Re: Difficult decision need help

[Guest guest]

If you live in Illinois why dont you check in Cranial Technologies

there thats where my little girl is going tomorrow for her first

appointment. If you are concered with your DR. availability you

might check into them...

-- In Plagiocephaly , " ss_zz_y " <ss_zz_y@...> wrote:

>

> Hi, All

>

> I'm a new member here. My son (8 month old already) did a

> START scan two weeks back. The difference between Oblique-Diagonal1

> (at -30 deg) and Oblique-Diagonal 2(at 30 deg) are 9mm. Also his

> Cephailic Ratio are 0.963 and RSI is 50.5. The Dr. recommends him

> using a STAR band. We are still waiting for insurance approval.

>

> At the same time, my husband and I are still debating whether we

> shall band him or not. It is such difficult decision. Honestly, I'm

> little scared when reading the messages describing some kids having

> difficult time to adjust to the band. I have some questions here,

> hope someone can help us out in this decision making process:

>

> 1. How server 's situation is in this case? We forget to

> ask this question to Dr. during the appointment.

>

>

> 2. Dr. Reference

> By reading the post messages, I realized how important is to have a

> good Dr. on this. We are seeing Dr. Vicari, from Children

> Memorial Hospital (IL). He is very busy, and in fact we waited

about

> 4 weeks to get the appointment and appointment was cancelled once

and

> finally had it with one and half hour delay. So I'm little bit

> concerned about the Dr's availability during this banding process.

Is

> there anyone who can share experience with this Dr.?

>

> 3. Is there any known medical concern if kid with posterior

> plagiocephaly and brachycephaly is not banded?

>

> 4. My husband also has flat spot on the back, if my son gets it

> from him can it be corrected by banding or it will come back after

> banding.

>

> Thanks for your help!

>

> Sunny (IL)

>

[Guest guest]

Your son's " numbers " are pretty similar to my son's initial

measurements, his were a little more severe. I can only really

address your 3rd and 4th points. Flat headedness does seem to run in

the family (on my husband's side--LOL!) Anyway, my son's head did

still round out, I just think the tendency to flatness helped get

him so flat in the first place, if you know what I mean. Also, I

have not seen this published in an article anywhere, but my son had

noticeably closed ear canals that opened after banding. It was his

pediatrician's primary concern, from a medical standpoint, because

he just could not see to his ear drum. He had two ear infections

this winter, but that is certainly not statistical proof that it is

related. However, squashed ear canals are certainly not normal.

Good luck with your decision--these are just my anecdotal

experiences, obviously.

Stacey

in Charlotte

>

> Hi, All

>

> I'm a new member here. My son (8 month old already) did a

> START scan two weeks back. The difference between Oblique-

Diagonal1

> (at -30 deg) and Oblique-Diagonal 2(at 30 deg) are 9mm. Also his

> Cephailic Ratio are 0.963 and RSI is 50.5. The Dr. recommends him

> using a STAR band. We are still waiting for insurance approval.

>

> At the same time, my husband and I are still debating whether we

> shall band him or not. It is such difficult decision. Honestly,

I'm

> little scared when reading the messages describing some kids

having

> difficult time to adjust to the band. I have some questions here,

> hope someone can help us out in this decision making process:

>

> 1. How server 's situation is in this case? We forget to

> ask this question to Dr. during the appointment.

>

>

> 2. Dr. Reference

> By reading the post messages, I realized how important is to have

a

> good Dr. on this. We are seeing Dr. Vicari, from Children

> Memorial Hospital (IL). He is very busy, and in fact we waited

about

> 4 weeks to get the appointment and appointment was cancelled once

and

> finally had it with one and half hour delay. So I'm little bit

> concerned about the Dr's availability during this banding process.

Is

> there anyone who can share experience with this Dr.?

>

> 3. Is there any known medical concern if kid with posterior

> plagiocephaly and brachycephaly is not banded?

>

> 4. My husband also has flat spot on the back, if my son gets it

> from him can it be corrected by banding or it will come back after

> banding.

>

> Thanks for your help!

>

> Sunny (IL)

>

[Guest guest]

Welcome to the group. Usually the doctor is only seen at the

begining and end of treatment. I wish I could answer your other

questoins but i can't. I just wanted to welcome you.

Haylee

mom to andre doc band grad

>

> Hi, All

>

> I'm a new member here. My son (8 month old already) did a

> START scan two weeks back. The difference between Oblique-

Diagonal1

> (at -30 deg) and Oblique-Diagonal 2(at 30 deg) are 9mm. Also his

> Cephailic Ratio are 0.963 and RSI is 50.5. The Dr. recommends him

> using a STAR band. We are still waiting for insurance approval.

>

> At the same time, my husband and I are still debating whether we

> shall band him or not. It is such difficult decision. Honestly,

I'm

> little scared when reading the messages describing some kids

having

> difficult time to adjust to the band. I have some questions here,

> hope someone can help us out in this decision making process:

>

> 1. How server 's situation is in this case? We forget to

> ask this question to Dr. during the appointment.

>

>

> 2. Dr. Reference

> By reading the post messages, I realized how important is to have

a

> good Dr. on this. We are seeing Dr. Vicari, from Children

> Memorial Hospital (IL). He is very busy, and in fact we waited

about

> 4 weeks to get the appointment and appointment was cancelled once

and

> finally had it with one and half hour delay. So I'm little bit

> concerned about the Dr's availability during this banding process.

Is

> there anyone who can share experience with this Dr.?

>

> 3. Is there any known medical concern if kid with posterior

> plagiocephaly and brachycephaly is not banded?

>

> 4. My husband also has flat spot on the back, if my son gets it

> from him can it be corrected by banding or it will come back after

> banding.

>

> Thanks for your help!

>

> Sunny (IL)

>

[Guest guest]

Jonna

After reading your reply I start to noticed that CT is for DOC band.

And the product current suggested by our Dr. is START band. I'm

starting to catch up with my homework and up to now once thing make

me start considering DOC band is because of its light weight. I can't

find the weight information for STARband but for DOC band everywhere

mentioned it is 6oz. My Baby has a big head already. I think that is

one of the reasons that he doesn't like tummy time at all.

Which CT office did you visit? how is that going?

Thanks and Regards

Sunny

> >

> > Hi, All

> >

> > I'm a new member here. My son (8 month old already) did a

> > START scan two weeks back. The difference between Oblique-

Diagonal1

> > (at -30 deg) and Oblique-Diagonal 2(at 30 deg) are 9mm. Also his

> > Cephailic Ratio are 0.963 and RSI is 50.5. The Dr. recommends him

> > using a STAR band. We are still waiting for insurance approval.

> >

> > At the same time, my husband and I are still debating whether we

> > shall band him or not. It is such difficult decision. Honestly,

I'm

> > little scared when reading the messages describing some kids

having

> > difficult time to adjust to the band. I have some questions here,

> > hope someone can help us out in this decision making process:

> >

> > 1. How server 's situation is in this case? We forget to

> > ask this question to Dr. during the appointment.

> >

> >

> > 2. Dr. Reference

> > By reading the post messages, I realized how important is to have

a

> > good Dr. on this. We are seeing Dr. Vicari, from Children

> > Memorial Hospital (IL). He is very busy, and in fact we waited

> about

> > 4 weeks to get the appointment and appointment was cancelled once

> and

> > finally had it with one and half hour delay. So I'm little bit

> > concerned about the Dr's availability during this banding

process.

> Is

> > there anyone who can share experience with this Dr.?

> >

> > 3. Is there any known medical concern if kid with posterior

> > plagiocephaly and brachycephaly is not banded?

> >

> > 4. My husband also has flat spot on the back, if my son gets it

> > from him can it be corrected by banding or it will come back

after

> > banding.

> >

> > Thanks for your help!

> >

> > Sunny (IL)

> >

>

[Guest guest]

Hi Sunny,

Have you seen the STARbands? We took my son for casting last week and the ortho had a STARband for us to see and handle so we knew what we'd be getting and honestly, I didn't think it was very heavy at all. I haven't held a DOC so I have nothing to compare too, but the STARband didn't seem heavy or I'd have had some questions.

Just thought I'd share my opinion.

Amy (SC)

On 4/11/06, ss_zz_y <ss_zz_y@...> wrote:

JonnaAfter reading your reply I start to noticed that CT is for DOC band. And the product current suggested by our Dr. is START band. I'm starting to catch up with my homework and up to now once thing make me start considering DOC band is because of its light weight. I can't find the weight information for STARband but for DOC band everywhere mentioned it is 6oz. My Baby has a big head already. I think that is

one of the reasons that he doesn't like tummy time at all. Which CT office did you visit? how is that going? Thanks and RegardsSunny> >> > Hi, All> > > > I'm a new member here. My son (8 month old already) did a > > START scan two weeks back. The difference between Oblique-

Diagonal1 > > (at -30 deg) and Oblique-Diagonal 2(at 30 deg) are 9mm. Also his > > Cephailic Ratio are 0.963 and RSI is 50.5. The Dr. recommends him > > using a STAR band. We are still waiting for insurance approval.

> > > > At the same time, my husband and I are still debating whether we > > shall band him or not. It is such difficult decision. Honestly, I'm > > little scared when reading the messages describing some kids having > > difficult time to adjust to the band. I have some questions here, > > hope someone can help us out in this decision making process:> > > > 1. How server 's situation is in this case? We forget to > > ask this question to Dr. during the appointment.> > > > > > 2. Dr. Reference> > By reading the post messages, I realized how important is to have a > > good Dr. on this. We are seeing Dr. Vicari, from Children > > Memorial Hospital (IL). He is very busy, and in fact we waited > about > > 4 weeks to get the appointment and appointment was cancelled once > and > > finally had it with one and half hour delay. So I'm little bit > > concerned about the Dr's availability during this banding process. > Is > > there anyone who can share experience with this Dr.? > > > > 3. Is there any known medical concern if kid with posterior > > plagiocephaly and brachycephaly is not banded?> > > > 4. My husband also has flat spot on the back, if my son gets it > > from him can it be corrected by banding or it will come back after > > banding.> > > > Thanks for your help!> > > > Sunny (IL)> >>For more plagio info

[Guest guest]

I heard somewhere that the STARband is 4 oz. Unfortunately I can't recall where I heard that so I'm not sure how accurate the information is. Does anyone else happen to know? We're going in Thursday to get scanned for our STARband so I will ask the orthotist; if she doesn't know I'll ask her if we can weigh the sample band that is in their office.

Molly

California

Nicolas, 6 months, tort & plagio, getting STARband in April

, 3

, 6

-----Original Message-----From: Plagiocephaly [mailto:Plagiocephaly ] On Behalf Of Amy Sent: 11 April 2006 1:14 PMPlagiocephaly Subject: Re: Re: Difficult decision need help

Hi Sunny,

Have you seen the STARbands? We took my son for casting last week and the ortho had a STARband for us to see and handle so we knew what we'd be getting and honestly, I didn't think it was very heavy at all. I haven't held a DOC so I have nothing to compare too, but the STARband didn't seem heavy or I'd have had some questions.

Just thought I'd share my opinion.

Amy (SC)

On 4/11/06, ss_zz_y <ss_zz_y@...> wrote:

JonnaAfter reading your reply I start to noticed that CT is for DOC band. And the product current suggested by our Dr. is START band. I'm starting to catch up with my homework and up to now once thing make me start considering DOC band is because of its light weight. I can't find the weight information for STARband but for DOC band everywhere mentioned it is 6oz. My Baby has a big head already. I think that is one of the reasons that he doesn't like tummy time at all. Which CT office did you visit? how is that going? Thanks and RegardsSunny> >> > Hi, All> > > > I'm a new member here. My son (8 month old already) did a > > START scan two weeks back. The difference between Oblique- Diagonal1 > > (at -30 deg) and Oblique-Diagonal 2(at 30 deg) are 9mm. Also his > > Cephailic Ratio are 0.963 and RSI is 50.5. The Dr. recommends him > > using a STAR band. We are still waiting for insurance approval. > > > > At the same time, my husband and I are still debating whether we > > shall band him or not. It is such difficult decision. Honestly, I'm > > little scared when reading the messages describing some kids having > > difficult time to adjust to the band. I have some questions here, > > hope someone can help us out in this decision making process:> > > > 1. How server 's situation is in this case? We forget to > > ask this question to Dr. during the appointment.> > > > > > 2. Dr. Reference> > By reading the post messages, I realized how important is to have a > > good Dr. on this. We are seeing Dr. Vicari, from Children > > Memorial Hospital (IL). He is very busy, and in fact we waited > about > > 4 weeks to get the appointment and appointment was cancelled once > and > > finally had it with one and half hour delay. So I'm little bit > > concerned about the Dr's availability during this banding process. > Is > > there anyone who can share experience with this Dr.? > > > > 3. Is there any known medical concern if kid with posterior > > plagiocephaly and brachycephaly is not banded?> > > > 4. My husband also has flat spot on the back, if my son gets it > > from him can it be corrected by banding or it will come back after > > banding.> > > > Thanks for your help!> > > > Sunny (IL)> >>For more plagio info

[Guest guest]

There is a chart comparing the star band and doc band in the files

section here. I found it to be very helpful. I beleive the weight

is in there as well.

Haylee

mom to andre doc band grad

> > >

> > > Hi, All

> > >

> > > I'm a new member here. My son (8 month old already)

did a

> > > START scan two weeks back. The difference between Oblique-

> Diagonal1

> > > (at -30 deg) and Oblique-Diagonal 2(at 30 deg) are 9mm. Also

his

> > > Cephailic Ratio are 0.963 and RSI is 50.5. The Dr. recommends

him

> > > using a STAR band. We are still waiting for insurance approval.

> > >

> > > At the same time, my husband and I are still debating whether

we

> > > shall band him or not. It is such difficult decision.

Honestly,

> I'm

> > > little scared when reading the messages describing some kids

> having

> > > difficult time to adjust to the band. I have some questions

here,

> > > hope someone can help us out in this decision making process:

> > >

> > > 1. How server 's situation is in this case? We

forget to

> > > ask this question to Dr. during the appointment.

> > >

> > >

> > > 2. Dr. Reference

> > > By reading the post messages, I realized how important is to

have

> a

> > > good Dr. on this. We are seeing Dr. Vicari, from

Children

> > > Memorial Hospital (IL). He is very busy, and in fact we waited

> > about

> > > 4 weeks to get the appointment and appointment was cancelled

once

> > and

> > > finally had it with one and half hour delay. So I'm little bit

> > > concerned about the Dr's availability during this banding

> process.

> > Is

> > > there anyone who can share experience with this Dr.?

> > >

> > > 3. Is there any known medical concern if kid with

posterior

> > > plagiocephaly and brachycephaly is not banded?

> > >

> > > 4. My husband also has flat spot on the back, if my son

gets it

> > > from him can it be corrected by banding or it will come back

> after

> > > banding.

> > >

> > > Thanks for your help!

> > >

> > > Sunny (IL)

> > >

> >

>

[Guest guest]

The person you need to be available is the ortho. Usually the dr is

only seen at the beginning and end and possibly the middle. Also

once you are an established patient you can usually get in quicker

so that would cut down the 4 week wait. Howeve,r it probably won't

cut down the 1 1/2 hour waiting room time.

With your daughters measurements I would say she is mild/moderate

plagio and moderate brachy. However, some drs don't consider it

severe until it's just terribly deforming. The surgeons are usually

the worst because they do get the really severe cases and the cranio

cases. When a mild/moderate case comes inthe kid looks great

comparitively even though the AAP would say band the child. Does

that make sense?

Some long term medical concerns include chronic ear infections,

migraines, TMJ (jaw issues), eye sight issues (especially with

facial assymmetry in the eye area), and some severe brachy has been

tentatively linked to learning disabilities. The problem is they

just don't have enough studies with conclusive evidence that it is

ok or will correct on its own. That was my deciding factor. Also,

I know if my children have crooked teeth i will get them braces.

They started with crooked heads so I got them bands. It's a very

similar thought process - or was for me.

na, DOC Grad X2, Feb 04, Tort Resolved

Kiersten, DOC Grad 4/4/06, Tort Resolved

www.thefilyaws.com/plagio/plagio.html

> >

> > Hi, All

> >

> > I'm a new member here. My son (8 month old already) did

a

> > START scan two weeks back. The difference between Oblique-

Diagonal1

> > (at -30 deg) and Oblique-Diagonal 2(at 30 deg) are 9mm. Also his

> > Cephailic Ratio are 0.963 and RSI is 50.5. The Dr. recommends

him

> > using a STAR band. We are still waiting for insurance approval.

> >

> > At the same time, my husband and I are still debating whether we

> > shall band him or not. It is such difficult decision. Honestly,

I'm

> > little scared when reading the messages describing some kids

having

> > difficult time to adjust to the band. I have some questions

here,

> > hope someone can help us out in this decision making process:

> >

> > 1. How server 's situation is in this case? We forget to

> > ask this question to Dr. during the appointment.

> >

> >

> > 2. Dr. Reference

> > By reading the post messages, I realized how important is to

have a

> > good Dr. on this. We are seeing Dr. Vicari, from Children

> > Memorial Hospital (IL). He is very busy, and in fact we waited

> about

> > 4 weeks to get the appointment and appointment was cancelled

once

> and

> > finally had it with one and half hour delay. So I'm little bit

> > concerned about the Dr's availability during this banding

process.

> Is

> > there anyone who can share experience with this Dr.?

> >

> > 3. Is there any known medical concern if kid with posterior

> > plagiocephaly and brachycephaly is not banded?

> >

> > 4. My husband also has flat spot on the back, if my son gets it

> > from him can it be corrected by banding or it will come back

after

> > banding.

> >

> > Thanks for your help!

> >

> > Sunny (IL)

> >

>

[Guest guest]

Hello Sunny

I see you have gotton tons of replies. I just wanted to welcome you

to the group.

Sandy Willow's Mom (6-2-2003)

Torticollis resolved (02-2004)

Cranio Germany Grad (02-2004)

www.geocities.com/samipa74/Willow_Lanette.html

www.palmerfamily.armedforcesfamilies.com

www.drmy.net/spalmer

>

> Hi, All

>

> I'm a new member here. My son (8 month old already) did a

> START scan two weeks back. The difference between Oblique-

Diagonal1

> (at -30 deg) and Oblique-Diagonal 2(at 30 deg) are 9mm. Also his

> Cephailic Ratio are 0.963 and RSI is 50.5. The Dr. recommends him

> using a STAR band. We are still waiting for insurance approval.

>

> At the same time, my husband and I are still debating whether we

> shall band him or not. It is such difficult decision. Honestly,

I'm

> little scared when reading the messages describing some kids

having

> difficult time to adjust to the band. I have some questions here,

> hope someone can help us out in this decision making process:

>

> 1. How server 's situation is in this case? We forget to

> ask this question to Dr. during the appointment.

>

>

> 2. Dr. Reference

> By reading the post messages, I realized how important is to have

a

> good Dr. on this. We are seeing Dr. Vicari, from Children

> Memorial Hospital (IL). He is very busy, and in fact we waited

about

> 4 weeks to get the appointment and appointment was cancelled once

and

> finally had it with one and half hour delay. So I'm little bit

> concerned about the Dr's availability during this banding process.

Is

> there anyone who can share experience with this Dr.?

>

> 3. Is there any known medical concern if kid with posterior

> plagiocephaly and brachycephaly is not banded?

>

> 4. My husband also has flat spot on the back, if my son gets it

> from him can it be corrected by banding or it will come back after

> banding.

>

> Thanks for your help!

>

> Sunny (IL)

>