Re: Preserving mom's sanity, 2nd attempt at posting

[Guest guest]

Greetings, this is my first time using a yahoo group, so hopefully I'm

> doing this right.

>

> My name is Trevor, and I was diagnosed with PSC in August '06. I've

> been experiencing some symptoms lately, and an MRCP and CT scan on

> Thursday showed that my gall bladder was distended, so now I'm on

> antibiotics for 10 days. If the antibiotics don't seem to help then I

> expect I will have an ERCP.

>

> My mother has been a part of this group since I was diagnosed, so you

> may have heard about me already. I believe her username is inkywretch.

> I have already gotten a lot of very helpful information through her,

> so I'm sure that being a part of the group will be good for me. " Thank

> you! " to all of you in advance.

>

>

>

>

>

>

> ---------------------------------

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new Car Finder tool.

>

[Guest guest]

Katy,

I can understand your frustration. My son who has been diagnosed

with PSC, UC and possibly AIH turned 20 in June and will be a junior

in the fall. I go crazy with his meds. takes asacol three times a

day but I know he skips and usually takes 1-2 times a day. He claims

that he takes the ursadiol regularly because it is twice a day and his

problem is the asacol. He says he takes his 6MP also . Thats just

once a day. I guess I have to be grateful that he doesn't miss a

whole day. Still drives me crazy. Supplements are another thing.

We've had a multivitamin since last year 2006 in May which should have

been finished in three months. We still have about half the bottle.

He says the supplements are not that important. I keep an eye on his

medicine since he never adheres to my advice that he should get the

call in the pharmacy for the new lot a couple of days before he runs

out. I worry that when he is away from home, he will forget a lot. We

just have to keep on at them even though they get annoyed with us.

Rita (Florida)

[Guest guest]

Rita,

I use one of those weekly medicine holders that I fill up once a week. It helps me keep track if I've missed any doses. I normally take pills every 12 hours, but if I miss my normal dose time, I will still take that dose up to six hours late. I also use the alarm feature on my cell phone to remind me when its dose time. My cell phone allows me to set up to three daily times that the phone will alarm (you can set a different ring for alarms). Its much easier to set an alarm on a cell phone (easier than the normal bedroom clock) so I use my cell phone for short timing uses to (ie. when to take the cookies out of the oven) as well as to wake me up in the mornings.

Ian

i

Katy, I can understand your frustration. My son who has been diagnosedwith PSC, UC and possibly AIH turned 20 in June and will be a juniorin the fall. I go crazy with his meds. takes asacol three times a

day but I know he skips and usually takes 1-2 times a day. He claimsthat he takes the ursadiol regularly because it is twice a day and hisproblem is the asacol. He says he takes his 6MP also . Thats justonce a day. I guess I have to be grateful that he doesn't miss a

whole day. Still drives me crazy. Supplements are another thing. We've had a multivitamin since last year 2006 in May which should havebeen finished in three months. We still have about half the bottle.

He says the supplements are not that important. I keep an eye on hismedicine since he never adheres to my advice that he should get thecall in the pharmacy for the new lot a couple of days before he runsout. I worry that when he is away from home, he will forget a lot. We

just have to keep on at them even though they get annoyed with us.Rita (Florida) -- Ian Cribb P.Eng.