Hello! (obligatory new member post)

[Guest guest]

Greetings, this is my first time using a yahoo group, so hopefully I'm

doing this right.

My name is Trevor, and I was diagnosed with PSC in August '06. I've

been experiencing some symptoms lately, and an MRCP and CT scan on

Thursday showed that my gall bladder was distended, so now I'm on

antibiotics for 10 days. If the antibiotics don't seem to help then I

expect I will have an ERCP.

My mother has been a part of this group since I was diagnosed, so you

may have heard about me already. I believe her username is inkywretch.

I have already gotten a lot of very helpful information through her,

so I'm sure that being a part of the group will be good for me. " Thank

you! " to all of you in advance.

[Guest guest]

Hi there Trevor and welcome to the group. I'm sorry for your recent

symptoms and hope they resolve themselves quickly. I'm just being

nosy, but if you don't mind tell us a little more about yourself (age,

etc.)

wife of

UC & PSC 2000 J pouch 2004 Tx 11-18-06

[Guest guest]

Sure thing.

I'm 23. I just graduated from Embry-Riddle Aeronautical University in

December of '06 with a bachelor's in Aerospace Engineering. I'm from

Tucson, Arizona originally, but I moved up to Washington State in the

hopes of getting a job with Boeing or one of the other big aerospace

companies up here (still working on that). At the moment I'm employed

as an air pollution emission source tester, which basically means I

climb smokestacks and put a probe in them to find out what they're

putting into the air.

As far as medical history goes, I was diagnosed with Crohn's disease

in the spring of '01, but it was caught very early since I regularly

donated blood and was found to be anemic before I had any other symptoms.

So, now I'm taking antibiotics for the problem with my gall bladder,

and I have a Dr. appointment on Monday. Here's hoping things go well

and I can get back to " normal " life with PSC.

[Guest guest]

Welcome Trevor:

Weekends are usually quiet so you might night hear from many to welcome you.

We have had an unusually stressful couple of weeks with more than the usual tx's

and re-tx's and some waiting for their turns.

You will really like this group. They are some of the most knowledgeable, kind

and caring people I have had the pleasure to know.

Many have become like family and other members have said the same thing.

Extended family is probably the best words to discribe them and you can tell

them anything where as some family you can't.

dee

[Guest guest]

Welcome Trevor,

My name is Ian, I've had PSC for about 18 years. If one antibiotic isn't working for you get them to try another, everbody reacts differently to different meds. When my Liver enzymes numbers were climbing back in 1999 my Doctor put me on antibodies (Ciprofloxacin & Flagolin) for a month and my numbers came way down, but a month after finishing the dose the numbers went back up. The Doctor tried another antibody (Cephalexin)(he didn't want me to become resistant to Cipro) but the numbers stayed up so he switched me back to the Cipro for two months and the numbers came back down, but someone else might react the exact opposite. Keep looking until you find what works well for you. May God bless you in your fight against PSC.

Ian (51) PSC 89

Welcome Trevor:Weekends are usually quiet so you might night hear from many to welcome you.We have had an unusually stressful couple of weeks with more than the usual tx's and re-tx's and some waiting for their turns.

You will really like this group. They are some of the most knowledgeable, kind and caring people I have had the pleasure to know.Many have become like family and other members have said the same thing. Extended family is probably the best words to discribe them and you can tell them anything where as some family you can't.

dee -- Ian Cribb P.Eng.

[Guest guest]

Welcome Trevor,My son is 24 and was diagnosed his junior year of college in May 04.He has UC as well which unfortunately we did not catch early and he ended up needing a colectomy.If only we had known earlier maybe we could have avoided him losing his colon.Thank goodness you discovered your Crohns early. There are a lot of 20 somethings or their parents here in the group.I applaud you for being here and educating yourself on PSC. Good luck with the job hunting !Lee mother of Bill. As far as medical history goes, I was diagnosed with Crohn's diseasein the spring of '01, but it was caught very early since I regularlydonated blood and was found to be anemic before I had any other symptoms. So, now I'm taking antibiotics for the problem with my gall bladder,and I have a Dr. appointment on Monday. Here's hoping things go welland I can get back to "normal" life with PSC.

[Guest guest]

TrevorSeveral of us are mothers of kids with PSC so we know how your mother feels. Please take care of your self, take your meds and see a Dr when you have symptoms. If you do she will be less likely to drive you as insane as I did with my son.Martichanic452 wrote: Greetings, this is my first time using a yahoo group, so hopefully I'm doing this right. My name is Trevor, and I was diagnosed with PSC in August '06. I've been experiencing some symptoms lately, and an MRCP and CT scan on

Thursday showed that my gall bladder was distended, so now I'm on antibiotics for 10 days. If the antibiotics don't seem to help then I expect I will have an ERCP. My mother has been a part of this group since I was diagnosed, so you may have heard about me already. I believe her username is inkywretch. I have already gotten a lot of very helpful information through her, so I'm sure that being a part of the group will be good for me. "Thank you!" to all of you in advance.

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