Obligitory new member post / Introduction.

[Guest guest]

Just wanted to give a quick introduction to the group. I've been

lurking since 12/06 when I was diagnosed with PSC.

I am 26 years old, live in Seattle, WA, and work for Boeing as a

Software Engineer.

In '92-'93 I was diagnosed with Chrohn's disease and Autoimmune

Hepatitis at 12 years old. I was put on medication and life returned

to normal. In fact it was so normal that I stopped taking my

medication when I started college ('99) and I continued to stay in

remission. Flash forward to September 2006 when I had my second flare

of colitis. I didn't realize it was colitis at the time and thought I

had food poisoning. This continued for a couple weeks and I eventually

ended up in at a gastro who did some blood work and found elevated LFT.

The LFT led to an MRCP/ERCP in Nov/Dec of 2006 where a stricture was

found in my common bile duct and later opened during ERCP. The ERCP

revealed intra/extra hepatic strictures but no other major blockages.

The doctor feels my disease is in an early stage and has not done a

liver biopsy b/c it won't change anything at this time. Right now I am

asymptomatic and my colitis is under control.

Medications: Urso Forte 1500mg/day, Entocort 3mg, Ceftin 1000mg day.

Supplements: Coromega Fish Oil (highly recommended www.coromega.com),

daily vitamin, calcium.

This diagnosis has been a signal to start taking better care of myself

.. I don't drink anymore with the exception of a couple beers here and

there and started exercising 3-4 days a week.

From what I have seen so far this is an awesome group! The wealth of

information has shed some light on what others have gone through and

what I can expect down the road. When I was first diagnosed I thought

I would be gone in 5 years but the members here give a much more

realistic perspective on the future.

Thanks,

#2 in Seattle

P.S: Sorry for the long post.

[Guest guest]

,

Welcome to the group. We are all hear to help. Feel free to ask

anything, some one should be able to help.

PSC 89, TX1 97, TX2 04

>

> Just wanted to give a quick introduction to the group. I've been

> lurking since 12/06 when I was diagnosed with PSC.

>

> #2 in Seattle

>

[Guest guest]

,

I think there are a lot of parents of younger children who can take some hope

from your

14 years with PSC and AIH. It sounds like you are really taking charge of your

care and

your health.

There is a study out there suggesting that alcohol may increase the risk of

cholangiocarcinoma, though I don't have it to hand. But keeping that in mind,

think about

whether that beer is worth it. It also took me a long time to completely

eliminate alcohol

rather than drinking very moderately, but I eventually decided the risk wasn't

worth it.

Urso may also reduce the risk of colon cancer, and there is a trend in one study

suggesting it may reduce the risk of cholangiocarcinoma. Have a look at the high

dose

URSO files in the files section on yahoo. You may want to consider raising your

dose to 30

mg/kg/day. You only get one chance at this, unfortunately, so I decided to go

with the

positive trends rather than waiting for absolute proof. But I get my URSO on my

health

plan, so it's easier to suport my habit!

Martha (MA)

UC 1979, PSC 1992

> In '92-'93 I was diagnosed with Chrohn's disease and Autoimmune

> Hepatitis at 12 years old.

>

> Medications: Urso Forte 1500mg/day, Entocort 3mg, Ceftin 1000mg day.

> Supplements: Coromega Fish Oil (highly recommended www.coromega.com),

> daily vitamin, calcium.

>

> This diagnosis has been a signal to start taking better care of myself

> . I don't drink anymore with the exception of a couple beers here and

> there and started exercising 3-4 days a week.

>

> Thanks,

> #2 in Seattle

>

> P.S: Sorry for the long post.

>

[Guest guest]

> > In '92-'93 I was diagnosed with Chrohn's disease and Autoimmune

> > Hepatitis at 12 years old.

> >

> > Medications: Urso Forte 1500mg/day, Entocort 3mg, Ceftin 1000mg day.

> > Supplements: Coromega Fish Oil (highly recommended www.coromega.com),

> > daily vitamin, calcium.

> >

> > This diagnosis has been a signal to start taking better care of myself

> > . I don't drink anymore with the exception of a couple beers here and

> > there and started exercising 3-4 days a week.

> >

> > Thanks,

> > #2 in Seattle

> >

> > P.S: Sorry for the long post.

> >

>