different tanks to meet oxygen needs/please help anyone

[Guest guest]

exploring a different supplemental oxygen

using M6 tanks with conserving device at 6L; generally use 1 tank in

an hour unless a really bad day (this is with activity). So i need to

carry several tanks to spend a few hours away from the car.

When went to pulm, we talked about a different dispensing unit. The

refill; but if i went somewhere for 4 hrs( again away leaving the car

a distance) i would need 2. i have 2 liquid tanks in home. can anyone

give me any suggestions. Went to NY by train and needed to carry via

rolling backpack(which did break on way home) i took 12 M6s' and used

11.. In the car i have E tanks set up. Find i cannot carry anything

over 5-7 pounds for extended time. On my shoulders is easier. thank

you Patti Friend newbie

[Guest guest]

Pattie

how long does an E tank last? does it come with a cart? maybe you should wheel the E tank around when you travel

I have been frustrated with my system too

before going on medicare, i was able to get both liquid oxygen and some M6 tanks

i used the LOX and supplemented with the M6 tanks when i ran out of liquid

since going on medicare, i can only get either liquid or tanks, not both

so they gave me a marathon--larger than a Helios, does demand to 4 lpm and continuous to 6 lpm

most of the time i keep it set at demand 4 unless i am very active--then i use continuous 4 lpm

i still have 3 m6 tanks

when they are used up, i will have to pay for them

yes O2 is a problem when away from the house--unless it's a vacation---then depending on which company you use, O2 will be delivered to your vacation spot in the USA--hopefully

I use a baby stroller for which ever tanks i carry

I even use the baby stroller when i walk the dog

it's much easier than carrying the o2

my daughter told me about a "Versa Cart" -- her father's wife uses it

I looked it up on line

it looks like a shopping cart

It's somewhere between $30 - $40

how sturdy it is for o2 tanks I don't know

thought about getting a poc--portable oxygen concentrator

they are very expensive and the lpm's are limited

with this disease, not worth the investment, since our lpm needs keep increasing

sometimes when i go out for the day, i take the Marathon, the Helios and the M6's--put them all in the stoller and hope they last the day--depends on how active i am and how many liters i usePink Joyce IPF 3/06 Pennsylvania

Subject: different tanks to meet oxygen needs/please help anyoneTo: Breathe-Support Date: Monday, November 3, 2008, 12:03 AM

exploring a different supplemental oxygen using M6 tanks with conserving device at 6L; generally use 1 tank in an hour unless a really bad day (this is with activity). So i need to carry several tanks to spend a few hours away from the car.When went to pulm, we talked about a different dispensing unit. The refill; but if i went somewhere for 4 hrs( again away leaving the car a distance) i would need 2. i have 2 liquid tanks in home. can anyone give me any suggestions. Went to NY by train and needed to carry via rolling backpack(which did break on way home) i took 12 M6s' and used 11.. In the car i have E tanks set up. Find i cannot carry anything over 5-7 pounds for extended time. On my shoulders is easier. thank you Patti Friend newbie

[Guest guest]

Patti,

My suggestion would be to call your oxygen supplier and have a conversation about what your needs are and what equipment they can offer to help you meet them. Don't just speak to the customer service rep who answers the phone. Make an appointment and have a sit down with the manager.

I use D tanks and a rolling cart. A D tank is the same diameter as an E tank but it's shorter. One D tank on 4 or 5 with a conserver will last me 3 or 4 hours. I always have at least one extra tank in the car in case I get stuck out of the house for longer than I expected.

Liquid O2 might be a good option for you, at least for when you're out of the house but the first step would be that conversation with your provider.

Beth-Moderator

Fibrotic NSIP 06/06 UCTD 06/08

"Take chances, make mistakes and get messy!"

Miss Frizzle

To: Breathe-Support Sent: Monday, November 3, 2008 12:03:34 AMSubject: different tanks to meet oxygen needs/please help anyone

exploring a different supplemental oxygen using M6 tanks with conserving device at 6L; generally use 1 tank in an hour unless a really bad day (this is with activity). So i need to carry several tanks to spend a few hours away from the car.When went to pulm, we talked about a different dispensing unit. The refill; but if i went somewhere for 4 hrs( again away leaving the car a distance) i would need 2. i have 2 liquid tanks in home. can anyone give me any suggestions. Went to NY by train and needed to carry via rolling backpack(which did break on way home) i took 12 M6s' and used 11.. In the car i have E tanks set up. Find i cannot carry anything over 5-7 pounds for extended time. On my shoulders is easier. thank you Patti Friend newbie

[Guest guest]

I use a rolling backpack that I got at Walmart to be able to carry two D tanks when I go someplace where I know I'm going to be out for a long time. It's very sturdy and has extra pockets for tubing and tissues and all the other junk that we need. It works well for me!

Beth-Moderator

Fibrotic NSIP 06/06 UCTD 06/08

"Take chances, make mistakes and get messy!"

Miss Frizzle

To: Breathe-Support Sent: Monday, November 3, 2008 8:49:13 AMSubject: Re: different tanks to meet oxygen needs/please help anyone

Pattie

how long does an E tank last? does it come with a cart? maybe you should wheel the E tank around when you travel

I have been frustrated with my system too

before going on medicare, i was able to get both liquid oxygen and some M6 tanks

i used the LOX and supplemented with the M6 tanks when i ran out of liquid

since going on medicare, i can only get either liquid or tanks, not both

so they gave me a marathon--larger than a Helios, does demand to 4 lpm and continuous to 6 lpm

most of the time i keep it set at demand 4 unless i am very active--then i use continuous 4 lpm

i still have 3 m6 tanks

when they are used up, i will have to pay for them

yes O2 is a problem when away from the house--unless it's a vacation---then depending on which company you use, O2 will be delivered to your vacation spot in the USA--hopefully

I use a baby stroller for which ever tanks i carry

I even use the baby stroller when i walk the dog

it's much easier than carrying the o2

my daughter told me about a "Versa Cart" -- her father's wife uses it

I looked it up on line

it looks like a shopping cart

It's somewhere between $30 - $40

how sturdy it is for o2 tanks I don't know

thought about getting a poc--portable oxygen concentrator

they are very expensive and the lpm's are limited

with this disease, not worth the investment, since our lpm needs keep increasing

sometimes when i go out for the day, i take the Marathon, the Helios and the M6's--put them all in the stoller and hope they last the day--depends on how active i am and how many liters i usePink Joyce IPF 3/06 Pennsylvania

From: friend.patti <friend.patti@ yahoo.com>Subject: different tanks to meet oxygen needs/please help anyoneTo: Breathe-Support@ yahoogroups. comDate: Monday, November 3, 2008, 12:03 AM

exploring a different supplemental oxygen using M6 tanks with conserving device at 6L; generally use 1 tank in an hour unless a really bad day (this is with activity). So i need to carry several tanks to spend a few hours away from the car.When went to pulm, we talked about a different dispensing unit. The refill; but if i went somewhere for 4 hrs( again away leaving the car a distance) i would need 2. i have 2 liquid tanks in home. can anyone give me any suggestions. Went to NY by train and needed to carry via rolling backpack(which did break on way home) i took 12 M6s' and used 11.. In the car i have E tanks set up. Find i cannot carry anything over 5-7 pounds for extended time. On my shoulders is easier. thank you Patti Friend newbie

[Guest guest]

WOW, we have been busy.. It will take me all day to catch up. love that.Anyhow, Every oxygen company is supposed to have a therapist so I think that is when I got anything I want from Apria. She came out, we talked. She saw my needs and bingo.. I have 24 e tanks and 12 or so m6...I'll be turning them in soon. They wouldn't last half an hour for me. I used 2 1/2 e tanks at church yesterday..I guess I was singing to much. lol  Apria is due here today and we just tell the guy I want hoses, washers. cannulasor what ever and they don't say a word anymore. So I would have the therapist come to you Love & Prayers, PeggyFlorida,  IPF/UIP 2004"I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly." 

[Guest guest]

Peggy

Just shows how different every branch is. The Apria office here, you

can't even reach or get the therapist to return calls. You're right

though that she's the one who coordinates things like oximeter orders. I

had to finally get someone in customer service to walk over and get her

on the phone.

One thing they are suppose to do but some do and some don't is when they

set you up initially make sure the pulse or demand they give you

actually works for you.

As to hose and washers and cannulas I must say the Apria driver I dealt

with did have a well supplied truck. I stock up more with my current

company as I'm his last customer on his route and he's been known to be

out of certain things by the time he gets to me.

>

> WOW, we have been busy.. It will take me all day to catch up. love

that.

>

> Anyhow, Every oxygen company is supposed to have a therapist so I

> think that is when I got anything I

> want from Apria. She came out, we talked. She saw my needs and

> bingo.. I have 24 e tanks and 12 or so m6...

> I'll be turning them in soon. They wouldn't last half an hour for me.

> I used 2 1/2 e tanks at church yesterday..

> I guess I was singing to much. lol Apria is due here today and we

> just tell the guy I want hoses, washers. cannulas

> or what ever and they don't say a word anymore. So I would have the

> therapist come to you

>

>

> Love & Prayers, Peggy

> Florida, IPF/UIP 2004

>

> " I believe that friends are quiet angels who lift us to our feet,

> when our wings have trouble remembering how to fly. "

>

>

> 

>

[Guest guest]

-Heh, guys thanks Joyce/ Beth

I only used the rolling backpack for long distances and needing 11

or more tanks;DAH... heh, think will use it when go to temple with

all the excess to carry this coming week.. Love the idea of the

stroller for the mall and other outings also gives me something to

rest on.. An E tank depending: was going through 5 in the car set at

6-8 depending in 7 hrs. That was not continuous. Never did sit to

calculate.. One more step to me feeling human thanks so much..

Beth

sorry to hear about your son pray all is still well. We never stop

being moms... patti

-- In Breathe-Support , Beth

wrote:

>

> I use a rolling backpack that I got at Walmart to be able to carry

two D tanks when I go someplace where I know I'm going to be out for

a long time. It's very sturdy and has extra pockets for tubing and

tissues and all the other junk that we need. It works well for me!

>

> Beth-Moderator

> Fibrotic NSIP 06/06 UCTD 06/08

>

> " Take chances, make mistakes and get messy! "

> Miss Frizzle

>

>

>

>

> ________________________________

>

> To: Breathe-Support

> Sent: Monday, November 3, 2008 8:49:13 AM

> Subject: Re: different tanks to meet oxygen

needs/please help anyone

>

>

> Pattie

> how long does an E tank last? does it come with a cart? maybe

you should wheel the E tank around when you travel

>

> I have been frustrated with my system too

> before going on medicare, i was able to get both liquid oxygen and

some M6 tanks

> i used the LOX and supplemented with the M6 tanks when i ran out

of liquid

>

> since going on medicare, i can only get either liquid or tanks,

not both

> so they gave me a marathon--larger than a Helios, does demand to 4

lpm and continuous to 6 lpm

> most of the time i keep it set at demand 4 unless i am very active-

-then i use continuous 4 lpm

>

> i still have 3 m6 tanks

> when they are used up, i will have to pay for them

>

> yes O2 is a problem when away from the house--unless it's a

vacation---then depending on which company you use, O2 will be

delivered to your vacation spot in the USA--hopefully

>

> I use a baby stroller for which ever tanks i carry

> I even use the baby stroller when i walk the dog

> it's much easier than carrying the o2

>

> my daughter told me about a " Versa Cart " -- her father's wife uses

it

> I looked it up on line

> it looks like a shopping cart

> It's somewhere between $30 - $40

> how sturdy it is for o2 tanks I don't know

>

> thought about getting a poc--portable oxygen concentrator

> they are very expensive and the lpm's are limited

> with this disease, not worth the investment, since our lpm needs

keep increasing

>

> sometimes when i go out for the day, i take the Marathon, the

Helios and the M6's--put them all in the stoller and hope they last

the day--depends on how active i am and how many liters i use

>

> Pink Joyce IPF 3/06 Pennsylvania

>

>

>

> From: friend.patti <friend.patti@ yahoo.com>

> Subject: different tanks to meet oxygen

needs/please help anyone

> To: Breathe-Support@ yahoogroups. com

> Date: Monday, November 3, 2008, 12:03 AM

>

>

> exploring a different supplemental oxygen

> using M6 tanks with conserving device at 6L; generally use 1 tank

in

> an hour unless a really bad day (this is with activity). So i need

to

> carry several tanks to spend a few hours away from the car.

> When went to pulm, we talked about a different dispensing unit.

The

> refill; but if i went somewhere for 4 hrs( again away leaving the

car

> a distance) i would need 2. i have 2 liquid tanks in home. can

anyone

> give me any suggestions. Went to NY by train and needed to carry

via

> rolling backpack(which did break on way home) i took 12 M6s' and

used

> 11.. In the car i have E tanks set up. Find i cannot carry

anything

> over 5-7 pounds for extended time. On my shoulders is easier.

thank

> you Patti Friend newbie

>

[Guest guest]

Joyce

i tried a shopping cart to bring my empties into the house,

generally 5 E tanks and not sturdy enough... That makes sense if

they let me keep so many m6. have to be honest i have apria and they

have been excellent and very caring with me. They are always making

sure i have enough on hand. when using the oxygen as i needed. I use

5 e tanks a day and then if shopping or out to eat; i use 1 m6 in an

hour on conserving device. if a bad day i have used a tank in less

than 1/2 hour.. the tanks just get so heavy if alone and bring into

the house increases my SOB. but you are giving me geat ideas please

any more just toss them out to me. Always eager to learn something

new. patti

>

>

> Subject: different tanks to meet oxygen

needs/please help anyone

> To: Breathe-Support

> Date: Monday, November 3, 2008, 12:03 AM

>

>

>

>

>

>

> exploring a different supplemental oxygen

> using M6 tanks with conserving device at 6L; generally use 1 tank

in

> an hour unless a really bad day (this is with activity). So i need

to

> carry several tanks to spend a few hours away from the car.

> When went to pulm, we talked about a different dispensing unit.

The

> refill; but if i went somewhere for 4 hrs( again away leaving the

car

> a distance) i would need 2. i have 2 liquid tanks in home. can

anyone

> give me any suggestions. Went to NY by train and needed to carry

via

> rolling backpack(which did break on way home) i took 12 M6s' and

used

> 11.. In the car i have E tanks set up. Find i cannot carry

anything

> over 5-7 pounds for extended time. On my shoulders is easier.

thank

> you Patti Friend newbie

>

[Guest guest]

Patti,

I'm glad your experience with Apria is positive. Their customer service varies around the country. Have they given you any choices between the M6 and the E tank? There is a D tank which weighs around 9 pounds, is the same diameter as the E but is considerably shorter. I suspect from how you describe your use you could probably get and hour maybe an hour and a half out of each tank.

Seriously though at the liter flow that you need you may want to consider switching to liquid. It may just be more practical for you at this stage. I'm far from an expert on the various liquid systems but we have others here who are.

And thanks for the concern about my son. He is fine and I'm hoping for less excitement from him for awhile! LOL

Beth-Moderator

Fibrotic NSIP 06/06 UCTD 06/08

"Take chances, make mistakes and get messy!"

Miss Frizzle

To: Breathe-Support Sent: Saturday, November 8, 2008 1:44:52 PMSubject: Re: different tanks to meet oxygen needs/please help anyone

-Heh, guys thanks Joyce/ BethI only used the rolling backpack for long distances and needing 11 or more tanks;DAH... heh, think will use it when go to temple with all the excess to carry this coming week.. Love the idea of the stroller for the mall and other outings also gives me something to rest on.. An E tank depending: was going through 5 in the car set at 6-8 depending in 7 hrs. That was not continuous. Never did sit to calculate.. One more step to me feeling human thanks so much.. Beth sorry to hear about your son pray all is still well. We never stop being moms... patti-- In Breathe-Support@ yahoogroups. com, Beth <mbmurtha@.. .> wrote:>> I use a rolling backpack that I got at Walmart to be able to carry two D tanks

when I go someplace where I know I'm going to be out for a long time. It's very sturdy and has extra pockets for tubing and tissues and all the other junk that we need. It works well for me!> > Beth-Moderator> Fibrotic NSIP 06/06 UCTD 06/08 > > "Take chances, make mistakes and get messy!"> Miss Frizzle> > > > > ____________ _________ _________ __> From: Joyce T Rosenberg <pinkrockybeach@ ...>> To: Breathe-Support@ yahoogroups. com> Sent: Monday, November 3, 2008 8:49:13 AM> Subject: Re: different tanks to meet oxygen needs/please help anyone> > > Pattie> how long does an E tank last?

does it come with a cart? maybe you should wheel the E tank around when you travel> > I have been frustrated with my system too> before going on medicare, i was able to get both liquid oxygen and some M6 tanks> i used the LOX and supplemented with the M6 tanks when i ran out of liquid> > since going on medicare, i can only get either liquid or tanks, not both> so they gave me a marathon--larger than a Helios, does demand to 4 lpm and continuous to 6 lpm> most of the time i keep it set at demand 4 unless i am very active--then i use continuous 4 lpm> > i still have 3 m6 tanks> when they are used up, i will have to pay for them> > yes O2 is a problem when away from the house--unless it's a vacation---then depending on which company you use, O2 will be delivered to your vacation spot in the USA--hopefully> > I

use a baby stroller for which ever tanks i carry > I even use the baby stroller when i walk the dog> it's much easier than carrying the o2> > my daughter told me about a "Versa Cart" -- her father's wife uses it> I looked it up on line> it looks like a shopping cart> It's somewhere between $30 - $40> how sturdy it is for o2 tanks I don't know> > thought about getting a poc--portable oxygen concentrator> they are very expensive and the lpm's are limited> with this disease, not worth the investment, since our lpm needs keep increasing> > sometimes when i go out for the day, i take the Marathon, the Helios and the M6's--put them all in the stoller and hope they last the day--depends on how active i am and how many liters i use> > Pink Joyce IPF 3/06 Pennsylvania> > > > From: friend.patti <friend.patti@ yahoo.com>> Subject: different tanks to meet oxygen needs/please help anyone> To: Breathe-Support@ yahoogroups. com> Date: Monday, November 3, 2008, 12:03 AM> > > exploring a different supplemental oxygen > using M6 tanks with conserving device at 6L; generally use 1 tank in > an hour unless a really bad day (this is with activity). So i need to > carry several tanks to spend a few hours away from the car.> When went to pulm, we talked about a different dispensing unit. The > refill; but if i went somewhere for 4 hrs( again away leaving the car > a distance) i would need 2. i have 2 liquid tanks in home. can anyone > give me any suggestions. Went to NY by train and needed to carry

via > rolling backpack(which did break on way home) i took 12 M6s' and used > 11.. In the car i have E tanks set up. Find i cannot carry anything > over 5-7 pounds for extended time. On my shoulders is easier. thank > you Patti Friend newbie>

[Guest guest]

when i tell you they have been great; I have about 24 E tanks and 24

m6 in the house; 2 full size liquid tanks i use here and

concentrator at my other daughter's. at the apt here there are

electric surges. so they told me to keep iti am thinking i may put

it in the car;sounds like a good idea; can't keep bending over in

the stow away where have the e tanks hidden away and the tubing

coming up the through a hole and then the side of the seat.. They

have been great in helping me keep going... the woman at my

pulmonologist is having me talk to someone about refill tanks.. i

don't remember the name she mentioned. I use the m6 for portability

and the e for more stationary in the car or visiting for a length of

time. when i go over night i take the concentrator. But i will talk

and see at this point what we can do.. when i went to disney they

were concerned with the flight and the ability of the portable

concentrator with my needs.. we managed.. Found the POC not really

an asset to me.. and i had several batteries and still. so we went

back to e tanks and m6 for the trip... as apria made sure they sent

them to the hotel for me and then we needed to refill. I am on a

mission there has got to be a better way.. Not sure if it is me but

i can not carry anything for length of time and over so many pounds

without increasing my shortness of breath. Bending over is another

problem. Right now can't go exercise to lose weight as my back has

been hurting; thought was my hip from the osteopenia and then

realized it was radiating up my back so my kidney is acting up... so

trying real hard to behave today and stay tight and oh, yes drink

water... hate the stuff.. not sure what is worse the acestyline liq

or water lol...

thanks patti

> >

> > From: friend.patti <friend.patti@ yahoo.com>

> > Subject: different tanks to meet oxygen

> needs/please help anyone

> > To: Breathe-Support@ yahoogroups. com

> > Date: Monday, November 3, 2008, 12:03 AM

> >

> >

> > exploring a different supplemental oxygen

> > using M6 tanks with conserving device at 6L; generally use 1

tank

> in

> > an hour unless a really bad day (this is with activity). So i

need

> to

> > carry several tanks to spend a few hours away from the car.

> > When went to pulm, we talked about a different dispensing unit.

> The

> > refill; but if i went somewhere for 4 hrs( again away leaving

the

> car

> > a distance) i would need 2. i have 2 liquid tanks in home. can

> anyone

> > give me any suggestions. Went to NY by train and needed to carry

> via

> > rolling backpack(which did break on way home) i took 12 M6s' and

> used

> > 11.. In the car i have E tanks set up. Find i cannot carry

> anything

> > over 5-7 pounds for extended time. On my shoulders is easier.

> thank

> > you Patti Friend newbie

> >

>