Guest guest Posted November 7, 2008 Report Share Posted November 7, 2008 suzanne several people on this board have done clinical trials depends on lots of factors i think age would be one other medical conditions discuss with your docs my pulmonary did not recommend clinical trials for me referred me to transplant doc now that is the question is it time to get on the list?Pink Joyce IPF 3/06 Pennsylvania Subject: Clinical TrialsTo: Breathe-Support Date: Monday, November 3, 2008, 7:18 PM I have just been told that I have pulmonary fibrosis, after a CATSCAN, and an evasive lung biopsy. The pathology report was not what my pulmonary doctor called classic so he sent it to Michigan for another opion. I go in Thursday (the 6th) for that report. I have been looking at clinical trials because the doctor has mentioned that every time I have been in to see him. What is you opnion? I wonder if that is like cancer treatment where you get a longer time to live but that time is really bad. I would choose not to have treatment for cancer and wonder if I am better off not participating in a clincal trail for pulmonary fibrosis. Do any of you have experience in the clinical trials? Thanks for any replys.Suzanne Quote Link to comment Share on other sites More sharing options...
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