > and> > > > > each day now am feeling worse. I am calling pulmo in a.m. > to > > > talk> > > > > again. I am down to 12 1/2 mg pred. for 2 days now. My > > weight > > > is> > > > > still going up, and I am not breathing well at all. Hard > to > > > get my> > > > > breath, am never any lower than #5 sitting. My sat go down > > > fast if it> > > > > is not set right for Me.> > > > >> > > > > I don't know how long I will be here, but I am not > expecting > > > much> > > > > anymore, am not depressed, just am tired of fighting for a > > good> > > > > breath. Seems I just can't walk and breath at the same > time.> > > > >> > > > > I LOVE YOU THIS DAY> > > > > MARY LOU - RICHMOND VA> > > > > IPF - 02 (AND HOLDING I THINK)> > > > >> > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2008 Report Share Posted November 9, 2008 not much; everyone is drained. and withdrawling; it seems. one brother in Miss. and the other in Doylestown. I am the baby of the family. 2 children here in NJ. i live with the 1 and grandbaby torie (10) i have 4 other from my other daughter ages 6, 7, 9 and 11. My 9 yrs old courtney is my GOD send.. when she is with me she takes real good care of mom mom.. Also, have a grandson, who i don't see my son's son. He is 12 now. They are having trouble coping and tired of the oxygen.too many things they had to deal with past 3 yrs and they are use to mom doing no matter what..and it isn't happening.My daughter told me not meanly but just to let me know how she feels> I thought you would be taking care of me, wasn't ready to take care of you. Oh, well. My friends are great if i let them; so i am now asking for help. Strange phenomenon.(SP). But GOD is good and this is just another journey.. Patti > > > > > > > > > > > > From: Beth mbmurtha (AT) yahoo (DOT) com> > > > > > > Subject: Re: THANKS, everyone for your > > > > thoughts and > > > > > posts.... > > > > > > To: Breathe-Support@ yahoogroups. com > > > > > > Date: Sunday, November 2, 2008, 5:15 PM > > > > > > > > > > > > > > > > > > Lou, > > > > > > I'm sorry that you are feeling so terrible. I'm glad > that > > > you > > > > are > > > > > talking to your doctor tomorrow. Please ask him to explain > > why > > > > you > > > > > cannot use more than 5 liters of O2. What does he want you > > to > > > do > > > > if your > > > > > sats are below 90 with 5 liters? These are reasonable > > > questions > > > > and you > > > > > need answers that you can understand. > > > > > > Please save a piece of that pie for me! You are in my > > > prayers > > > > dear > > > > > lady! > > > > > > > > > > > > Beth-Moderator > > > > > > Fibrotic NSIP 06/06 UCTD 06/08 > > > > > > > > > > > > " Take chances, make mistakes and get messy! " > > > > > > Miss Frizzle > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ------------------------------------------------------- -- > - > > > > > > From: Lou mlpretired (AT) aol (DOT) com> > > > > > > To: Breathe-Support@ yahoogroups. com > > > > > > Sent: Sunday, November 2, 2008 5:00:58 PM > > > > > > Subject: THANKS, everyone for your > > > thoughts > > > > and > > > > > posts.... > > > > > > > > > > > > > > > > > > I feel terrible tonight. Went to daughters for the day. > > > > Yesterday I > > > > > > made some pumpkin pie, (splenda) fantastic tasting pie, > > (no > > > > crust), > > > > > and > > > > > > each day now am feeling worse. I am calling pulmo in > a.m. > > to > > > > talk > > > > > > again. I am down to 12 1/2 mg pred. for 2 days now. My > > > weight > > > > is > > > > > > still going up, and I am not breathing well at all. Hard > > to > > > > get my > > > > > > breath, am never any lower than #5 sitting. My sat go > down > > > > fast if it > > > > > > is not set right for Me. > > > > > > > > > > > > I don't know how long I will be here, but I am not > > expecting > > > > much > > > > > > anymore, am not depressed, just am tired of fighting for > a > > > good > > > > > > breath. Seems I just can't walk and breath at the same > > time. > > > > > > > > > > > > I LOVE YOU THIS DAY > > > > > > MARY LOU - RICHMOND VA > > > > > > IPF - 02 (AND HOLDING I THINK) > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2008 Report Share Posted November 9, 2008 amy i am so sorry; the first thing you need to know; I am a stubborn, dumb high class pollock.. (1/2 lithuanian and 1/2 polish) so that is always my excuse.. sometimes i just do what i am not suppose to do out of frustration, pride, temper and don't use it and pay the price. Truly learning, i am only hurting myself.. it is getting harder getting around, my chest at times hurts so bad when SOB, when i am sitting most of the time doing nothing i think i can just jump up and run. Learning though; times i need to use it sitting probably more than not. after a time i get foggy, not spacey lol ...didn't you say your age earlier... patti > > > > > > > > > > > > From: Beth mbmurtha (AT) yahoo (DOT) com> > > > > > > Subject: Re: THANKS, everyone for your > > > > thoughts and > > > > > posts.... > > > > > > To: Breathe-Support@ yahoogroups. com > > > > > > Date: Sunday, November 2, 2008, 5:15 PM > > > > > > > > > > > > > > > > > > Lou, > > > > > > I'm sorry that you are feeling so terrible. I'm glad > that > > > you > > > > are > > > > > talking to your doctor tomorrow. Please ask him to explain > > why > > > > you > > > > > cannot use more than 5 liters of O2. What does he want you > > to > > > do > > > > if your > > > > > sats are below 90 with 5 liters? These are reasonable > > > questions > > > > and you > > > > > need answers that you can understand. > > > > > > Please save a piece of that pie for me! You are in my > > > prayers > > > > dear > > > > > lady! > > > > > > > > > > > > Beth-Moderator > > > > > > Fibrotic NSIP 06/06 UCTD 06/08 > > > > > > > > > > > > " Take chances, make mistakes and get messy! " > > > > > > Miss Frizzle > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ------------ --------- --------- --------- --------- ---- ----- > - > > > > > > From: Lou mlpretired (AT) aol (DOT) com> > > > > > > To: Breathe-Support@ yahoogroups. com > > > > > > Sent: Sunday, November 2, 2008 5:00:58 PM > > > > > > Subject: THANKS, everyone for your > > > thoughts > > > > and > > > > > posts.... > > > > > > > > > > > > > > > > > > I feel terrible tonight. Went to daughters for the day. > > > > Yesterday I > > > > > > made some pumpkin pie, (splenda) fantastic tasting pie, > > (no > > > > crust), > > > > > and > > > > > > each day now am feeling worse. I am calling pulmo in > a.m. > > to > > > > talk > > > > > > again. I am down to 12 1/2 mg pred. for 2 days now. My > > > weight > > > > is > > > > > > still going up, and I am not breathing well at all. Hard > > to > > > > get my > > > > > > breath, am never any lower than #5 sitting. My sat go > down > > > > fast if it > > > > > > is not set right for Me. > > > > > > > > > > > > I don't know how long I will be here, but I am not > > expecting > > > > much > > > > > > anymore, am not depressed, just am tired of fighting for > a > > > good > > > > > > breath. Seems I just can't walk and breath at the same > > time. > > > > > > > > > > > > I LOVE YOU THIS DAY > > > > > > MARY LOU - RICHMOND VA > > > > > > IPF - 02 (AND HOLDING I THINK) > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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