Guest guest Posted July 9, 2007 Report Share Posted July 9, 2007 Hi All - I posted back in August when Trev was first diagnosed with PSC. The Dr gave us no info,so this group was a great help in finding out about the disease, and offered much-needed reassurance that his diagnosis wasn't the end of the world. It's been a tough year; always seems like we got hard-to-wrap-our-head-around medical news just when he was leaving town; back to college, or off to Washington state to start his grown-up life. I've been very frustrated with his seeming lack of interest or involvement in his health; he's compliant and takes his meds, but hasn't made much of an effort to learn about PSC or be pro-active. So when his little brother and I came up to visit a week ago and I saw that he was jaundiced, that put me in full-on mom-mode. I've gently explained that he needs to become an active participant in his health care, or I'll haul his fuzzy butt back to Tucson where I can keep an eye on him. I think his color is improving, so maybe the antibiotics will do the job. We meet with his Dr tomorrow and Trev says she's much more communicative than the liver specialist in Tucson was. I hope to have many questions answered, but I have to admit I'm nervous. You should be hearing from Trev often; that's a requirement for getting mom to back off. He needs to enroll in PSC 101; it won't be as scary if he knows what he's dealing with. Knowledge is power. Thanks for being such a generous source of knowledge! Katy, mother of Trevor (diagnosed with Crohn's 2001, PSC 2006) Quote Link to comment Share on other sites More sharing options...
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