Guest guest Posted June 26, 2007 Report Share Posted June 26, 2007 Hi all.I am back and going through all my emails, what a week I missed !I'm pulling for Ken, Tim and ! It would be great to see all three hale and hearty next year in ville!I'll pray for all of them.We simply must find a better treatment for PSC to make this be the last transplant needed for Tim and Ken. May get her transplant and never need another one. May a new treatment be found to keep all our members from ever needing a transplant in the first place.Check out the link in our Road to ville announcement below, I think you will be excited to see our progress.I just got a check for six more miles from my sister today and I will be mailing it tomorrow !Wouldn't it be great to back some research as early as next year?In the meantime, keep spreading the word on PSC, promoting organ donation and being thankful for those families who bravely make that decision.Best wishes for all,Lee PSC Partners Seeking a Cure is hitting the road and raising money for PSC research. The Road to villeThe Road to ville is ready for walkers, runners, bikers and any other means of travel you want to do .Everyone is invited to join us on the road to ville FL. for our 2008 PSC Partners Seeking a Cure Conference!Along that road we will challenge ourselves to raise money for much needed PSC research.We have set a big goal to raise $100,000 by the time we get to ville !!!Let's pave that road together one mile at a time. Donate or raise $50/mile and travel with us the 2,000 miles from Denver to ville.Watch our progress, participate and cheer us on ! We need new studies for new therapies that will change the future of PSC care.Please help us advocate donor awareness along the way. Until there is better treatment available, liver transplants will still be necessary.To watch our progress and for more details visit our "Road to ville" map at :http://www.pscpartners.org/RtJ.htmWe are together in this fight, we will back new research for new treatments. The answers are out there, let's help start the search !!On your mark , get set, go !!!!!!Lee Quote Link to comment Share on other sites More sharing options...
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