Latest from Barb (10:15 Wed night)

[Guest guest]

Ken still isn't responding. We had hoped the dialysis would make a big

difference in his level of consciousness, but it hasn't - yet. They were able to

drain quite a bit of fluid off of him, so I'm sure that makes him feel more

comfortable. They are giving him plenty of antibiotics, and took a culture to

see if they can find out if he has an infection and if so, what kind. His

ammonia level is high, so they gave him lactulose. I expect by tomorrow morning,

he'll be much better. I'm spending the night with Ken......

Thanks TJ for the lap top, I'd go crazy without it!!

[Guest guest]

This is upsetting me so much. I keep praying for him and checking for news.I feel a deep anger that anyone should need to go through this and I feel an urgencyto push for better treatment for PSC.We simply must get to a place where we can avoid the need for transplants.In the meantime, I pray and I wish, I hope, and I work on raising research funds.LeeKen still isn't responding. We had hoped the dialysis would make a big difference in his level of consciousness, but it hasn't - yet. They were able to drain quite a bit of fluid off of him, so I'm sure that makes him feel more comfortable. They are giving him plenty of antibiotics, and took a culture to see if they can find out if he has an infection and if so, what kind. His ammonia level is high, so they gave him lactulose. I expect by tomorrow morning, he'll be much better. I'm spending the night with Ken...... Thanks TJ for the lap top, I'd go crazy without it!!