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Re: Re: intra--hepatic, extra-hepatic, big, small bile ducts??/Ian

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Hi all, wondering what is this AIH I keep hearing about. My 9 year old has Ulceratie Colitis and PSC, now do I have to worry about yet another AIH? Just curious as I have heard it mentioned several times.

Stphanie Ostos and family

" badalrymple "

" badalrymple "

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07/03/2007 10:27 AM

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Re: intra--hepatic, extra-hepatic, big, small bile ducts??/Ian

I am a post tx psc'er and I am an exception to the note below. I kept

my bile duct. And it was attached to the bile duct on the donor liver.

I did have problems post tx with the connection but a few(well many)

stents later it worked itself out. However while I was having problems

the surgeons wanted to go back in and do a roun en y. I opted to try

one more time to see if the stents would work and by gosh they did.

Thank god, because I do not believe I could have handled another major

surgery only months after the tx. Emotionally that would have been

more than I could have handled.

The biopsy on my liver showed psc, but my large bile duct was not

affected. I was always told I had a combination of AIH and PSC however

the biopsy on my liver said NO AIH!!!

I think there is still alot they do not know about PSC and other liver

diseases.

regards,

beth ann dalrymple

psc, uc 1978 ltx 1/06

> There are a few pre-transplant PSCers who have had the surgery you

had, but

> all of the transplantees have it.

>

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Stevie.

AIH - autoimmune hepatitis accoring to PSC website ( - database

- common abreviations)

Ian

Hi all, wondering what is this AIH I keep hearing about. My 9 year old has Ulceratie Colitis and PSC, now do I have to worry about yet another AIH? Just curious as I have heard it mentioned several times. Stphanie Ostos and family

" badalrymple " <

bdalrymple (AT) twmi (DOT) rr.com>

" badalrymple " <bdalrymple (AT) twmi (DOT) rr.com>

Sent by: 07/03/2007 10:27 AM

Please respond to

To

cc

Subject

Re: intra--hepatic, extra-hepatic, big, small bile ducts??/Ian

I am a post tx psc'er and I am an exception to the note below. I kept my bile duct. And it was attached to the bile duct on the donor liver.I did have problems post tx with the connection but a few(well many) stents later it worked itself out. However while I was having problems the surgeons wanted to go back in and do a roun en y. I opted to try one more time to see if the stents would work and by gosh they did.

Thank god, because I do not believe I could have handled another major surgery only months after the tx. Emotionally that would have been more than I could have handled. The biopsy on my liver showed psc, but my large bile duct was not affected. I was always told I had a combination of AIH and PSC however the biopsy on my liver said NO AIH!!!I think there is still alot they do not know about PSC and other liver diseases. regards,

beth ann dalrymplepsc, uc 1978 ltx 1/06 > There are a few pre-transplant PSCers who have had the surgery you had, but> all of the transplantees have it.>

-- Ian Cribb P.Eng.

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